Participating in a Memory Study!
Today I applied for participation in a study.
Here's the portion that I will be working on:
"You are being asked to participate in a medical research study of different ways to do interviews and tests about memory, thinking, and daily activities."
Here's the larger study title:
Eli Lilly and Company: "A Study of Donanemab Verses Placebo in Participants at Risk for Cognitive and Functional Decline of Alzheimer's Disease".
Today, I had blood taken.
If I have the genetic marker that they are looking for, I will participate in some paper memory testing, and also some memory testing on a tablet at my house.
I may have the short question version of their testing, or the longer question version.
The company is trying to figure out if they will use paper and pencil testing, or computer/tablet based testing for their larger study.
That's the extent of my involvement. My part is not a test of any medication.
My daughter is my study partner. If I qualify, she will be asked questions about my memory function.
The blood testing will be back in 4 weeks.
I was paid $84 for my participation today, as was my daughter.
There will be the possibility of two more sessions for me. One more for my daughter - all depending on the outcome of the blood testing.
The session took about 90 minutes.
It was quite interesting, and we met some very nice women in the waiting area.
Most of the participants that I met today seemed to be racial minorities, which is great, in my mind, since they are historically under researched.
I found out about the study from Instagram, since I tend to click on posts that come from creators that focus on exercise in the over-60 crowd, dementia care partners, etc.
I called the number in the ad, and answered some telephone questions. That person made the appt. for today.
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I qualified for this study because my mother has Alzheimer's.
So far, no memory problems for me. That's what my dd is going to be attesting to during the study, if I have the genetic marker and am cleared to continue.
I’ll read the article. It helps to have people who have lived through these experiences like you to show us how complex medicine is.
https://www.mayoclinic.org/diseases-conditions/cancer/in-depth/monoclonal-antibody/art-20047808
The trouble with these drugs, for some people, is the brutal side effects they bring. Even with the Skyrizi mab used on me to try and calm down my immune system, I immediately developed tons of floaters in both eyes which are still present! While the 2 mab immunotherapies used together DID kill my cancer, the after effects have killed my quality of life. So it's always a trade off and I'd never take another mab again unless my life depended on it, as it did last Feb. Chuck was also told NOT to take any mab treatments (Or booster shots) for covid, btw, due to his liver transplant.
I have gone through cancer with my husband, (prostate) dad, (bladder) Uncles, (lung) MIL, (non Hodgkin’s lymphoma) brother, (colon) but I don’t know all of the terminology for everything.
This study is just answering questions. Not dealing with any health issues. 😀
Thanks for all the info on Mabs, never heard of it, really good info
Absolutely no Mabs for me, right now!
I’ve been on this board for enough time that they scare me to death!
Sometimes, I feel like I should run any personal medical decisions by you guys! I’ve learned so much from you all! 🩷
Source: https://www.cancerresearchuk.org/about-cancer/treatment/targeted-cancer-drugs/types/monoclonal-antibodies#:~:text=Monoclonal%20antibodies%20(MABs)%20are%20a,or%20stop%20it%20from%20growing.
Also an interesting source: https://en.wikipedia.org/wiki/Drug_nomenclature
CX, I think there could be a sad reason you saw racial minorities in the waiting room. Some folks will look for ways to make some money and medical research is one way they can get some income.
Can you please explain what mabs is? There’s so much to learn about these things.
Just don't let anyone talk you into trying a MAB product under ANY circumstances!!! It's over 1 year ago now that my 2 mab treatments totally ruined my quality of life.
Have fun with the study otherwise.
I believe in science and doing research. We all know that more research is needed to find answers and to hopefully find better ways to treat these issues.
Maybe one day there will be a cure for all forms of cognitive impairment.
When I joined 23andme to test my DNA, I signed up for the scientific research and I participate in the research regularly.