Over one year as caregiver already.
Hi everyone, it's been a while since I last posted here...busy busy busy! Almost thirteen months since Mom came home to stay, seems hard to believe! On the upside, Mom's doing pretty well. Health is good overall, a few very minor issues here and there but not anything unmanageable. She's in good spirits, the dementia hasn't improved but it really hasn't gotten any worse either. In all honestly I think being home has helped and frankly I don't see what the typical nursing home would be doing that I can't do myself and, in many cases, better right here. She has her anti-coagulant monitoring 2x a month and sees a doctor (home visit) monthly and so far so good. On the downside, as I'm sure many of you are well-aware, it's a grind. Personal care, shopping, laundry, housework and of course bills bills bills. I have a friend who covers for me whenever I need to leave for any length of time but for the most part it's all me. Help from family has been negligible, Mom's grandaughters simply don't seem interested in visiting very often much less actually helping out. I'm planning on possibly hiring someone in a month or two when expenses allow, just to get away for a few days and relax. But it's expensive, so until there's an opportunity to get ahead a little I'll have to make due. Mom can be left alone for a few hours at a time depending on the time of day and her meds, but certainly not overnight or anything like that. Still, all in all it's not quite as limiting as I expected it'd be and as time has gone along she's developed a pretty reliable routine. Of course there are those "bad days" here and there, particularly when she's not able to sleep properly and those days can be a strain, as the complaints and bursts of irrationality increase exponentially with lack of rest. In any event we're hanging in there and after all this time I definitely feel a sense of pride in having met these issues to the best of my abilities, while I wish it was easier at times (and also that her grandkids would help out a bit) it's gone pretty well IMO. Hope everyone else is well, best wishes always!