Extremely frustrated caregiver UPDATE.
A few months ago (I think), I posted about taking care of my husband's landlord, who has cancer. So much has happened since then, and I need to get it out!
First off, he had been complaining about abdominal pain for several weeks. He refused (as usual) to see a doctor, and continue taking his crap internet "protocol" instead. Well, the second to last week of June, it all came to a head so to speak. He was having extreme pain, and couldn't hardly move around. We finally convinced him to see a doctor, but he insisted we drive 2 hours away to see one. So we load up, him, his girlfriend, hubby and myself, and hit the road. We arrive at the emergency room at 6pm, on a Friday evening. After numerous tests, it's revealed that he has a ruptured colon, and severe blood poisoning. Doctors say he needs emergency surgery and a colostomy. He promptly refuses. Says he wants a second opinion. Another doctor comes in, looks at the test results, and tells him the same thing. He refuses again, and asks for a THIRD doctor. Doctor 3 comes in, of course, and says the same thing. Again, he refuses. The doctors tell him that without the surgery, he will die of blood poisoning. He says he will not die in the hospital, he wants to die at home. After hours of arguing, he ends up signing himself out of the hospital, AGAINST MEDICAL ADVICE! We took him home, and prepared for the worst.
Two days later, he decided to have the surgery. On Sunday. Father's Day. So back to the ER we go, and he has surgery.
He stays in the hospital for 6 days, refusing to discuss hospice or home health. They didn't want to release him without some kind of plan in place. He once again signs himself out, against medical advice.
We go home. He has started hallucinating at night, but is fairly lucid during the day. He has fallen several times, but continues to refuse to let us call in any help. Yesterday, I stepped out for a couple hours to get some rest, and his girlfriend calls in a panic. He was sure his barn was on fire, and insisted on taking his ATV and going to check. She tried stopping him, and he all but pushed her out of the way, and went! He fell on his way back into the house, which is about the time I arrived.
This has become an absolute nightmare!
Today, we are returning to where he had surgery, he has a checkup tomorrow. I am staying here full time now, because his girlfriend isn't mentally stable herself, and she can't handle any of this.
Our goal is to have his doctor declare him incapable tomorrow so that my husband kicks in as power of attorney, but we aren't sure that will happen. This man has moments of clarity still, and he can hide his confusion relatively well. Being around him 24 hours a day, we can tell, but I think he could put on a good enough show as to fool a doctor for 15 minutes.
Does anyone have any suggestions as to what we could do?
Either way, I just needed to get this out!