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My mom is in the later stage of dementia she is up 36 hours straight at times and talks to people I can't see. She doesn't know that I am their she is on hospice now she has had many bladder infections that have the same symptom I have asked hospice to do a test on her but they say its just dementia and refuse. Has anyone gone through this and is it normal? She just talks and yells. To people that have past she's in her own world talking to them and has no idea of whats going on around her it's very sad I would not want anything to happen and feel I could have done more if they did the test and it was negative then I know that their was nothing I could have done God bless.

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Do either of you have Medical POA?????? If so, I would think, I honestly don't know, that you would be able to take your loved one to the ER. Or, the squeaky wheel gets the grease, as they say. Be their advocate and be determined to have your concerns validated. Even the medical community is not infallible. Blessings
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If she is on hospice, the visiting nurse should be keeping her "comfortable." My Mother is on hospice, advanced dementia, and she is kept calm and quiet. I would question the social worker and make some noise. It seems the way to get results is to complain. They are getting paid for the extra service and your Mother should be receiving it!
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Shar, Hallucinations are very common with dementia patients. I take care of my mom at home and she also has Parkinsons. The medication for that will also cause this problem. If you think she has a UTI, make sure you talk to the doctor on staff. they will need to cath your mom to get a specimen. This is necessary due to bacteria always being present in patients who are incontinent. It's the onlt way to get a clean catch. If it is the problem, they need to get her on antibiotics right away. A UTI untreated in an already frail elderly is very serious. If it's not a UTI, then the only thing you can do to calm her down, is to go along with what she says and change the subject when you can. Telling her no one is there just doesn't work. She needs reassurance that everything is okay and you are there. Use your voice of authority when speaking to the staff, but also use respect, it will get you a lot further than useless noise. Good luck!
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Just had this kind of week myself. My mama complained of pain, and nurses just kind of dismiss it. Answer is always give tylenol, give ativan, a patch for nausea...my mama's entire family saw drastric changes in her a few days ago, from one day to the next, we even called her family to say good bye...nurse came ad didn't really see any change.....I ask about taking to er at hosital to check fr infections, or broken ribs and their advise was probably nothing could be done any way...just make her comfortable....makes you feel like your allowing suffering when comfort could be found. They really push DNR papers, then use that not to treat any thing
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The problem with my mom is she's in her own world she does not see us or her us she only sees and hears the people she is talking to she also. Goes 36 hours at a time with no sleep and then finally when her brain is so tired its shuts Dow she sleeps when she wakes up she's back very pleasant and understands us for a few days then its starts again
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FYI my use of the word "noise" was figurative. I'm sure most people understand.
Noise, as in conventional remarks or other sounds that suggest some emotion or quality. Not as in random sound fluctuations! LOL!
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