I believe I have done a terrible thing. In looking back at text messages to my brother, I noticed texting him in early April about seeing our GP and he suggested nursing home or hospice to me. My Mom did have a type of dementia, but could talk in sentences and knew who we were in just 1 month ago, folded clothes and ate better. Hospice came in soon after this and said to discontinue the exelon patch as doing her no good anymore. My sister was very hesitant to stop this, more afraid of behaviors I believe, but I have always believed as to hospice with patients I cared for and am POA of healthcare so did as they said. This dementia has escalated horribly in only 1 month. I realize this would come, but not in 1 month so much as speech makes no sense and knows none of us, is incontinent of urine at night now. I so wish I had not done this, I have read in even advanced dementia that the exelon patch helps. I'm sure going back and starting with start up dose and increasing as ordered would do no good at this point. Please beware if any of you are told to also do this, do not, I feel horrible guilt. I know there is nothing you can help me with just my observation. Hospice nurse to be here tomarrow and will discuss with her, I know they also have social workers, maybe that could help me. My Mom is also a nurse and such an advocate for all of us keeping my Dad going for years to different docs as knew his case was not as they saw it and had him sent to specialists which did help him with much heart disease. I am rambling late at night, but had to get this off my chest to someone. Thanks to all out there.