Why isn't AARP working on helping family caregivers?
AARP supposedly represents the interests of seniors. Where are they in lobbying for legislation that would allow loved ones to compensate their family caregivers? The restrictions Medicaid places on family caregiving compensation are shameful.
Why must one have a signed contract in order to pay a family member to care for them? If they are living in someone else's home, why is the loved one not allowed to pay their share of utilities, mortgage payment, taxes, food, etc,? At the very LEAST this should be a no-brainer.
Why is a caregiver not entitled to a minimum payment of some kind for 24-hour care of a "certified can't live alone loved one?" This represents a huge gift to corporate-owned nursing homes.
Medicaid says that family care is considered a gift. The only way a family caregiver can be paid is if there's a contract between the loved one and the care giver that follows very specific rules . . . AND the caregiver must keep a daily log of all the things they're doing for the individual. Of course, the amount paid must be considered reasonable for the area.
Why not a set amount that'e exempt from these draconian rules? If there's a daughter and husband living in their own home and they take his mom in instead of sending her to a nursing home, why should they not be allowed one-third of the household expenses plus a fee for caregiving? Maybe maxed out at, say, $1,000 a month. (Plus those 1/3 expenses) All, of course, subject to the loved one being able to afford same.
I just wonder why caregivers don't rise up and lobby AARP and congress to make these changes. It only seems fair. And, often, a loved one would be able to live where they want to live while not overly burdening the family who loves them enough to take them in.