Follow
Share
Read More
Golden, Thought of you today at work. Was working in a group setting; mostly women with stress and depression. Three of the women in the group had CFS. All https://www.agingcare.com/discussions/the-caregiver-dysfunctional-families-149068.htm?orderBy=recent&page=2252of them felt that their depression or stress greatly impacted their CFS. They expressed the same thing you said about listening to your own body.

My aunt left to go back to Ohio. Mom is mostly settled in her apartment. She seems very pleased with how it looks. She had given me this big pile of papers from her attorney. In the papers was a notarized and witnessed statement itemizing all of the jewelry and a statement that she had given it me permanently for my use and the use of my grandchildren. Today when we went through the box - she showed me two rings that I didn't know about. She said that she had them made from a couple of old pieces ofjewelry . They were two identical rings - single 1ct. diamonds set in 14K gold. She said that she hoped that my grandsons would use them for engagement rings at some point in the future. She had a three piece set - necklace, bracelet and drop earrings - diamonds in 14K gold. She said for me to give it to my granddaughter Emma when she was old enough to take care of it. She said the rest of the jewelry I could keep for myself or keep for Emma. I'm glad she put it all in writing. I took it to the bank and put in my safe deposit box. I spent a couple of hours helping her put things up. She had read the bulletin board in the lobby and discovered that they had an open club bridge game and I left her at 2:00 talking to a couple of other ladies and getting ready to play cards. She called me after dinner and said that she had a good time and that all of the men and women were very friendly. Two ladies on her hall had invited her to eat dinner with them. She said the food was very good. She had looked at the menus for the rest of the week and had signed up for those meals. She said she enjoyed eating in the dining room that it wasn't as lonely as sitting at home and eating by herself. My Mom in a congregate dining room - hard to believe. When I checked on her early in the day - she was cleaned up and had her makeup on. Haven't seen her in makeup in 3 or 4 years. Hope that everyone is having a good evening.
(6)
Report

We are back to more rain. I hope the iris bulbs don't rot, lol!!! Daughter is expecting more snow, worries me some for my flight there next month....

I take Midget back to the vet today, I hope they can remove the staples.
(4)
Report

Upsetsister, Absolutely thrilled for you, that your Mom is settling in so well at her AL home! It is very encouraging, and hopefully my FIL will do 1/2 way as well as she seems to be doing, playing cards ans invitations to dinners with others is Awesome! Her setting aside her jewelry, to go to who SHE wants it to go to, fantastic!

It sounds like she is feeling a freedom she hasn't had in a long time, having been constantly under pressure from her other kids, who were only after her, for what they could get from her.

I hope this new chapter of her life, allows you the freedom to enjoy your life, continue to work, and rebuild the Mother/daughter relationship, you both desire! Good on you! You did a fantastic job, I really rooting for the both of you!
(5)
Report

Upset, sounds like a story book transition to me! Great!
(3)
Report

Upset, sounds like your mom is making all tempts to settle into this new environment. That is great and hope it continues long term.
(2)
Report

Up until moving to Ohio near my brother, my Mom was a very Social person. I checked on earlier - she gone the movie this afternoon. She said she enjoyed going. They had headphones for the hearing impaired which she liked. I'm sure she will have off days, but if she has good ones it will be more than she's had for years.
(7)
Report

That is awesome upset.
(2)
Report

Hi I am caring for both elderly parents in their home. Siblings in neighboring states no compassion nor sympathy or the workload. They breeze in & out and cut their visit short and leave a mess for me to clean up in their wake. I am under scrutiny and not permitted to rest and isolate to recuperate when they are there for so called relief. One sister came out and in her cold as fish usual manner - a nurse no less - brought her flu with her.
She left without saying goodbye to me.

The other came up and brought a stomach virus from her family - cut her visit short as well - always judging and telling me all about myself. I am interrogated if I am not energetic, 100% happy or entertaining. She too left without goodbye. I ended up cancelling work because I caught her puke virus and when I dont work I dont get paid .

When my mother had a stemi 2 mos ago - I had to leave work my dad never answered ems call. Nor did anyone else. I met my mom at hospital and held her hand while she endured a team of MDs and had a heart attack. As they performed cath & stents, one sister called after I had left texts and calls without answer for hours - she was sobbing and in need of comfort while I sat in the cath lab alone.

They all arrive and my cousin brought my dad down because he is too old and it was snowing to be on the road. I sat with her mother before she died for months in and out of the hospital. She dropped my dad off and left. Came back in w a promise to bring my mom dinner the next wk and actually ended up cancelling that never to RS

My sisters work w my dad to arrange care while they punctuate treating me like shit in and out of the hospital. They went out to get food one night upon return from Hospital and did not invite me. I had gone home to clean the house and make food for them. In the middle of this my car started to break down and finally was made into scrap metal. My nurse sister brought home crap food for her once she was out that would log anyones arteries. WTH

My mom had a stroke about 2 days go. Dads thought was to take her to eye doctor after she lost vision. OMFG. Why and how did this grw to be the beast that it is.

I am so tired. So tired.
(2)
Report

sorry meant to add my mom and dd fire everyone they agree w my sisters to hire. My sisters say for me to suck it up.

I hte my life here. I have to get out before I end up in hospital
(3)
Report

I am confused scared taker. You say you sat with your mom for month before she died but said she had a stroke a couple days ago.
(0)
Report

cousin's mother
(3)
Report

Thanks Vstefans!!
(0)
Report

scared -sounds like you need a change of some sort. The sibs are worse than useless. Do you have to live with your parents or do you have any alternatives? Is it time for your mum and dad to go into a facility. Can you talk to the hospital social worker next time your mum goes in? Thankfully my sib is any many miles away or I would get some of the same kind of help which is worse than none at all in my view. You need to look after you.

sharyn - I read it that way first too. I sure understand why you don't want to keep working. Hope midget will be staple-less soon.

upset -wonderful how your mum is settling in. Maybe she realizes she has a second chance and that she blew the last one. A social life is one of the advantages of an ALF. Just about everything affects CFS/FM stress, weather, allergies... I find I am sensitive to noise right now and at the hairdressers this afternoon wanted to tell them all to be quiet! I an going back for a gel fill tomorrow and hope it is quieter then.

glad - awesome that you have your place and will use movers. It is coming together nicely. Yay!!! Lots of room for Macey to run, I hope.

I got overwhelmed this evening, by kindness for a change. One of my cousins just decided to join face book and he messaged me yesterday. They spend the winters in Arizona. Long story short, I got strongly urged to visit them. Their house is free of visitors till mid March. I am so touched. He probably is the cousin I trust the most. They are very genuine and hospitable. It's funny/strange - I bought a couple of summer maxi dresses on sale the past few weeks thinking, "What am I doing? I am not going on holiday anywhere warm." Well, I guess I likely am, after all. Once I get the renos finished this month (or even if I don't), and my cataract done , I should be good to go sometime in February for a couple of weeks and can work in a week with my son coming or going. The plane goes from his city right to Phoenix. Need to digest this! It makes me a little sad as well as R and I were planning a trip there too. but... I will enjoy my cousin and his wife very much. Wow - so hard to believe.
(6)
Report

Golden, GREAT! A trip to Arizona, very warm compared to what you are used to. You deserve the break.

Yes, house all lined up. I am looking forward to it. The house is just on the outskirts of town, on 1.7 acres, lots of room for Macy to run. Could raise chicken or goats, if I wanted to.😸 four beds three baths, four car garage for all the toys I could get. A boat, vintage corvette, nope vintage pickup is more my style.  more than I need, good deal on rent for the Area. The owner just bought it in December, and will move there in 12-18 months. At thAt time I will have a good feel for the Area and know if I want to buy or just continue to rent. I know I do not want a big mortgage at this point in my life. Very excited!

The landlord even negotiated rent since mine still has not sold. But, I got a contract on it yesterday. Hopefully it will go through. I had one that fell through about a month ago. The rent will increase and catch up on past months after closing. My phone was ringing off the hook yesterday, or I guess now out of my pocket.

Movers cannot come until the 26th, wish it was sooner. Then delivery Monday or Tuesday the next week. So, all is falling together. Found doggie day care. Ordered internet, will get utilities taken care of today.
(6)
Report

Glad, that is so awesome!!! It sounds perfect for you and Macy. Maybe some goats so you would not have to mow 1.7 acres!!

Golden, Arizona this time of year would be great!!! It will a nice break for you to get in a warmer climate.

Midget got the staples removed, I am happy about that. I also got her liscensed into my name finally. All this time I have had her, I left it in my mom's name. Later today I will call to put her microchip number in my name too. Some little details I have needed to follow up on. I am back to sorting out paperwork. All the financial copies my sister sent each month needs shredded. I don't see a need to hold on it it any longer. Next month when I go to Idaho, dad and I will look at some model homes just for ideas.
(2)
Report

Sharyn, I hadn't thought about the goat advantage and not having to mow! LOL!

Great about Midget and making her yours!
(1)
Report

Hi everyone... I'm glad things are moving in a positive direction for you...
I feel like a sponge absorbing my families health issues... Here I am trying care and handle all my mother's issues and my oldest brother calls my mother to tell her all his major health issues going on... of coarse, I feel badly that he had heart surgery and hip replacement and this morning he called to tell her he fell (tripped on a rug) and hit his head (she was crying). I feel badly for all, but all this stress is eating me up and causing me more stress... I have a dr appmnt for a routine visit in a little while... My mother, brother (or his family who live 1000 miles away) don't understand or care how much work I have done to keep my mother 'well' and healthy while this has taken a toll on my health (not to mention the years it has taken from me ... my life)... Why do I (or should I) feel obligated or stressed because of what is happening in their lives (when I have been the 'good' one)? Everything is wrapped around them... (they think I'm invincible).
(3)
Report

Hope, caregivers are largely invincible, we have to be or we wouldn't last a week. Need to concentrate on the elder, not worry about the rest of the family. You are doing good. Continue to do what you need to do. You, too, deserve a break. Make sure to do something nice for you while you are out for the doc.
(2)
Report

Move just got changed to Wednesday, delivery Friday or Saturday. Yeah!
(4)
Report

Glad - so happy for you. I hope your move goes smoothly. Best wishes.

Golden - Az in February is fabulous...and getting. To see your son.

Got a call from bad Brothers SIL. She got a final forensic acctg. Prior to her taking over her parents POA, bad bro and his wife had taken huge amounts of money from her parents. So she is making claims on them. Upside is her parents have taken her sister out of their will. Their estate will be split 50/50 only it won't go to my SIL until my Mom or her estate is paid in full for what they stole. Neither of her parents are expected to live more than 6 weeks. They both have endstage cancer and her mother has advanced Alzheimer's. I feel really bad about V having to lose both of her parents and having to deal with my bad bro and SIL. I took Mom this afternoon to get a new doc here. She liked her and thinks she will be fine. Tomorrow she's getting established with eye clinic. She asked to take me out to lunch and to go shopping. I couldn't believe it; she hasn't done that in maybe 8 years. She used to be a first rate shopper and going out to lunch was a favorite thing. Pretty amazing from my perspective.
(5)
Report

My sister tried to take money out of bank account again, this time with dads old credit card The same sister that forged herself 80 thousand in checks from this account when dad was alive. i had it open for 6mo incase of bills. thank god the bank called me and I stopped the charge and closed the account - She is crazy = she sent me a xmas gift, i stomped on it and threw it away. Unfortunately this mentally triggered me to the point of having a seizure.
(4)
Report

My SISTER died of cancer - not my mom
(1)
Report

Gold - yes I live w them. You are right...siblings being nearby and not doing shit is worse. Social workers are useless in the hospital. Both my parents turned down the recommendation & urging of the OT & PT for in home help as well as health manager recommendations of a in home care giver. We had a lady coming in 3 times a wk m dad and sister set up (I was not allowed to be in on the decision) and my dad cut out 2 days of her as well as house cleaning who is now once every 2 wks and I do it in between. At least they get paid.

My mother and father have been verbally and emotionally abusing me the worst its been and my siblings are ganging up on me - they never bother calling or asking how I am - Im incidental to living here when they visit and make loads of work for me. My father is a rageaholic and when I reaffirm he cannot speak to me like that he rages more. My mother is completely losing her marbles and my dad knows she cant be left alone but he will fire staff and leave her. I am going to get out asap. I have no money and no place to go. I am so distraught I have been backed into a wall and my mom cant stand up for herself and yet she is mean as heck. But my dad is an a**hole and rage king. The two have a love hate thing and want help but only if I am the slave. I hate my life. I have to get out of here and it is breaking my heart. I was here as a promise to my mom so she would not have to go into AL. Nobody wants them to but I am the only one doing the work.
(5)
Report

Yeah so caregivers have to sit and listen to the siblings whine about their latest a** polyp while we tend to their parents in the ER following strokes, major heart attacks and the like. We aren't supposed to speak of mom and dad unless its to say how awesome it is we took the choice of being ever so thrilled to take care of people who never took care of us (ME). Abused as a kid while mum drank pilled and fought horribly w my dad while he traveled internationally and I got the brunt of her dumping her adult issues on me all night in her stupor. Picking her up off the loo as a kid and still am. I got her mostly sober but my dad sneaks wine and liquor or takes her out. She falls ad goes into insane rages when he does this. The man is a whack job and refuses to allow her to go to AA as I had her going when I got here and she was hurting herself. He refuses to go to nor will he support her going to therapy - she doesn't want to go either. So 2 adult children get to scream, rant rave and look like god & goddess of charm to those siblings who wont help - except to breeze in and out at whim thinking they are doing a damned thing - while they all slam me the family scapegoat.

You guys. I am trying so hard to get out of here and the sadness at having wasted my life is making it worse. I don't know how to or where to go to start again. I am listening to motivational tapes daily and work hard on myself but the constant horrid negativity and they and my siblings insisting I am a worthless POS is killing my will to survive. I am so sad.
(4)
Report

I see other elderly parents in the hospital beds next to us being so kind and sweet to their caregiver children and it leaves me in shock. I wish I had that. I had no idea it was possible. I thought I deserved this mean and abusive talk. Cognitive dissonance. Gaslighting. All I know is it is torture right now and I dont see a way out except to abandon my mom. And leave it to the other jerks who will toss her in a home. Nothing I do is good enough. I don't know where to find the strength to hold on and help myself. I am so depleted and so incredibly beaten down. How people can treat a human being like this is beyond me. The hospital staff was not kind to any of the families visiting - they really talk down to them and it's not okay. Just compounded the awful trapped feeling I had as well as my confused mother.
(2)
Report

I can relate. I am an only child. My dad left when I was 17 yrs. and doesn't really communicate. My mom took care of me and my dad's mother and aunt until they died. After I graduated college, since I did not have an immediate job lined up my mom told me to come home to help her care for everyone. Now my mom is 70 yrs. and retired. She and her friend (who has depression and bi-polar) live in the house together. She was taking care of him, but sometimes I'm not sure she is much of a caregiver for him. My mom has always had trouble with depression. Now she takes one antidepressant, a HBP medication, and a cholesterol medication. The doctor just switched to a new HBP medication and added an anxiety medication. I still have never been married (though I have a boyfriend now) and have no children. I live near my mom, but she constantly calls me to take care of her. I'm so overwhelmed.... she is a retired nurse, but she won't check into the medications herself or make appointments herself. I'm not sure if she is just lonely or if her mind is going and she is forgetting more and more. I feel overwhelmed, scared and trapped. Do you have any suggestions?
(2)
Report

Scared and Only, you both need to figure out a way to get out and save yourselves. I did, I know how frightening and difficult it is to even think about. I took care of mom with Alzheimer's and her hubby with age related decline without help from twisted sisters that both lived within ten miles. I just got tired dealing with twisteds, I had enough. Told them now they had to figure it out, one of them has mom's poa's. I told them in April, but they both had summer vacations, etc and then wanted me to stay through the summer so they could do what they wanted to do. This was after they had been trying and hoping I would leave for at least three years. So sorry. They had to find a place for them to move. I was not going to take their abuse any longer.

I looked for work, did not find anything near my home. Started to look out of state, moved 450 miles away to work in my field. Think outside of the box, push your comfort zone, it will pay off. I have now been here for a year, it was very difficult, the job was not at all what it was to be. But, I got back in my field and will move again next week, much closer to home.

While this was hard, it was very good for me to place the distance between me and family dysfunction. So make a plan, and do it. I hope Ali will chime in here. She has gone through the caregiving for her dad, five years now, and she has made a plan, that is still in progress. It is possible, you both can do it. Best to you both.
(8)
Report

Wrapping up loose ends. Stopped for coffee. Feeling strangely at peace. Until access ing on my phone. I don't know how anybody does this all the time! UFFDA!
(3)
Report

Wrapping up loose ends. Stopped for coffee. Feeling strangely at peace. Until access ing on my phone. I don't know how anybody does this all the time! UFFDA! The post comment button is not working!!!!
(3)
Report

Now I know why some posts are there two times, the delay from a smart phone to post a comment is very long and does not look as if it works.
(4)
Report

Start a Discussion
Subscribe to
Our Newsletter