My mom was diagnosed with ALS yesterday. Has anyone else dealt with this along with dementia?
After 6 months of several doctors, neurologists, rheumatoligists, etc mom was finally diagnosed yesterday. ALS. A very scary and sad thing to hear. It's too bad it took so long to find an answer as she has lost most of her muscle control and can scarcely communicate. I know there are devices and supportive equipment to help people with this but it's hard to convince her of the need as her underlying dementia makes it difficult to know if she really understands what's going on. Maybe that will be a blessing in the end if her mind is not totally clear. The doc said prognosis looks like maybe only 2-3 months. I'm scared to think of the end and what it entails for her. I love her so much it's so hard to think of my life without her.