Post nursing home day 10. Feelings.

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Today I feel: Angry, Sad, Grouchy, Glad, Happy, Joyful, Loving, Miserable, Torn, Alone, Loved, Tired, Alive......

Everyday a little more of the stress comes off my shoulders and I relax a little.

Everyday I am grateful that I made it through the last year and half and that while my husband and my kids are a little worn out, my family is in tact.

Everyday for the past 10 days I've found my consideration is getting better and I'm not forgetting as many things.

Everyday I have these amazing realizations and amazing moments...and everyday I have down moments.

I really do not feel any guilt at all...but I am sad by the situation.

I went by the home on Saturday with my 4 year old to drop off some things...it didn't last more then 5 minutes because she was demanding I take her home and started being so nasty to me...so I had to walk out.

Tonight the nurse called and said that she thought it might help if I talked to mom...I told her I didn't think so because she is pretty mad right now...and that lasted 3 minutes.

I understand it and even to some extent expect it...no different then when she was here really.

Still it's hard to deal with and I honestly don't know that it will ever go away with her...at least until she forgets who I am...if she forgets who I am.

Is it wrong of me to hope she does? To hope that maybe at some point she will just be a little old lady that doesn't remember anything?

My kids are coming out of themselves and spending so much more time down stairs with us and talking to us and wanting to be here with us now....I had no idea what Mom had really done to them.

So we are on a healing path.

Anyhow...I'm just rambling, but I suspect there a lot of people that understand it here. :)

14 Comments

I am so glad you are on the healing path! Best of wishes to you and your family.
So glad for you and especially for your children. Your mom will adjust.
(((((hugs)))))) Shannon. I understand. I saw my mother last week, after having not seen her for months, and at first she did not know who I was. It was OK. I am sad too - about any things - mostly for her, and the "box" she and the illnesses have put her in.

No, it is not wrong for you to hope...
I'm finding that I'm getting annoyed with my Brother and his "understanding" Also it comes off as if he thinks that it's all over and I'm having issues letting go or her.

It is like...brother...it's not like it's over...I'm on the phone with the Nursing home every other day because they are changing meds, or want to know this or that, also there are still things like buying cloths, making sure she has everything she needs...etc etc etc.

Not to mention that apparently Medicaid does not have her down for drug coverage still so I have to pay for that...although they are taking her off of them now...still I find I'm annoyed by this.

I realize for him it's over..he never called her anyhow nor has he come down to visit, but I still have to go by and take care of things, check in on her even if she's mad...etc etc etc.

Sigh...sorry for complaining...just having some emotional issues I think...LOL...which of course makes sense...but argh...I think I'm just being too sensitive.

emjo...I love your expression "I am sad too - about many things - mostly for her, and the "box" she and the illnesses have put her in"

So true...I am sad in the same way...it is such a shame that mom's personality is such that she is miserable no matter what...and it is like an every shrinking box, but in many ways I do see it as self inflicted. While the disease itself may or may not be (in her case we actually think it is because of how she used to work 20 hr days, eat junk food or non at all during the work day and that she was around many different chemicals etc.) .

Still ... I do view it as her life...and the way she lived life...constantly running, constantly looking for that adrenaline high, constantly judging seems to have stuck with her and I'm sure that is why she is so manically needing to escape and go go go.

I really hope no one ever gets this disease...it really is horrible regardless...but I know it's on the rise, still can't help feeling it has something to do with our life style and the food we eat though in many cases.

There are other diseases that cause it, and there are hereditary factors for many too...just think we need to look at other environmental factors as well and look to change them.

I'm so glad you all are here and this is a place to just let it out...talk randomly sometimes and also to help others....so nice!!
Shannon, your post is so poetic, so evocative of the range of positive and negative emotions experienced by caregivers.

I do believe that environmental factors are factors in dementia; there are just too many chemicals around us and in the food we eat and despite alleged testing, we really don't know the long term effects of some of them.

I think the problem is the power that agribusiness has. I recently read an article on a gardening forum that addressed someone in a public position who said organic gardeners are dummies.

Our society has taken such a turn toward reliance on so many chemicals that now permeate our atmosphere.

On the other hand, people are living to be older and experiencing illnesses that our grandparents and great grandparents probably never even had.
Shannon, if it helps any, my mom has been in a nh fot almost a year and I'm constantly annoyed, involved, on the phone, waiting for a callback, participating in care conferences..... the list is endless. Worried about is it the right time to call her. Worried I'm calling the nurses too often, because mom tells staff that everything is finr but then tells my sil, who visits the most, alll of the problems she has. Many of which are imagined. She's not getting a particular mefication anymore, someone said she needs hearing aids, there was a big flood, the place has been sold so staff is going on strike. My adult children tell me that I'm calmer now that she's settled (last summer she had a stroke, in acute rehab, subacute, al,and memory care all within 6 weeks. I was twitching the whole time). It's less stressful, but not a picnic. Hugs to you, it'll get easier. Post back! You're a joy to have here.
I hope that everyone reads these posts that are considering bringing one or both of their parents to live with them. Or, even worse, that they are moving in with the parent.

Even with parents that comply with AL and NH, there is still a lot to do, especially with Medicare, Insurance and cleaning out the house.
I took mom to rehab today from the hospital. Of course it is located in part of a nursing home. It's exactly the place she asked for, attached to a hospital where she once volunteered. BUT she got upset when we got there. "This is a NURSING HOME" she said. Staff assured her it was the rehab floor. The rooms are semi-private and large and sunny. "I don't like it at all!!" she said. I reminded her that this is the place she picked. She threw her purse against the wall and started yelling, which scared the heck out of her roommate. Then she demanded her walker, which she can't have yet. I told her no. More yelling "I only have this little corner !!!" I apologized to the head nurse, who affirmed mom has to stay in bed for now. "She is non-compliant" I explained. The nurse obviously already put in a hard week and a hard day. I did not stay to see them lock horns, I got the heck out of there.
Shannon, if it's any consolation, my mother, who has been in a NH for 18 months, has only just stopped being demanding, mean and nasty only because her parkinsons/dementia/strokes have reduced her to a shell.

Yes, I totally agree that the cause of so many illnesses is the chemicals in and on our food. I live out in the country now on close to 2 acres and the surrounding fields - one year corn, one year soy beans - are sprayed with lord knows what, as they are everywhere. Around the perimeter of the property there's a 1' strip of dead orange grass from the spray.

Starting to grow my own in raised beds as far away from the perimeter as possible and hope to keep chickens come spring so at least I know what we're eating. We have to buy some stuff from the store but the more I read and research the pickier I'm getting.
GardenArtist: "Shannon, your post is so poetic, so evocative of the range of positive and negative emotions experienced by caregivers."

It's funny...I've never been one for poetic expression, but lately it's been more and more like that.

I think I finally understand Poetry...it's an expression of feelings and concepts that are hard to explain and for some reason it comes out better in poetry or poetic verse than in any other form. :) Thanks!!

ba8: Yes it all helps!! All of our experiences are unique to themselves and we all act and react differently, but it is so nice to know that this too shall pass. Thank you.

pam: I have laughed a little every time I read the last line of your post "I did not stay to see them lock horns, I got the heck out of there."

LOL...really I get that and can imagine I'll be doing it a lot more then I like to. I think that in my case for sure that I trigger my mom and she triggers me...so it can get pretty intense pretty quickly. Thanks for the post...and while I know non of this is fun...sometimes we just need to step back and laugh about it...non of this is normal behavior for a normally functioning person, and it's intense...but when I look at some of it I do laugh.

Ashlynne: Yes it is!! Thanks for sharing...it is always good to know and realize these things are often normal for the situation. :).

On the subject of our food. I would highly recommend that we all stop eating wheat, soy and corn products that are not organic...and I know that it's really difficult because these three items are in so many or our foods!

These three products are by enlarge GMO's on the mass market and have been for many years, which for me explains so much.

The health issues we have been seeing on the rise, such as the dementia's that are not related to other diseases and or genetic disposition, diabetes Type 2, obesity and fibra mialgia (I totally spelled that wrong!!) and Autistic spectrum disorders to name a few.

So often I read that when people get off of these items, they loose weight and these diseases are eliminated completely or are tamed down significantly.

One book that address's this concerning the Dementia's and such is Wheat Belly by Dr William Davis. I have not read it yet, but I've read a couple of other books and diet systems that do address much of this...still my understanding is that Dr Davis really puts it all together in one book.

I know for a fact that when I stop eating grains, wheat in particular and corn, I loose the weight, my asthma becomes non existent, my joints and muscles don't cause me pain, I have energy and my sugars become normal...I don't have to take any meds for any of them.

The trick of course is to do it.

Doing clean's to get rid of the toxic levels of chemicals and heavy metals in our body help too....also of course if you can grow your own food that is even better, but you have to be so careful not to use the GMO seeds.

I'm so upset with the food industry and what they are doing to us, and while we might live longer...quality of life isn't always great with these diseases present and I believe by in large preventable.

Anyhow...that's my complaint for the moment...:) Thanks All.

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