Hi! I posted another topic recently explaining that I'm engaged to a man that is the caregiver for his mother. To make a long story short, I have no idea how much longer our situation could stay as it is, and I haven't gotten any idea from doctors how things could decline with her diseases or how much time she has left. I have suggested Hospice to my fiance (the situation is very hard for him, as many of you know from experience), but she doesn't have the diagnosis of "6 months to live" that Hospice seems to require in their state...and he won't ask for it because she is not prepared for that (she is very afraid to die).
I feel selfish to think of life being better once she passes, but I do wonder about it all the time. our lives are on hold right now. I can't find much info. online so I thought those of you with experience with CHF might be able to give me an idea.
His mom is 78 and was a smoker. She has Congestive Heart Failure that was diagnosed 2 years ago. She also has scarring of the lungs. She is on oxygen 24/7 and spends her days sitting in a chair watching tv. Once or twice a week he takes her out. She can walk but getting across a room is taxing and can lead to shortness of breath. She is on a ton of meds (I don't even know what) and recently he is worried because she chooses to get up less (walking to the kitchen is taxing enough to ask him now to get her drink or food for her rather than getting up).
I have read people can live decades with CHF , and I've read elderly patients usually die within 5 years of diagnosis. Has anyone experienced this disease and seen the decline? Can it get really, really bad or do the organs usually just give out? I am so afraid she will just decline to a state of not being able to do anything for herself and he refuses to put her in any type of facility.
Hearing others' experiences would really give me some insight to the progression of CHF...right now I have no idea what to expect. Thanks for giving me a place to ask questions I feel embarassed to ask anywhere else.