Love & Jealousy; Community & Isolation


My wife Marja and I were at a silent retreat with others from our faith community recently.

We entered the Great Silence after Friday dinner and remained silent until after Sunday morning worship. We slept at the Inn where each of us had a separate, simple room with a bed, desk, chair and sink. We had meals and met together in the Lodge, a separate building that has an almost sixty-year history of continual silent retreat.

It is a place that invites one into silence.

I've meditated almost daily for at least fifteen years and have found quiet only in the midst of very long retreats, never in my daily meditation.

With the diagnosis of Alzheimer's, I had hoped (illogically, I suppose) that the slowing of my thinking would make my mind simpler and quieter, my meditation deeper. No such luck!

As my mental abilities have decreased, it's been just as noisy in there as ever. I had a small hope that over the weekend of retreat, I'd find a bit of inner silence, but all I experienced was the "monkey-mind" of constant chatter.

But there was something else both more beautiful and scarier.

I was sitting in the Lodge looking out the floor-to-ceiling windows just before evening worship when Marja walked down the path through the woods from her room. I was suddenly aware of deep longing.

She radiated an inner light.

Lean and strong, she walked gracefully as if she belonged to those woods and that path. She smiled easily at several of our friends. In those few moments, the fullness of her inner beauty was revealed to me in a way I'd never felt in over fifty years of our relationship. In that moment I felt extraordinarily grateful that we belonged to one another.

But then the future broke in.

As I watched her exchange glances with some others, I felt strangely excluded from those relationships. Suddenly, it was five or ten years down the road, and Marja had relationships with others that I was incapable of sharing or even understanding. I felt immediately jealous: I wasn't able offer her what she needed and she had to look elsewhere. It was as if she were having an affair. In that moment, I felt jealous of any other relationship.

Although they became muted, the feelings stayed with me as Marja sat across the room during the short worship that evening.

Afterwards, I went outside into the dusk, and sat on the steps overlooking the meadow and woods. As Marja came out the door, I caught her eye and she sat next to me. We clasped all four hands together. Feeling our bodies touch, holding one another, I was comforted and felt safe again.

The jealousy was "real," even if the imaginings that prompted it were not. I "know better" than to live in the future like that. But that's where I lived for those moments of jealousy.

I was fearful of what the future might bring.

Feelings of isolation are what I fear the most and what, I suspect, many with Alzheimer's suffer greatly from. And jealousy has the potential to isolate me from the one with whom I share so much, who will be there with me forever.

Everything that happened in those few minutes bordered on the mysterious. Part of me feels very grateful for the emotional openness that has occurred as my illness has progressed. Part of me is scared. Those feelings, both sublime and painful, would not have been possible for me two years ago.

In the end, of course, it's precisely this living in the future that causes so much of the pain of Alzheimer's.

I've not been falling for it much, but I sure did this time.

Editor's note: David's journey with Mild Cognitive Impairment was chronicled in "Fade to Blank: Life Inside Alzheimer's" an in-depth look at the real lives of families impacted by the Alzheimer's epidemic. His story continues on his personal blog on

An author and former physician, Dr. David Hilfiker was diagnosed in 2012 with a progressive mild cognitive impairment. His doctor thought it was Alzheimer's but additional testing proved this initial diagnosis to be wrong. Now David must learn how to come to terms with the reality of worsening cognitive issues that appear to have no cause.

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I watched "Away From Her" last night with my husband. It opened up a lot of angles, questions and conversation between us. We have both always said that we wanted to stay in our home with the other taking care of us and any in-home help we could get to do so. I was so struck by Julie Christie's character being the one to make the decision that her husband couldn't bear to make - to go into a facility for Alzheimer's care. I don't need someone to 'prove' their love to me. Many times in my life I have seen love and 'not love' and I know it by now. What I want from the love of my life is an assurance that he will do his best to try to keep a life of some semblance while he sees that I am cared for, if I lose my mind. Emotions are powerful and are as much important as being practical but both have to be brought into this kind of planning and life change.