Mother had a rapid onset of dementia a few months ago (UTI's, hospital stays & some meds I think). She went from last hospital stay to rehab at a NH and from there to an Assisted Living facility. She will be 96 this month, is in good health, but miserable, scared, has horrible anxiety, sundowning frequently and pretty much has all of the other attending symptoms that define dementia.
She does not sleep and continuously climbs out of bed and gets in the floor. I don't think she's falling per se, but 'in the floor' in any situation can't be tolerated by the AL -they could get fined by the State. Mom won't call for an aide until she's in the floor. I've asked why she wants in the floor and she told me she thinks it might keep her from having the constant urge to go to the bathroom which she feels most of the time when in bed. She is on a low dose antibiotic so she shouldn't have another UTI at this point. The other problem is that she became a crier at the NH. She would rarely press her button to call for assistance and figured out in her confused brain that the best way to attract attention and get someone to come was to cry (boo-hoo) loudly. At the AL this is not a good situation because she upsets the other residents. The nurses in charge have expressed their major dissatisfaction at having to deal with either one of these behaviors.
I have her in the 'Memory Care' (Dementia/Alzheimers) section of the AL. She gets much faster response by their staff and it is certainly a much more pleasant facility (nice rooms and no odors) that she would have at the NH. But I am at my wit's end to come up with anything to change these behaviors. She has been at the AL for 2 weeks today and last Friday I had to employ sitters (per the AL) to come in at night to stay with her -hopefully to make her feel more secure and help get her adjusted to the AL. Isn't working so far. We also got a med change to Remeron last Friday too that would hopefully help her sleep. Apparently that hasn't done much yet either. She takes a bp med (Coozar), Arricept and Lexapro. Xanax was causing her problems (tremors & more) and it was stopped last Friday.
Has anyone dealt with either of these? Got any suggestions? Don't tell me to get her put on Seroquel or other antipsychotic because they've been tried and I think put her deeper into her dementia.
Thanks for any advice.