There is help for Dementia, Alzheimer and Parkinson patient caregivers!
Contact your doctor and ask for Hospice. Dementia, Alzheimers, and Parkinsons have now been added to Hospice and it is such a blessing. It will then open up other new possibilities of care such as CCSP and caretaking help at reduced costs. Hospice itself does not help the day to day care but it does help with no longer having to take the loved one out of the house for doctor visits and such. They send a visiting nurse once a week to take care of their health/physical needs and there is always a physician available to them. Someone comes in up to 3x's a week to bathe the loved one and change beds, they provide all medical needs including medicines, pull ups, personal care products and chucks for the bed. Hospice by itself does not do everything that is required for caregiving but just having someone to ask questions and realize you are not alone or the one with dementia, as I sometimes think, is a wonderful help. They are there for the family as well as the loved one. They also provide a week of respite every month or two in one of their facilities to give the caregiver a break. I encourage anyone feeling down about caregiving to please, please, please - do this for yourself. If you are turned down by Hospice, wait 6 months and try again, this is a deteriorating disease and they will pick your loved one up on their program soon. It took the second try for my mom, she got in under cardiac and dementia reasons. Hope this helps someone else. Blessings!