
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Emjo, thank you, just so much right now. Then made the mistake of calling a life time friend of his. That did not go well, because as alcolholics do they alienate friends and family. This friend must have been quite hurt by whatever was said to him. But, he sent me an email in the night and maybe he will help. He was quite nasty to me on the phone, haven't talked with him in probably 6 years. He actually asked me "why don't you take care of him since you are already taking care of two others?". Doesn't have a clue.
The point is...like you and like I did...you have to walk away or it consumes your life, your family time, your marriage and everything else in your life. It was many years before I accepted another house key from my mother.
Have a good day and night everyone!!
Phone call from my brother this evening. One of those spooky ones - you're talking about somebody earlier in the day, his ears start burning (presumably), and next thing you know he's on the phone. Anyway.
It seems that they have given up the idea of finding respite care near their house and instead have decided that mother will be fine spending a week in their home.
They decided this, by the way, following a conversation SIL had with the care home where mother has stayed on three previous occasions. I have no idea what the conversation entailed. I didn't know it was happening.
So, what do you say? Brother was being very belligerent in his tone, I'd say, anticipating objections I expect. But the objections are so numerous and so obvious…
I turfed this to mother. Kept brother on the phone and passed on the invitation to her. Her face was a picture of rapidly switching emotions - wow! A week with brother. Oh. A week with SIL. But a week with brother! But who's going to be looking after her? - yup, SIL…
Decided I was being cruel and gave him her first response of "thank you very much, how nice."
Well now. What's the worst that can happen?
Brother said it would be okay, because if it turned out to be disastrous they'd bring her straight back again. Well, actually, no that is not okay because when I get a week off, I want a week off, not a week on call. But never mind that, if it turns out to be disastrous in the way I fear, namely that they drop her on her head or she gets disoriented and leaves the house, they won't be bringing her anywhere. She'll be coming back either in an ambulance or in a box.
In the end I stuck my tongue in my cheek and said to brother: "rather you than me."
Mother wants to go, is the thing. Which kind of settles the argument. And if/when she comes back absolutely shattered, with her arms bruised from SIL's vice-like grip and her legs ulcerated and her bowels all over the place… well, happy Christmas. It'll take me a month to sort her out again. This is just the *worst* idea.
My dad is still hospitalized. My mother has taken over in calling the hospital all the time and telling the nurses and doctors what to do. She started this last week, but there was enough for me to think about, so I just have let her go and do what she is going to do, and tried to keep myself together and my dad's spirits up. My father can't eat and my mother is accusing hospital staff of letting him starve to death, which isn't true of course, they are working on helping him, but she thinks she will get results by being harassing.
I've been too weary of all of it to even write about it. My mother takes an already stressful situation and works everyone (me) up into a frenzy. Now, because she is insisting they send him home (so that I can take care of him), I may not have a chance to get him put into a rehab. He still isn't swallowing or eating. What in the world can I do to help that if he comes home? My mother said I could get home nurses for him while he recovers. That's fine, but arranging that will take a few days I would think, and doctors are not saying what his prognosis is yet. I'm not pleased that she is, again, butting into a situation and making things so much more dramatic than need be. Nothing she says or threatens is actually going to get my father fed any sooner. It seems they simply haven't been able to get to the bottom of why he can't swallow. :-(
Anyway, it doesn't look like doctors are keen to just release him when they haven't sorted out if he will be able to eat by mouth or will require feeding tube.
Between my poor, sick, stubborn father and my intrusive, short-sighted, but well-meaning mother -- I'm quite grouchy lately. Hope everybody is well. (((((hugs)))))
toxic - I am so glad that you have taken these steps and are recapturing your life. You are a good example!!! Enjoy.
Sharyn - that was courageous and the right thing to do with your parents. Good for you, and for not drinking since May. My daughter has been sober for about 20 years now. I know your recent stresses must have brought some temptations. Hope you get the electrical and dishwasher all sorted out. It is great to have a reliable company.
cm - What is he thinking? It makes me shake my head - like my sister thinking she can waltz over here and move mother to an inferior facility, and improve her life. I gather you are taking another chance at it. Ignorant - meant in the most literal way - sibs are not helpful. And thinking that he can return your mum to you, on your week off, if it does not work out. Aaaargh!!! What is his objection to the care home? When my sis used to visit mother, mother would tell me that they fight, and if it got too bad sis could just come and visit me, to get her out if mother's hair. I said "No!"
Alison - oh dear - bad enough with just your dad, but your mum now too!!!! You don't need that. You can't take care of him in his condition!!! You could refuse to bring him home on that basis. Surely the hospital will not release him until/unless the feeding issue is resolved. How much clout does your mother have other that harassing you and them. I would not think she has any if they are divorced. I would be inclined to tell her to back off - not her circus - not her monkeys. Don't let her brow beat you into anything you are not comfortable with. It sounds like your father is quite ill. Do you think you will be able to continue to look after him at home? Please do some things for yourself in the middle if this - hard I know but necessary for your health. ((((((((((hugs)))))))))
Some family developments here. Will start a new post.
Some good news. My son needed a drive to the airport the other day so I had a chance to talk to him alone. I told him how I feel about the restrictions dil puts on me, and he nodded and said she is having some problems these days. A few years ago, all he said was that he had to support his wife. I mentioned that I would go to their pastor with them re resolving family problems and he thought that was a very good idea. I also told him that I was finding someone else to do my nails because of the comfort level, and he said he would tell dil at the right moment. Good enough. They actually wanted to come over and talk about something else - but he said it was dil's stuff and she could tell me if she wanted. I said I would not have a repeat of what happened before, and, if it was not inflammatory, they could come over sometime. I am very cautious as I feel she wants something from me, and right now I do not have much to give her except a wide berth. I am hopeful that son is finding his spine and standing up on his hind legs. I know he has it in him if he wants to use it and she needs to know that the world does not revolve around her.
G is off hunting - alone - his uncle couldn't go. I called him and he was in the middle of nowhere in the pitch dark, had essentially lost his way, needed water and sounded tired. He will get a good talking to from me when he gets home about looking after himself better. He found a fence line when he was on the phone, so he will find his way back and will text me when he reaches the truck. Meanwhile, I am praying for his safety. Thankfully, he does have a gun and the cell phone is working. He is getting a bit old for this.
Oldest grandson has a new job - did I mention that before - and is doing well at it. I found a few more bits of clothing for mother, so getting that done - and cm - I am keeping receipts now. She wants to go out for lunch or tea once a week so we are setting that up. SW says she even smiles at her now. The wonders of meds!!!
All in all it could be worse. Now, if I could just completely get over this infection once and for all, and make sure I don't get knocked that far down again.
Have a good night all and look after you.
You've been doing the same pondering I am doing about how much longer and how much more can I do. It is a huge concern about where I'll be when I come out the other side of this if I don't start making some changes. It would be easy to get lost. emjo, you've done such a good job at caring for yourself while tending to things for your mother. Even when we are tough, it can wear us down. Most of the time it seems we're okay, then something hits. I guess it is telling us we need to make changes when we can't shake something off.
Big hugs coming your way. I hope G doesn't have any bear stories. Shiver. Let us know he made it back okay.
Those that survive best are flexible and make the needed changes. Insanity is doing the same thing and expecting different results. Never too old to learn and change.
I worry a bit about you, Jessie. It is very easy to get lost in caregiving. At least I have G and the kids and grandkids to bring me back into the world. What changes are you looking at? Do share - we may earn something.
G does have bear stories, but that was before I met him, thankfully. :) Hugs back to you
Alison who has POA for Dad if parents are divorced are you next of kin.
What does he want to happen? He can certainly come home to die with hospice if not able to eat or go to N/H either with or without a feeding tube although N/H don't usually like them. Hospice is unlikely to bring him home with an IV.
I don't remember what his general health is like. Ask lots of questions.
Sharyn hope everything gets fixed OK
Yes, it does take longer to recover as we get older. You certainly did have a bad bout. I have never had a colonoscopy They usually stop them around age 70 unless there are reasons, and no dr. ever suggested it to me in the preceding years. Hopefully, yours will be clear.
Ex G is coming into town and asked me for a lift to one of the plants this afternoon as he got a job there. Wish me luck. The traffic on those roads is heavy and I haven't driven out there in a long time. Last time I did this was a few years ago and I managed fine, and there are more lanes now. He gives me rides when I am in E'ton, so it is reciprocal.
gladimhere-Im so sorry to hear about your friend.Also all your work and stress, you do need a break. And some good news.
emjo23-I hope everything works out for you too. Idk what Im going to do about me. I know its hard to let others to things for our loved ones, Im the same way, it took a while for me to get used to others taking my grandpa places after he went blind, people who took care of my mom, my kids etc. But, if they ever needed help with us, they would get it, so you need to get help for you. Look at it this way, you have been wonderful to so many people,( incl me) its your turn to relax, your turn to get "spoiled". You need to do what you love to do, but get some to join you! I am glad your feeling better and hope you get over your infection asap. Glad G is ok :) Good luck with your son.
toxicfamilymemb-Im sorry you were abused and you went through so much. Im also glad you were able to help you mom but walk away too. I bet its hard without your sisters, the ones we are suppose to count on huh? Im glad your at a peaceful healthy place now. My grandpa never hit us, just the verbal putdowns and demands. I hear you about family, mine is divided in two- One side is money hungry and mostly prejudice.. ( we dont talk to them except for one) the other side- with few relatives remaining have been mental disorders or alcoholics but luckily they are open arms. Still, like you, I dont have much family left either.
Countrymouse- Oh my gosh I hope everything works out for your mom and you. Im glad your mom settled it, but, I understand once you have her back what you have to go through. Can you leave town that way your not on call? Or even hide out at a Hotel? I wish you a nice week :)
AlisonBoBalison- I hope they find out what is going on as well as what needs to be done asap! I think a Rehab would be wonderful, even if he needs a NH after rehab, they could make the decision also so your mom wouldn't be able to say much? I know she means well, and I hope theres improvements for your dad and well needed rest for you. Hugs to you all.
JessieBelle- You hang in there to, your not alone, you have us! Hugs
Veronica91-you have many good points :) Hope your doing good too!
*****sorry if I forgot anyone since I last wrote... love and hugs to all
The dishwasher is working like a charm...however the repairman said the valve was packed with sand. We do have sandy soil here...he said he hopes it is not a pipe issue. Our house was built in 1972 all the pipes should be pvc which can crack or break. Time to save a big chunk of money just in case. I mentioned to my hubs a while back about a possible pipe issue cause our water pressure in the kitchen gets low...he cleaned out the screen on the faucet which fixed it but it too was filled with sand. They have been doing a lot of road construction near us...possibly from that...I hope.
Joan-glad G found his truck...I chuckled at your post about him losing the truck.
jessiebelle- it is hard doing what you do and planning ahead for yourself and your mother is a good idea. You are very common sense with your mother just take care of yourself too.
Veronica-i hope you can pressure them into doing the colonoscopy sooner. If it is an insurance issue probably not. If you have a deductable then you start all over in Jan.
A shout out to everyone...Margeaux, Alison, Glad, Toxicfamily, Book, Juju!!
Love and blessings to you Glad
I am very sorry to hear about this news concerning your friend.
A letter to his family is a good idea. Meanwhile.....do take care of yourself,
because you have quite a lot to contend with right now.
Big Hugs,
Much Love & Light! Margeaux
This conversation with your son must have been really difficult for you.
I understand......where a parent is trying to keep just enough neutrality with their own kids, then having to also put their foot down because of an in law who causes riff w/in the family.
You know.....when I start getting that feeling, and I don't care who it is.....friends, family, that things have to be THEIR way, or even situations in which one starts to notice that things in relationships w/people are invariably controlled through them,
I really just lessen my contact with them. This is something I constantly find myself doing with my sister.
Anyway Emjo, you did the right thing, and I will say that I do understand also when a parent wants to keep those lines of communication open, and all of that too.
This is what a cousin of mine says, about her own situation of having her daughter living with her, plus two grandkids. Her daughter takes advantage of her mom's kindness, etc. Although I agree with keeping lines of communication open, that IMHO, needs to go two ways. You are very wise, and do have boundaries, so that's a wonderful thing.
I also had a chuckle through this story about G, and I'm so glad that he found his truck! HAAH! HAAH! My husband is a daredevil of sorts. He's a real couch potato. But one day, we were at the beach and totally surprised me.....climbing up a single rope, in one of these exercise set ups, where they have rings to swing on, etc. Said, he learned that in the army. Of course, he was feeling it in his back and neck few days later.
O.K., my dear, take care of you, as I know you do.
Hugs,
Much Love & Light! Margeaux
Margeaux - actually it was easy speaking to my son. He is a very easy person to talk to. We have a good relationship, other than the initial dil problems, and he is more open now. I am lessening contact with dil, and felt, also, that I had to tell my son why. It is interesting, as I got an email from dil yesterday saying that son told her I had some anxiety about meeting with them. She said that when I was not available right away, they decided to speak to her parents which they did last week, so they do not need to meet with me and I need not be worried. It was a nice letter, not at all necessary, and had a good tone. All of that is good. What they wanted was financial advice - I gather more for dil than for both of them, from what he said. Frankly, I do not want to be that involved with dil. I think her parents are a more appropriate resource for her. She borrowed some money from me about a year ago or more (due to foolish spending on her part) and paid the last amount back the day before - after son would have talked to her. That is good too, but I will not lend to her again, If my son approached me for a very good reason I would consider it, but he never has.
She needs to realise that her choices - like restricting who I can talk about in her presence - has consequences. She has anger/resentment problems and needs to deal with those, rather than telling other people what to do or not to do. My opinion anyway.
Our nice fall weather is holding, so I must get out today again. Likely it will not last much longer. Also I need to do some de-cluttering - mainly paper stuff - and haven't been able to do much with this infection and brain fog and doing things for mother. Really getting better now and thankful to be able to do more. My drive yesterday went well and the traffic wasn't too heavy. G is home tomorrow, so need to plan some meals. I made a pork butt in Salsa Verde and it is gooood. He will like the heat.
Still thinking about what help I need and maybe more how to get it, and what I can and cannot do for mother. I know I overthink things - part of the territory of my upbringing. But I am moving forward.
Have a good day