Just started caring for a man with ALS.
This gentleman is a professional, and is only 50 years of age. He is about 2 years into the disease, and is able to slightly move his right hand (enough to propel the wheelchair if positioned correctly) and can move his head.
Does anyone out there have any advice for me as the newbie caregiver? We seem to have begun to share a great bond already.His wife requires some time away, of course.
They do not utilize any hoists or two-person transfer techniques, which, as you can imagine, makes the job physically demanding. He's super smart, so being quick-witted and on the ball really helps in his care. Monday I thought I would not survive. I actually eyed the front door and considered grabbing my things and making a run for it. But Wednesday went very well, even with some bumps along the way.
I appreciate any input.
I am using compassionate touch with hand massage for his fingers and some slight swelling of the right hand. I plan to do a scalp massage Monday. I am at home with a really nice cold right now, so not working (as I should be).
Ruth (professional caregiver)
PS: This is my first non-elderly assignment