What a touching story Jane. Thank you for sharing. I too would like to write a blog but not too sure what about. Maybe about my sudden descent into old age and disability. I have been old enough for "old age" for some time I do find it very difficult to accept the limitations. Contributing to this forum very therapeutic. I just don't want to come over as complaining and sorry for myself.
I think your overriding principles are very sound. I write a blog (www.terrilabonte.com) about transitioning to retirement. My initial transition partly involved taking on a much more active role in assisting my mother with her day-to-day life. That transition exploded eighteen months later when my mother had a debilitating stroke. Writing the blog helps me deal with these monumental changes in my life. I think the blog also helps other people going through similar issues. On the other hand, I have also found it challenging to find the balance between privacy and truth. I also maintain anonymity and I truly believe there is nothing in my blog that would embarrass or upset my mother, except for the fact that her daughter had been sad and has struggled. On the other hand, I didn't share the blog with her even before the stroke. I can understand why you decided to share with your mum. For me, though, I felt like I needed to have a creative outlet that was only my own. My mum and I are very close, but I just wanted a tiny corner of my life that was reserved only for me.
That was very sweet. I struggle with this more since it is my spouse and at a young age. I don't feel I can choose this path even though it would help advocacy.
Sarah, this post really touched my heart. My Mom, too, is a very proud and private person. I was reading through your essay and hoping that you weren't throwing in the towel...but when you discovered the source of your unease and addressed it directly, wow! Happy ending. Honesty has so many levels. Now you can help your mother tell the world about her struggles, and be joyful about it. I'm happy for you, and for your mother; thanks for sharing.
Like now we are in hospital malnutrition from Hep C .mal absorption. Have to be here because to upset when I'm not around. I had to go take care of some business yesterday. He started throwing things like bedside comode kicked over. So tbey took him off the continuous feed to feeding tube. Now this is Peptide (predigested proteins) Theory body absorbs and feeds including the brain. His dementia comes from Encelopathy Malasia which is stable. On frontal and tempular lobes. . The malnutrition and amonia levvels affect the evel of dementia and halu I ations.
Yet all day yesterday he wanted me to do for him.was a ngry when I went to get me a cup of coffee . Everyti.e I tried to settle him do for him , he started screaming " Being hes direcy across from nursing station definately obvious. I also ztay because he is an escape risk.He aready escaped last week from the hospital.He fast and quiet. The police brought him bCk. As GPOA a d DPOA I stay here as his proxy so he cannnt refuse medically necessary treatment. He disconnects himself from c ontinuous feed and jerks out the IV. The fourth on was just put in . Malabsorption also makes for dehydration with the malnutrition. He is 58. Looks like 89 physical and medically. Putting IV is difficult for most .A d since Im also a phleboto.ist , I want to grab the IV kit and do it myself.Somany RNs cann't do a simple stick. He has no fat and skin is old veins like a 90 yeear old. But for me no problem. Yet they fish around. He holds still while Im at his side. Sometimes I wonder if he will lose this way of showing he cares. Used to always know my voice if not my name as his wife. NOW TRANSIENTS OF OTHER OR PAST FAMILY MEMBERS Yet if Im not there he makes them call code Greys. Ill have to put alarm I bought on the front door. He es aped from the house at 3 am.
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Coming Clean with Mum
I too would like to write a blog but not too sure what about. Maybe about my sudden descent into old age and disability. I have been old enough for "old age" for some time I do find it very difficult to accept the limitations. Contributing to this forum very therapeutic.
I just don't want to come over as complaining and sorry for myself.
I agree with her.
Like now we are in hospital malnutrition from Hep C .mal absorption.
Have to be here because to upset when I'm not around. I had to go take care of some business yesterday. He started throwing things like bedside comode kicked over.
So tbey took him off the continuous feed to feeding tube.
Now this is Peptide (predigested proteins)
Theory body absorbs and feeds including the brain. His dementia comes from Encelopathy Malasia which is stable. On frontal and tempular lobes.
. The malnutrition and amonia levvels affect the evel of dementia and halu I ations.
Yet all day yesterday he wanted me to do for him.was a ngry when I went to get me a cup of coffee . Everyti.e I tried to settle him do for him , he started screaming "
Being hes direcy across from nursing station definately obvious.
I also ztay because he is an escape risk.He aready escaped last week from the hospital.He fast and quiet. The police brought him bCk.
As GPOA a d DPOA I stay here as his proxy so he cannnt refuse medically necessary treatment. He disconnects himself from c ontinuous feed and jerks out the IV. The fourth on was just put in . Malabsorption also makes for dehydration with the malnutrition. He is 58. Looks like 89 physical and medically. Putting IV is difficult for most .A d since Im also a phleboto.ist , I want to grab the IV kit and do it myself.Somany RNs cann't do a simple stick.
He has no fat and skin is old veins like a 90 yeear old. But for me no problem. Yet they fish around. He holds still while Im at his side. Sometimes I wonder if he will lose this way of showing he cares.
Used to always know my voice if not my name as his wife. NOW TRANSIENTS OF OTHER OR PAST FAMILY MEMBERS
Yet if Im not there he makes them call code Greys.
Ill have to put alarm I bought on the front door. He es aped from the house at 3 am.