Mom's Hospice evaluation.

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So the Hospice Evaluation Nurse was out today. She was here for four hours. As per everyone's commentary, she was wonderful. After talking with mom for a half hour (by herself, I left them alone), she visited with Cousin Sue and I. Yes, she's a candidate. And yes, I enrolled her. They've discontinued the one heart med she was taking, and all she's on is Senna-S (2X/day).

Mom's doctor joined her here, and we had a good, informative visit. Not so much as "things to come" as the assurance that things were fluid and no certainty what lies ahead except that mom would be comfortable.

After she'd talked to mom, who I introduced to mom as "your visiting nurse," I told the nurse I'd prefer not mentioning "hospice" to her -- a silent promise I made to her years ago when she said she'd NEVER want to know when she was dying. They will honor that promise as best they can, still being honest. All I can ask for. If mom asks, she deserves the truth. (She won't.)

She was "chanting/singing" while they were here. Both thought this was unexpressed anxiety and a function of her dementia . . . meaning she'll be doing straaaange things as time goes on. That I believe.

Some of you may have read that she got a cut on her leg late last week. It ended up an ER visit (though didn't start that way) with, probably, ten steri-strips pulling the skin together. They disappeared. IOW, the only thing that could have happened to them (about five days into the bandage) is that she ate them. They were removed and nowhere to be found, OMG.

It's been 2-1/2 hours since hospice left (started this post much earlier in the day...just finishing up). The new supplier's oxygen has already arrived -- an oxygen generator and two spare tanks for power outages.

Now, it's 7:45 in Chicago. The drug company just delivered some meds (the only one she'll be taking now is Lorazapam which I'll give her in the middle of the night if she wakes up and starts chanting.

I am soooo glad I called Hospice. And thank you sincerely to all of you who encouraged me to do so. It was so right. I feel as if a huge burden has been lifted. And, thanks to their bedside manner with ME, I know I made the right decision at the right time.

Sincerely. I am so glad I found this site. Bless ya'll. I'll always try to pay it forward.


Even though I'm a Smarty Pants at times. ;)
I can feel that you feel like a weight has been lifted from your shoulders. I'm so happy for you and your mom. Sounds like you've got some great help moving forward.

You may still find the Steri-Strips. My mom can hide things now in some pretty odd places. I think I know everywhere to look and then I'll find something else tucked away in a totally new spot. :)
Maggie, thank you for the update. What a good decision on your part.
Glad to hear it went so well!
thanks Maggie.... I know when the pharmacist dropped off all those powerful drugs withing hours of the hospice visit, it freaked me out. I was like, what? I supposed to just drug him?? That was before I was active on this website... thankfully he passed 2 days after their visit ( not without me calling them 20 times within those 2 days)!!

It's scary, it's heartbreaking and also, the right thing to do :) (((hugs)))

Oh... we love ya smarty pants!... and thankful you share so much here, least for me, it has helped a lot!

now... how can I get my mother to sit and relax between 5:00 p.m. and 10:00p.m?? Lately she bounces ( Yes UTI) but still.... whew
Thank you very much Jeanette -- and all! -- for your kind words, encouragement, and all the knowledge you've all imparted to ME during my short time here. I'm more grateful than you'll all ever know.

I thought I was going to have to wait for my cremation to have a hot, smokin' body, but with the last year of caregiving? I'm gettin' close(er). Up-down-up-down-up-down . . . I sure know exactly what you mean.

Thanks for sharing the information MaggieMarshall. I was curious as to what your mom's diagnosis was. Does she have cancer, advanced dementia or something else? Did the doctor tell you what to expect and suggest Hospice? I'm so curious. Please ignore me if you can't share that much. I'm looking for insight with my situation.
((((Maggie & Mom))))
You have always given kind sage advice. We are all enriched by your wisdom. We are here for you in the next months.
So glad you found a good kind compassionate hospice, this should be the begining of a fruitful friendship. Wonderful that the meds were delivered and the equipment set up so promptly and bless the Dr for that visit. Here in the booneys no pharmacy is open later than 9pm although some will climb out of bed if you plead. The wife of one pharmacist called one morning after I tried unsucessfully to reach him and told me she did not like him going and opening the shop in the middle of the night as he is too old for that kind of thing. I managed not to ask her if she thought I was too old as well because I was a couple of years his senior.
Yes Maggie you made the right decision hard as it seems at the time to face up to that reality

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