My parent's were not told. They knew it was in Moms family and dad actually asked outright and the Dr. refused to say. If mom had known she could have made choices ahead of time. Now we have to go based on the choices she made when she thought she had a long and fun retirement ahead. Everytime I take her to the Dr. I am filled with rage. I want to tell the Dr. how angry I am. How I don't trust her and feel mom was just another paycheck to her. I don't, since I worry about my mother's care. Once she is gone you better believe she will be hearing from me. Mom is pretty far gone now and makes comments about her care and changing her burial choices and so on, but we have no way of knowing if she means it since she is so out of touch with reality most of the time.
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Many People with Alzheimer’s Aren’t Being Told Their Diagnosis