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Hello and thanks for your reply. No, the facility she placed him in offers no stimulation or interactions. I live several hundred miles away, and he doesn't know me anymore. I sent her the UCLA trial which focused on nutrition to no avail. Three different neurologists diagnosed 3 separate conditions, starting at Parkinson's, then lewey body dementia; and finally alzheimers. We can trace the onset back to when he fell and injured his head and had ringing in his ears. I don't think the diagnosis is correct. But I guess I am just prohibited from demanding that he see a real specialist for an accurate diagnosis.
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Again, davessister, my heart goes out to you. This has got to be even more painful being so far away. You can't easily talk to the doctors or visit your brother or visit with his wife.

There is no way to sugarcoat it. Dementia is absolutely devastating for the entire family.

If your SIL took her husband to three neurologist your brother has been seen by "real specialists." The fact that they came to different conclusions does not prove they are not competent doctors. "Dementia" is fairly easy to diagnose, but pinpointing the exact disease is far more complicated. As things stand now, the only absolutely accurate way to see what is happening in the brain is to examine it post mortem. When autopsy results are compared to the diagnosis on record, the accuracy rate of diagnoses is dismal -- and this includes specialty clinics around the country.

I belong to a support group for caregivers of persons with Lewy Body Dementia. It has been a number of years and many of the people with dementia have died. Only 2 had autopsies. My husband's diagnosis was confirmed -- he had a more severe case than his symptoms would indicate. The other man's diagnosis with LBD was proven to be incorrect, even though it was made by one of the area's leading experts in the disease. I don't know whether it is a consolation or just adds to your frustration, but the fact that your brother's diagnosis has varied so much is common, and is not an indication of poor care.-

I know how much you would like to be able to DO SOMETHING for your brother. I can't tell you how much I wanted a magic wand for my husband, and now for my mother. Being helpless adds to our grief. It sounds like you have tried to do everything you can think of. If you were geographically closer there would be other things you could try.

As it is, I think you need to make peace with the fact that your SIL is in charge of her husband's care. Direct your frustration and anger at the disease itself. That is the true source of the problems here.

I am truly sorry that you are in so much pain.
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Warning to Shiner re: Guardianship --- Sadly, I have a similar situation, I began caring for my Mom's needs over 8 yrs ago, when her worsening vision & a car accident left her w/o a vehicle, she was, at that time of sound mind/just poor vision. She still lived at home & other than assist getting to store & appt.'s was quite capabl. This later evolved into me paying all her bills for her ( she kept debit card & I had her bills forwarded to me & I paid her bills w/ checkbook or called in payments via automated phone access or online pay w/ her card "info" ) In 2013 we addressed the writing of her Will, & she assigned me as P.O.A. (both legal & medical) . In 2016 my Mom agreed to move in with me ( both the home she was in & the home I'm in were built by my parents) & shortly after she was diagnosed w/ Alzheimer's....., in the last year a Brother that has lived out of state that she has not spoke to in years-as well as his son ( my cousin) that has not been a part of my Moms life in approx 15 yrs..., managed to gain possession of my Mom while she was visiting with another brother. They somehow got her signature on a POA & $3500 later after lawyers & court investigators visited my home & investigated ME & MY BACKGROUND!!?! I had to clear a Felony check/ get bonded......, it essentially is as if I AM ADOPTING MY OWN MOM -- but I..., NOT THEY am now obliged to answering to the courts/ presenting detailed files/documentation regarding her care plan + all expenditures from her accounts & funds from her account can only be spent on HER needs..., so although she lives with me her monies can ONLY be spent on her needs. In the meantime NO CONSEQUENCES for the Uncle/Cousin who tried to exploit an elderly family member - no consequences for the attorney who assisted them with "their" P.O.A. AND NOW my issue is the same Uncle is making false accusations that I HAVE to prove to courts are not true BUT if I don't do this satisfactorily I just learned it could result in me not only losing Guardianship - but My Mother!!!! Proceed with great caution going the Guardianship route...., it places those truly looking out for a loved ones interest in the position of answering to courts - w/ NO court assistance/guidance with exactly what that entails & could result in courts removing the loved one you thought you were protecting from you & HANDING THEM OVER TO THOSE YOU WERE TRYING TO PROTECT THEM FROM!!! In retrospect.., I feel having had my Mom declared incompetent BEFORE this all happened would have protected her/us BEST because there would have been NO issue of which P.O.A. was valid, had she been declared incompetent in court BEFORE they got her signature on another POA.
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I live in Arkansas and in 2014 I had to move 30 miles away from my mom and it took my husband from 2006 to convince me to move only because I didn’t want to leave my mom. My sister and her husband moved in with my mom and all broke loose. They convinced her to put my brother in law’s name on our family deed and my sister is a banker so she put her name on mom’s account and my name was conveniently left off, then after mom was diagnosed with Alzheimer in 2014 my sister had mom to sign papers to pit husband on deed 2016 got mom to sign POA and in 2017 got mom to sign papers giving she and her husband complete guardianship without my presence and only because I had proof of them stealing over 30,000 from her account and even paid lawyer from my mom's account to pay for the guardianship I have tried to work with my sister because this is our mom and my sister is not doing right nor is her husband now grey have spent all of her savings and I had to hire a lawyer to suspend the guardianship... I hate we had to leave my home town because I'm very close to my mom and this with my sister had me in a deep depression
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