I have been caring for mom for 10 years. She is at the end stage of dementia/alzheimers. Hospice has begun, should I honor her wishes?
Mom does not want to be bathed, have her position changed, diapers changed, refuses food, only takes water for the past week. She wants it to be very quiet and the room to be dark. I want to honor her wishes and have to work myself up to go into her room to clean her because I feel so guilty. She does not complain of any pain or discomfort. I check on her frequently, have a baby monitor incase she calls for help or is in distress. I am used to bathing, changing, providing dental hygiene, caring for her hair, etc. I have to sit on my hands to keep from doing the things that I believe should be done to keep her clean and comfortable, yet what seems to be comfortable for her is to not disturb her. Hospice will be more available to us after the holidays end.....just two more days....Am I a terrible daughter? Is it right to honor her wishes? Does she know what's best for her right now???? I love her so much!