Ok I agree with everyone. This is not what I signed up for. I am burned out, resentful and angry. My sibling believes I am "robbing his mother blind". Therefore he has not spoken to either of us for 3 years. Of course I am missing work again today because the caregiver didn't make it in the snow.
I am also tired of being tired, tired of being angry. Mostly tired that there are such limited choices for elder care in this country. This site is filled with people just like me, can't we think outside the box and think of some alternatives?
Medicare is very limited, which is the best thing to say about it. Private pay is expensive, few people have the resouces to stay on that path very long. Government (Medicaid) leaves you little option except to exhaust your finances and be in a nursing home. Not to mention the inherent problems of a nursing home. $200 a day for institutionalized care. No one is going to pay us to take care of our parents. There may be a few limited resources but it isn't going to replace income from giving up a job. Besides for many of us, at least me, being isolated with mom 24/7 isnt healthy for either of us.
So I have been thinking about an idea of co-oping care. I don't want to make money, just share responsibilities. Similar to childcare, but 24/7. Does anyone know of groups that might have something like this working?
OK, did that idea sound stupid? Then help me what are some other ideas. I am the kind of person that needs to find solutions, you know fix processes etc. Well this process seems to need quite a bit of work. Government isn't going to help us, most of time their involvement only complicate matters. For many providing eldercare it is a conflict of their business interests to see families succeeding. We have no voice when the rules are make. It is our problem and considering the aging population it is going to more and more of an issue. Come on, where is the innovative spirit? Professionals, regular people: any ideas/thoughts?