I think I'm writing this mostly to get it out. Today, after 5 years of not knowing what the h*ll was wrong, my mother (51) got diagnosed with FTD. I'm 23 and though I've suspected it, it still hit me hard.
I'm working on getting her into an assisted living program, I think it would be a good thing for her in the long run. All she really does right now is compulsively clean and watch tv. I have a job, so I can't take her out to do a lot of things, so I'm hoping an assisted living place will do activities with her and do field trips.
I've been reading the end stages of FDT and they sound a lot like my grandmother who was diagnosed with Alzheimers and ALS in the 90's. I'm starting to wonder if the ALS got misdiagnosed. The neurologist we're seeing now wants me to get genetic testing to see if I carry any off the markers for dementia. My grandmother got alzheimer's in her 60's and my mother's symptoms started at the end of her 40's. So it does worry me.
I don't know. I don't even know what to feel. I'm confused and slightly numb right now. She's just happy to know, Not upset at all. The doctor says she also has a pseudobulbar affect happening. She didn't get the least bit upset.
sorry for my rambling. I think I just needed to write this out and hear from other people who may understand.