I realize that my title is harsh. I wanted to be pointed in speaking my feelings. If I sugar coat it, then the point is lost.
Mom goes thru frequent episodes of extreme exhaustion. This causes her to miss most every therapy session. She cannot even find the energy to hold up her head...forget work with speech or occupational therapy.
So, she is actually losing ground. Her speech is less coherent, her ability to sort out what is happening is getting worse
I am feeling more and more like this is just taking care of her body ... waiting for the end. I have held out the hope of a recovery back to some level of competence....I don't any more.
Does it always come to feel this way to caregivers? With the loved one "gone" ... just the care of the body remains. I cannot help but to wonder if this is the way this will be...for years.
How are others dealing with this? It doesn't feel right to me, yet it feels like the truth.
Mom had told me that she wants to drive off with me in an RV and see as much of the country as there is time left. I know that dream will not come true now. It's been 9 weeks of episodes of "crashes". There is nothing the doctors can do. I accept that now.