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I have officially started on my book "The Dangers of Hospitals and Nursing Homes. I got all my notes from the time I started taking notes back when all this was happening. I interviewed my brother, my sister, and from my memories I am pretty sure that I am going to have to so a lot of editing to put everything in the right order. When I get this book done I am going to put up my servers with roaming i.p. addresses and make it avelable for free for the first 90 days. I will post a link when I am done. I think that people should be armed with the information that I am about to give them. During our time having to deal with the hospital / Nursing Home this has taught me a few many things about how they operate. For example: The nursing homes hire the people that are the bottom of the barrel and they just show up, do their jobs, and collect a handsome paycheck every 2 week's. I mean, you can tell the ones that are generally there for a paycheck, and ones that truly care about the patient's / resident's; I can count 5 people at this nursing homes that where genuinely there for the patient's and not just the paycheck. here is one of the little tidbits that I am going to give you. If your loved one has to go in a nursing home for one reason or another you should look for one that is a non profit, because they will give the resident way better care than a for profit nursing home; all the for profit's do are take peoples "social security" give them not very good food, and are a lot more neglectful to the patient's than the ones that are non profit. and another one of my helpful tips is to watch out when they try to put your loved one on "nursing home medicaid" because they will take your original medicaid and your loved one "Social Security" Away and you will then become long term care and your loved one will be refereed to as incarcerated as one nursing home staff informed me of. If they are paying rent they will loose their place to live, and they only way they will be able to get out is to leave "AMA" "Against Medical Advice" or have a family member that they can stay with and re-establish their life. The nursing home will try to sway your against this because they want that "Social Security" because the longer you are in there the more they get paid from the state because of your rooming and board. I think they also get grant's because the medicaid will pick up half of your cost, and the grant will pick up the other half of your tab for being in their. So, like I said I will post a link to my book when it is done so it can be downloaded for free for 90 days because I want everybody that can to read it because it is going to be armed with some very helpful information before you make that decision to put your loved one in any kind of a nursing home situation.
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To GardenArtist: No I have 3 of my own server's that I can use as a web-host. They are all set up on roaming I.P. Addresses, just for safety.
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Trapwhisk, I assume you're also going to create your own website.  If not, any host would most likely require you to indemnity and hold it harmless for any repercussions, plus a wide variety of potential and not necessarily potential negative reactions and events that could arise from anyone, but especially the "disguised" entities you will be addressing as subpar, or similar characteristics.

Read the shrink-wrap agreements you have to sign to use your e-mail as well as other sites.   Indemnifications used to be specific to site and use, but I've seen some that are so broad they're ridiculous.  Some web hosts are bending over backward to create opportunities to excuse themselves of liability.
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To Midkid58 I do know it's been almost 4 years. I made a promise to my mom that I would write this book and I paln to keep that promise. It's not a vendetta. I just want to get the word out about how some of these places are. I want to draw awareness to the horrers that some people may have to face if they make a mistake in putting their loved one in a facility that is very cruel to patient's.
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To Midkid58
I plan to self publish, it is going to be an e-book, I will hire someone to proof read it on a site that I can hire someone for that. I will sell it on all sites where you can sell an e-book for $1.95 just so people will buy it. I may even sell it for $1.00. I want as many people to know the honorer that we went through. Maybe, just maybe, it will make people think. And maybe it will make them investigate before they put their loved one into one of these places. And think Hmm! Maybe hiring someone outside the home like a "PCA" to take care of their loved one will be better care for them and a better choice.
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My heart does truly ache for you, as you obviously have not gotten over your mom's death.

As much as she 'may' have wanted you to pursue some kind of vendetta--it's going to eat you up, emotionally.

Glioblastoma is what took your mother's life. Period. EVERY SINGLE PERSON who has gone through the medical system has had bad and good experiences. That's just life. Being this angry for, what. 4+ years can not be healthy for you.

And as far as 'cloaking' people's identities by misspellings or changing location, etc is not going to fool anyone.

Frankly, unless you self publish this 'book'. I cannot imagine a publisher taking it on. Not to be rude, and I apologize if it comes across this way--but your style of writing comes across very mish-mash. I have a really hard time following your train of thought, punctuation and many misspelled words.

Again--you could easily be sued for slander and libel and fees and 'cease and desist' orders could derail you completely, and that will just add to your anger.

Life is too short to carry the heavy burden of hatred and desire for revenge, please let this go and get back into therapy.

If therapy had truly 'healed you'. You would no longer be carrying this huge burden of anger.
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Trapwhisk, you posted on all this back in December, 2017.

December 2017 almost 4 years ago. It was so so long ago, it was back when JeanneGibbs was still active on this site. ((Miss her!))) Rovana, Garden, Vegas, MidKid, Barb, Freqflyer, even Stacey, did wonderful thoughtful detailed lengthy posts to you in 2017-2018.

whatever issues you had unresolved from your mothers death from Glioblastoma (5% survival rate) back in 2017 have only gotten more intense. For the sake of yourself & your family, get back into therapy.

Also you mention “Genesis”.
If it was a Genesis NH that your mom was in, they no longer exist. Genesis (Welltower) had 500+ facilities. They sold off units to regional private equity groups and have totally delisted. Imo it wasn’t done because care was subpar at Genesis but done because there’s more $ to be made spinning off buildings under regional REiTS. It’s the industry trend. If your mom was at a Genesis facility, if you had done proper research, you would know this. It’s one of the reasons why any solid law firm, isn’t interested in representing you as she died over 3 years ago in a facility whose corporate parent no longer exists.

Find a new therapist & get the solace you need to lead a better life.
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To OuterBanks74 We did discuss that with my mom, she did not want to be moved that was when she was not unconscious she could speak for herself at that time. She had known all the people there that where the physical therapist there and some nurses aids that where nice to her and her, me my brother and sister. She decided that she did not want to be moved so she was not moved. In my book I am going to mention this about some of the people that where nice to her, but about all of the bad ones also. And they also had a couple of good administrator's while she was there. The first time when we knew nothing about the Gleioblastoma she had had a surgery on her knee and had to be in there for physical therapy it was great and they where helpful the when Genesis took it over it went to the dogs. Even 1 administrator tried limiting our time over there so we 1 was allowed to go visit her per day then we ended up splitting that into 1 would go in the morning, one in the afternoon and one in the evening so we could all be there every day to be with her but! when she got bad all bets where off we where all back over there all the time because things went down hill. At first we where all over there all the time and they called a meeting and limited our time, that is when it was discussed about moving her and we told her and she really got upset because I had checked into all the other Nursing homes and assisted living places but my mom got upset, and she made the call not to be moved. Th NH staff didn't like it because we where over there all the time and we then became enemy number one.
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If the nursing home was that bad, why didn’t you move her to another facility. Both of my parents are in nursing homes. If they were not getting the care they needed I would move them. Same with hospitals. I agree with Vegas lady and MJ, you need some more therapy. The brain tumor killed your mother - nothing else.

Nursing homes and hospitals are not all bad places. You may have had a bad experience. But that’s not the general rule.
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to: vegaslady. Got all the therapy that I need, I need to let all the people out there what kind of treatment their loved ones will revive if they make the big, big, mistake of putting them into a nursing home, in our case we had no choice because my mother had "Temporary Paralysis" from the surgery Brain Surgery she had. She had a stroke when getting her surgery. She went into this horrible place to receive physical therapy, and it turned out so much different.
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To MargaretMcKen. I asked my Mom if she wanted me to write this book and she said yes. I will be careful not to mention any names, or give locations. I will give the names of the places but mispelled names. I have thought about all this and there are ways that you can get around any legal ramifications. 1. Not mentioning names, misspelling name but making them close enough that people get an idea of who you are talking about. It is not illegal to use locations. At one point in my life I also when to a lot of law classes while attending collage. So I know many of the ins and outs, enough to avoid any legal ramifications. I appricate all the peoples advice on this forum thank you to all of you.
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I learned of ombudsman long after I left moms rehab. Though I did -2 years later write a review (sadly it took me that long to write it and I felt bad it took me that long).

The first time we took an ambulance from my home I told the EMTs how we ended up at home and they knew all too well of the SNF/rehab/nursing home I took mom out of (she was there for stroke rehab) - they too have reported it as he said “they are called there weekly and usually by people visiting who find the people in need - not by staff” and they report it ombudsman a lot. It does happen - I am in Palm Beach County Florida - we have a very large elder population. It was saddening what I saw.
Many times the neglect and mishaps are from these places needing more staff to patient ratio. Overworked - burned out and not enough support to care for that many patients.
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My father also had a brain tumor that killed him. Not the ALF or the hospital or the caregivers or hospice or anybody else: The Tumor killed him. I wanted to blame somebody for his death, too, but in reality, I couldn't. So I blamed the culprit, which was the brain tumor. That's what killed him.

My condolences over the loss of your mom.
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Please continue with your therapy. You've listed so many things that your have completely wrong and/or cannot possibly prove that you're just going to kill yourself by letting this eat at you for the rest of your life.

Your mother died of a cancer than has a 5% survival rate after five years. It is, in essence, unsurvivable, and eventually you will die of it. That's the biggest thing you need to absorb right now, and then the therapy will help get you back on track to stop obsessing about something you cannot fix or change.

Use your writing as a journal, not as something you plan to publish, because as others have said, you risk serious legal repercussions. The attorneys you contacted should have flat-out said you do not have a case, because as was mentioned above, they take these cases on contingency, not with up-front fees. Know, too, that even if you did get an attorney to take a case, you are responsible for all the expenses of that case, including filing fees, depositions, expert witnesses, copies, and just about anything else they decide to throw at this. In short, you'll be out tens of thousands of dollars, and you will likely win nothing. You'll also have to pay the attorney's fees for the other side.
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I'm so sorry for your loss. I feel your pain, since going through something similar with my dear mom. As hard as it is, some of the other posters are right, It's best to let this go and remember mom for who she was.

You may not know, but many hospitals and NHs have each other's back, in fact many NH doctors also are on staff at the hospital as well. They will always stick up for each other to protect their best interests (this from hospital system ranked 2nd best in the US)

I felt like you when mom died, but realized that she was in a better place reunited with her dear brother and dad, and not have to deal with so many lousy people anymore; that bought peace as well as ironically 2 of the places she was at closed down for good within months of each other.

Blessings to You
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Writing this book, finding a publisher, and then making sure it sells, are all going to distress you for months or years. Would your mother want that? Would she want you to risk legal action that would ruin you financially, as well as ruining your mental health and your ability to move through grief?

Pray for your mother. God made the decision about her death. Do what she would want you to do.
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I’m so sorry for your loss 🙏🏼Can you prove the claims of negligence that killed your mother? Hugs 🤗
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MidKid offers some good insights, including the issue on which I should have elaborated.    Not only could criticized entities sue you for libel, they can file for injunctive relief to stop production of your book.  They might also sue for confiscation of any funds you might reap from its production.   You'd be left a pauper if they go for the financial jugular.

To both you and MomHeal, it's really sad to read of all abuses, but you do have recourse through Ombusdmen/women, and they're in a position to address the issues on a broader level, w/o subjecting themselves to libel.  

Or, you could search online for monitoring and oversight groups (professionally managed), work with them, and identify specific remedies for specific issues.

I will grant that the pandemic may have contributed to negligent care since families couldn't visit as often.  That's no excuse for the facilities though, but it could also offer a defense for them, as well as the fact that their own staffs were compromised, and it was challenging to find people to work given the potential of becoming infected.

There definitely is room for improvement.  I saw that during our first experience with a rehab center.   But we took action and called for a meeting to discuss further care, whether it was in that rehab center or elsewhere.  And we got results.
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Perhaps more time in therapy would be helpful to you.
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I am So sorry for the loss of your mom and for what you as a family endured during her care.

I will offer full support of your book and gladly add to it. I will tell you - I learned a lot from the CNA’s that helped care for my mom and a few other amazing individuals but I mostly saw horrific care not only for my mom but by gosh all the people around her “who had nobody as their voice” - I felt sick for the people who did not have loved ones to watch over them. I saw and heard negligence - I often felt like I was witnessing stuff in a third world country. I’m ashamed of the care provided in my country. You can guarantee that somewhere right now someone or an elder is suffering neglect in a NH or SNF or even a well known hospital.

I am sure some of what you feel is grief but I believe you on witnessing neglectful care. I was with my mom most all times and she still had bruised eggs on her head from someone clearly trying to change her in the middle of the night alone and smashing her head into the railing (because she was dead weight in the beginning after her stroke and a 2 person assist) I also witnessed her fully aspirated with peg tube food all inside her oxygen mask because I had to be the one to tell them “step one turn the feeding tube off before lying her flat to wash her up” (I learned this in ICU but clearly it was never taught to anyone after that). I had to write it and tape it all over the bed rails - hanging behind the bed etc so before they would press the button to lay flat they would see my sign and this was from hospital to acute care to rehab SNF - 95% of the time I had to say “shut of the food so she doesn’t aspirate”.
If your loved ones level of care is higher then they should never be left alone. The medications given without reading “allergies” - or wrong meds given out - my heart really feels your pain - as I don’t doubt for one minute what you went through.

I do want you to know that your mother knew you watched over her - she knew you did everything you could and she without a doubt is at peace now and so proud of you and probably wouldn’t want you to pursue law suits etc. she truly would want you to live and have a good life.
If you are doing something to help find better ways to protect ill or elders and it becomes a passion that you feel you can help someone else or another family or be a change in this horrible system then I fully support you. Just let it come from something good - let it be when you are fully ready and have healed from your grief - do it when you can put your heart in it and feel goodness from it. Don’t let it steal anymore from you - when the time is right - it will feel as if you have a new journey to help others and that’s when you pick up the pen and start writing your heart out 💕.
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What exactly did the NH do that caused your mother to die before the cancer she had would.

An attorney would take the case without a fee if they felt there was a strong case. Their payment would generally be 40% of what a recovery would render.

Your mother had a very serious form of cancer. I understand you are grief stricken but from all you describe I don't know that a lawsuit would be a productive time of costs and time for the parties involved. I hope time brings you some peace and an outlet for you to heal that you yourself create which should make you proud and perhaps consider it as a tribute to the memory of your mother.
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GA hit the nail on the head.

You experienced a sad thing in the loss of your mom. Glioblastoma is a horrible, painful cancer that can take a life in weeks, if not months. There are not many 'happy endings' to that particular cancer.

You are obviously still deeply grieving--as you say you see people when you go to therapy that you'd like to see people 'dead'--that's not terribly forgiving and comes across very hostile, still. You will not get far with your book/legal case if you come across like that.

However--

If you want to write, so you can feel some sense of catharsis, that's up to you. I imagine you will have a hard time selling something of this nature. Slander and Libel and 2 attorney favorites and you kind of hit on both.

I agree, some NH's are nightmares. Nobody would deny that. Did your mom receive the best care possible? We'll never know. But--she would have died of the cancer no matter what you did.

Attorneys will charge a fortune, trust me. My son is one and sometimes I am absolutely appalled at the fees he charges. But he is a great attorney and will tell a client if he will represent them and how much it will cost--upfront. $5K is just for the initial consult and discovery. You could easily be charged $50K if this goes any farther, and the hospital/ NH has attorneys, too. Likely, much more.

Personally, I would spend more time in therapy and less in trying to place blame. I'm sorry for your loss--but I bet your mother would want you to come to terms with this and move on.
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Trapwhisk, a word of warning.    I don't dispute your right to be grieving for your mother, and understand that you believe that a nursing home was negligent in treating here.

However, you make some very serious accusations; you better make sure you document (and document, and document to the nth degree) what you write in your book, as you could be facing your own countersuit for libel.

I'm serious, very serious.    If you do find a publisher, I'm sure libelous action will be explained to you.   You may end up publishing the book entirely on your own, out of your funds.  

The fact that no attorney would be involved in a negligence suit is a very good warning to you to be cautious.    The $5K retainer fee is most likely done to discourage you.  Other than notoriously publicity seeking attorneys, I doubt any medmal attorney would take this case.  Sorry, but that's just my opinion from having worked for medmal firms years ago.
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Not ALL nursing homes are the evil places you portray. My dad is in a nursing home in Kentucky. My mom is in a nursing home in NC. Both provide excellent care. My mom’s health has improved somewhat with better nutrition and socialization.
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I lost my brother to glioblastoma, a strong young man of only 43 with a young family - it is truly a terrible cancer. I'm glad the counselling helped you work through your grief.
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trapwhisk - I am so glad you decided to turn your grief into a positive motivation. Write that book.
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