Mom has "Primary Progressive Aphasia" Dementia.

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one day she is " with It " one day she is garbled and upset and trying to sell her jewels.


My mom has aphasia too. She gets frustrated when she can't get the words out, or says a whole sentence that is totally out of context. We laugh alot... what else can you do?... and I tell her to take it slow. She eventually can make it known what she wants to say.
Her doctor told her to spend some time a day saying nursery rhymes and singing songs from her childhood. He says that these are the earliest things we memorize, and by remembering them we strengthen connections in the brain and make them stronger to build more recent memories with.
I do think it is helping.
We have fun singing in the car.
Nurser rhymes! How interesting. Thanks for passing that along.
Do you have a communication book yet? Therapist for my mom says its important to use it now so they will be familiarly with the pictures when they are unable to speak. It's also important to take personal photos of family and house objects and add to the book.
Have not been able to respond in quite some time. Mom who has (PPA) and dementia has caregiving in home 24/7 now :( she is "with it" one day and out looking for a door in the wall of no doors the next. we can get her to laugh now,
when care first came in oh god it was really hard for her. Mom now can't walk much and is having a hard time swallowing; bad sig ;and i don't really understand health care directives no tubes for nutrition etc.. i can't commit i don't really know but ; hey i've dealt with dad with alz., and mom with PPA, I'm tired, but get through it with them ; 9yrs. with dad and mom diagnosed the year he died what a bad card, but it's life and our family we are here for.
You can now get her to laugh? That sounds like a nice improvement. Congratulations!
My mom is having more bad days tha n good. Slurring words on top of having hard time talking. Yesterday she forgot her 13 yr old granddaughters name. That got to me. I guess I assumed peoples names close to her would be last to go. Really bummed.
vikilynn, different kinds of dementia affect different parts of the brain. I am very sorry that your mom forgot her granddaughter's name. The ability to remember names or remember people might be the last to go in some cases, it might stay with the person to the end, or it might leave long before the end. I hope you can comfort the granddaughter that there is nothing personal about the forgetting ... it is just part of what is happening in Gramma's brain.

Hugs to you.

jeannegibbs; We know each other soo well that usually our/her face tells the story;
So we know when she is going through crap, she rolls her eyes and say's nenenenono,( something like that) it depends who the " Da da Da" care giver of the day is...: and we know who she likes and dislikes, so strange its like we read each other and laugh our hiney's off! we actually have a horrible situation and we are making fun of it in a good way, Unless its a "bad Day" then she rambles really mean , I swear its because care . oh have to chech my computer a virus warning sorry gatta go.
Well.. I hope everyone is still checking in. I am in need of some support or answers. My mom seems to be deteriorating so fast. It's been a year since she began showing symptoms. She is now showing signs other than speech deficits. She doesn't speak much and its a struggle to decode but now when she thinks of something she wants its now now now.... She can't relax until its done. She also doesn't seem to understand things. My dad died last week and while packing she tried to pack frozen food?? She had trouble figuring out how to unlock the door... Small things. She's still otherwise functional and still drives. That will need to be reassessed soon I'm sure. Do you think the PPA is now spreading to other areas? Do any of you have similar experiences that could help?
vikilynn, I am so sorry that Mom's condition is deteriorating so fast. Hugs to you.

The Mayo Clinic website has this under complications: "As the disease progresses, other mental skills may become impaired. If this occurs, the affected person eventually will need help with day-to-day care. And depression is common in people who have primary progressive aphasia."

It is so good that Mom is still quite functional. But those small signs of other mental deficiencies probably mean she should not drive. If they occurred only immediately after your dad died it might just be that the immediate emotional stress was overwhelming. But if she continues to be confused in small ways then she definitely should not drive. Packing frozen food might make a mess in the suitcase, but similar confusion while driving could be fatal -- to Mom and/or to others. I am so sorry that you are dealing with more serious levels of this horrible disease, and so quickly.

Condolences on the loss of your father.

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