Hi all, new here as a poster, been a lurker for years. I have cared for my mom, although she has been in care homes, for 10 years. She has dementia and turns 95 next week. She has been without most of her faculties for about 2 years. The only thing that kept her going is the reflexive eating via spoon feeding. Two weeks ago she finally stopped accepting food.
While I love hospice and she is in a lovely care home I am just wondering how many of you grow tired of well meaning professionals who have no idea who you are or who your mom was. What has exhausted me more than anything is managing the cast of ‘helpers’. I won’t even start here with issue of feeding. My mother would have abhorred being spoon fed, but of course it is the mandate of care homes.
Anyway here I sit at her bedside, hour after hour. Waiting for a compassionate release for her. She has not eaten for 10 days and other than the dementia she has no other health problems. Not really asking a question just reaching to those of you with similar experience.
thanks for listening.