So the Hospice Evaluation Nurse was out today. She was here for four hours. As per everyone's commentary, she was wonderful. After talking with mom for a half hour (by herself, I left them alone), she visited with Cousin Sue and I. Yes, she's a candidate. And yes, I enrolled her. They've discontinued the one heart med she was taking, and all she's on is Senna-S (2X/day).
Mom's doctor joined her here, and we had a good, informative visit. Not so much as "things to come" as the assurance that things were fluid and no certainty what lies ahead except that mom would be comfortable.
After she'd talked to mom, who I introduced to mom as "your visiting nurse," I told the nurse I'd prefer not mentioning "hospice" to her -- a silent promise I made to her years ago when she said she'd NEVER want to know when she was dying. They will honor that promise as best they can, still being honest. All I can ask for. If mom asks, she deserves the truth. (She won't.)
She was "chanting/singing" while they were here. Both thought this was unexpressed anxiety and a function of her dementia . . . meaning she'll be doing straaaange things as time goes on. That I believe.
Some of you may have read that she got a cut on her leg late last week. It ended up an ER visit (though didn't start that way) with, probably, ten steri-strips pulling the skin together. They disappeared. IOW, the only thing that could have happened to them (about five days into the bandage) is that she ate them. They were removed and nowhere to be found, OMG.
It's been 2-1/2 hours since hospice left (started this post much earlier in the day...just finishing up). The new supplier's oxygen has already arrived -- an oxygen generator and two spare tanks for power outages.
Now, it's 7:45 in Chicago. The drug company just delivered some meds (the only one she'll be taking now is Lorazapam which I'll give her in the middle of the night if she wakes up and starts chanting.
I am soooo glad I called Hospice. And thank you sincerely to all of you who encouraged me to do so. It was so right. I feel as if a huge burden has been lifted. And, thanks to their bedside manner with ME, I know I made the right decision at the right time.
Sincerely. I am so glad I found this site. Bless ya'll. I'll always try to pay it forward.