Not really a question...just a final update.
Wanted to let all of you who offered kind words, comfort, inspiration, information and help that my husband passed away today after his struggle with Lewy Body Dementia. The past 3-1/2 months have mostly been a nightmare of struggles, infections, hospital stays, meds...but now he and I are both at peace. I was with him at the end, holding his hand, stroking his hair and assuring him that I would be fine and that I loved him. My advice to each of you is to persevere; learn all you can; question every doctor, nurse and other health professional you can to get the facts...be frank and honest...you are your loved one's only advocate. You will know when enough is enough as I did. He was in hospice for 13 days...a difficult time for both of us, but the struggle is over. God bless you all as you go along this arduous path. No longer SCARED.