I was diagnosed with mild dementia earlier this year. Now I'm fearful of what's to come.

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I was diagnosed with mild dementia earlier this year. Now after having a PET Scan I was told I have positive amyloid plaques inside my brain. My husband and I are in a research program under my Doctor's supervision, and one of the ladies in the program called me and told me the results of the PET Scan. From what she told me, it's in the middle of my brain. I have an appt. to go to my Dr. on Oct. 2nd and I have a couple of questions to ask them. I don't know if it will come from the inside out or what. I already have plaques on the outside of my brain and now the inside. My Moma and 5 or 6 of her siblings passed away of complications from Alzheimer's, so I know what to expect. I'm 62 years young. I know Alzheimer's doesn't care how old you are. It doesn't care about anything. I know God is with me all of the time, but the problem is, I've seen what it does, and I don't know if I'm strong enough to go through this, knowing my husband wants to take care of me. He told me the last thing that I would have to worry about was going into a Nursing Home because the only place I'm going to die is in his arms. As sweet as that is, and I would want that to happen, I don't think he knows how hard it is to take care of someone with Alzheimer's. I took care of my Moma full time for 1 year. Really 2 years but she would go to her sisters house on the weekends and then come back home during the week. Now that sister is in a nursing home with Alzheimer's. She just turned 96 this past July. She's the oldest sibling and it's just her and one other sister left out of 9 siblings. Seeing everything that I've seen, I'm scared to death of the unknown!!!

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I'm late to this, just wanted to say thanks for sharing with us. You're truly walking where so many fear to be, and I wish you peace and blessing in the days ahead.
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Thanks for the update Babydoll62. It sounds like you are working with doctors on medication options. I hope the epilepsy can be kept in check.

You do have a lot on your plate and I hope that you are able to keep such a wonderful attitude. And you are staying busy. I've heard that is a big plus. Bless you and I wish you all the best as you learn more about your condition. Please post and keep us updated, as you are able. Your writing is impeccable and inspiring, by the way.
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Like others, I am very sorry to learn that you will travel the path so many of your loved ones traveled. You are preparing well and have much knowledge with which to make plans.
I decided to get a baseline cognitive assessment for someone my age -70- and will have my review with my neurologist in a week or so.
I hope that one you have moved and are settled in your new home, you and your husband will purposefully take time for day trips, weekend getaways, maybe a vacation you two have always wanted to take....picnics...potlucks with friend and family...lots of time walking in nature together... breathing fresh air...feeling the sun...sitting under old trees. Do what you love and make happy memories and laughter together. Keep in touch.
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Oh Babydoll, how hard life can be. It's bad enough that you were diagnosed with dementia but, my heart sank when I read you have epilepsy too. :(      If I could take it all away I would.

I'm amazed at your positive attitude but I see you have faith in the Lord. I'm sure that has a lot to do with it. Keep reading your Bible and draw strength from Him.

It's great that you're getting prepared. The more you know, the better and smoother it will be. You have a lot of time to enjoy life, maybe travel with your husband, socialize with others and have as many wonderful experiences as possible. Get your church to pray for you, as I will every evening when we remember our friends and sick loved ones.

How great that you will be getting used to your new home early on. That way you can keep your routine the same. It will be comforting to have things where you put them.

May God make this transition for you and your family as easy as possible. May the medications and treatments be effective and prolong the progression greatly. May you have good health and your husband the fortitude to go the journey.
Keep the faith.
Numbers 6:24-26 (NIV)
The Lord bless you and keep you; the Lord make his face shine on you and be gracious to you; the Lord turn his face toward you and give you peace.
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Hey Sunnygirl1. You are very sweet. I can read it in your words. Thank you. My emotions are running wild as a June bug on a hot summer day. When I get up, within 15 to 30 minutes I can tell what kind of day I'm going to have. I don't think menopause was this bad. :) But I'm handling it one day at a time. I have had every kind of test you can think of and all of them have been for my brain. As far as medications, they started me on Aricept in April but it made me have insomnia and I have Epilepsy. The last thing you want someone with Epilepsy to do is get sleep deprived. I haven't had a seizure in 5 years. Then they put me on Nemenda 5MG 2 times a day and I've been on that ever since. I don't know if they'll go up on it next month at my appt. or not but I'll see. Thank you so very much for being so concerned about my well being. I will be sure and let everyone know how I'm doing from time to time when we get settled in our new home.
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Thank you. You too
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Hi Erinm60. Thank you for answering my story and offering your advice. I don't like to work puzzles, but I do like to read. I haven't had time lately because we have been so busy looking for a house. We have sold ours and needed to find one to move into. Well that happened today. Whew!!! Now I get back to reading my Bible, and I bought a new book: it's a Prayer Bible and I can't wait to get started with it. Aside from that, I love, love, love to crochet. My sweet Moma taught me how to crochet when I was around 11 or so. I've been crocheting ever since. Doilies, afghans, sweaters, scarfs, toboggans, little or big animals, it doesn't matter--I love to crochet them all. Right now I'm crocheting a shawl for myself. In different shades of blue. After I finish this one, I believe I'll crochet me one in white--I think. Thank you so much for caring and asking about the puzzles and keeping my mind busy. I do everything that I can to keep my mind as busy as I possibly can. Have a great night. Sleep Tight!
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Hello Mally1. Thank you for being so kind to answer my story and offer any advice that you have. I have never heard of the Bredesen Protocol, but I will read about it tomorrow. It's a little too late tonight to start reading anything. I wouldn't remember it anyway if I started reading it this late. :) I can take notes on it tomorrow while I'm reading it, and take it with me to my Doctor's appointment next month, so you gave me your great advice right on time. Thank you for that. You have a great night tonight and I'm sure we'll talk to each other at some point or another around this wonderful place. Nite nite!
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Babydoll62, thanks for sharing your story. I can't imagine all of your emotions. It's great that you are seeking medical advice and reaching out. I know there are online support groups for people who have cognitive decline or have been diagnosed with various conditions that can cause it. They seem to be quite vital and offer tips and encouragement. I might explore that in addition to the live support group.

Have you looked into medications? I know that's controversial, but, I would explore it, as it is reported to provide time and benefits. Also, let us know, when you know more. Is there some chance there is another explanation for the MRI results? There might be more testing or other explanations?? Just questioning. I'll look forward to seeing how you are doing.
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Hi Babydoll62. So impressed by you and your frankness and sincerity. Wishing you and your husband the best . I know this has nothing to do with Alzheimer's but a very close friend of mine had 3 occurances  where his skull was fractured 2 minor, ( his mom dropped him as a baby and he fractured his skull, a few years later, he fell off of his bike and did it again. The third was in his 20's. Major head trauma , car accident. He some how survived and did well. My point ( sorry if I'm rambling). Is he does cross word puzzles and word games since the accident. Some thing to keep his brain challenged. Could this activity possibly slow the progression ? Wishing you the best
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