Mom's been diagnosed with Lewy Body Dementia. How do you cope with the new personality?
My Mom has had short term memory loss for years. 5 months ago, her symptoms profoundly changed. She experienced "night wandering" (stayed up all night), slept all day, hallucinated (that other people were in the house; that they were stealing her money), experienced delusions of being ill, couldn't/wouldn't eat, lost weight, was incontinent, fell frequently, had hand tremors, walked with a shuffle, unable to recognize her family. After several trips to the ER, one hospital admission and multiple tests, she was diagnosed with LBD. I spent hours researching everything related to LBD. My brain understands the disease, but my heart still struggles with the loss of the Mom that I knew.
I moved into my parents home to help my 87yo father care for my 86yo mother.
For the most part, I have dealt fairly well with the LBD symptoms. I am the only surviving child. I have no other family to help. My father is resistant to hiring respite caregivers, so it's just me and Dad.
Honestly, I'm starting "wear done". I finding myself hoping for a just a few hours of normalcy. Then, I feel guilty because I know this is a disease and not my Mom. It's like this never, ending roller coaster of emotion. For all of you who walked this path, how did you cope? I need your help.............