Early onset....that's what I heard and filled the Namenda xr.

Started by

I hope she takes her medicine. I put it in her pill box. I call her to remind her to take her pills. She yelled and swears at me then calmly says she will. My dad tells her also as they have been married for 49 years. I'm exhausted and feel powerless to help her. She does not think she has a problem. I have no siblings. Does this get better? I'm feeling very discouraged.


If she takes the Namenda, it should help a lot. Hoping for you.
My cousins brother has it and he is 53 yrs old. it is very sad. From what I understand, it is genetic, and his mothers brother (his uncle) had it same age. I am not related my Aunt Betty. Anyway, my cousin told me he is very confused and has a hard time even with hot and cold settings in shower. He broke into his childhood home thinking he still lived there. The namenda will help, my mom takes it but she has lewy body and is 90 years old. All I know is it know it helps her. Keep an eye on her and make sure she takes her meds, she will tell you she takes them but, well, it is a good idea to make certain.
Can you have your dad give to her and stand by to be sure she takes it? I don't think that you can trust her to reliably do it herself. It helped my husband. We use it along with Aricept. Be sure that she has had a complete evaluation by a dementia specialist. Good luck!
No, dementia does not get better with time, only worse, and Namenda is more of a placebo because there is NO drug that will reverse dementia. The side effects are worse than what she is taking it for and it may make things worse. Get yourself ready for a bumpy ride...
My mom takes Namenda and it does not reverse the dementia but I really believed it has slowed her descent down a lot. We have not noticed any side effects and I keep a close look out for them since she had such a terrible time with Aricept. She has been on Namenda XR for a year.
If it's in the early stages, the Namenda has proven to be useful. I hope it works for her. In the meantime you need to educate yourself on dementia and all that goes with it, including behaviors. Contact the Alzheimer's Association, they will be able to give you information, they are a great resource. You can also contact the local area agency on aging and ask about caregiver services and in home services to help out mom. Look into an adult medical day care, it's a great place (in my experience) to go, socialize, eat a meal etc. Good luck.
My mother in law takes Namenda too for dementia and according to the DR it doesn't stop it but can slow the progress down. Unfortunately things aren't going to get better with this they are only going to get worse. If she is not living with you and your dad is the one caring for her make sure you both are on the same page for her care. he can make sure she takes the meds. Both you and your dad also need to take care of yourselves too. Look for some care options that can help you get that much needed time to yourselves. There are lots of organizations and groups in every area that can help provide sitters for your mom and many can be free or at a low cost to you. My mother in law goes 2x a week to a day care program to help keep her in the here and now and to help keep her social skills to be social. It is a little pricey but it might be worth looking into for your mom too - it gets her out of the house where she can socialized with others her age and do lots of activities.
Mom put on Namenda and Aricept at early on set years ago......as well s my friends mom -my friend was a RN for 30 + years. Both had bad reactions mad them worse not better..so have dad monitor her intake wait a month or two and see if any improvement...if not talk to her doctor again.
Contrary to some comments above, the Namenda was a big help to my Dad. The medications, none of them, will reverse alzheimers. But the earlier they start to take medication the better because it will slow the progression. Your Mom is in denial because she is scared. Maybe a sit down with she and your Dad, having a calm, kind and loving conversation will help. Especially if you tell her that the medicine might help to keep it from getting worse. That's what we told my Dad. And, yes, don't trust her to take the meds. Ask Dad to handle being sure. I know how you are feeling....I, too, am an only child. Good luck!
Me again. Also, I took my Dad to a Alzheimer-Neuro specialist for actual diagnosis by testing and for treatment recommendations. Eventually, the first medication that Dad was prescribed seemed to stop working. So, they added a new medication to it and again, we could tell a difference. But getting her to work with you is going to be key.

Keep the conversation going (or start a new one)

Please enter your Comment

Ask a Question

Reach thousands of elder care experts and family caregivers
Get answers in 10 minutes or less
Receive personalized caregiving advice and support