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My mother has brain cancer and the doctors say she has 2 to 6 months to live. What should I expect while I'm caring for her during this time?
Jaye
Give a Hug
May 12, 2010
that really depends on where the tumor is and what parts of the brain it is affecting. It is possible she will lose her language. I would encourage you to get some hospice help. It is a benefit under medicare. They can give you quidence and support. take care ...
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annjen
I appreciate your comment. she is already with hospice. I asked for some quidance they don't tell anything because they do not know. I was hoping someone else has been through this and would be able to help me. Thank you again.
tennessee
My mate had bladder cancer ,turned brain cancer.I have a difficult time talking about what we went through.He was only in his forties,we had one child.He did tons of chemo,they put screws in his head for radiation.He lost his ability to talk.He would use the wrong word trying to comunicate even through he still knew what he was trying to say.He had seizures.He lost his ability to walk.He stopped eatting and his body slowly started to shut down.Even though he could not comunicate he would know if I was there or not. he told me he could feel it growing in his head and that it was about to take him over.Hospice had him every drug imagineable for the pain.I have lost my mom and dad,but the saddest day of my life was when I lost him.Every part of your brain has function,so it all depends on where it is,how big it is and how fast it is growing.
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Thank you for your help. My mother already is saying her legs are weak. She feels the tumor growing too.
ibarro
I really think that the person who can really answer those question accurately is the doctor. so ask him sorry to hear that. my brother's nephew how is just 6 years old has a cancerous brain tumor which it was removed and he is fine now although his aunt has to accompany him at school during lunch break to avoid being hit on his head by classmates because they play like crazy. I know that this is very different from what you are experiment now. I know that first the person don't want to accept her sickness(denial) second: depression, third: accepting the sickness.
May 13, 2010
My experence with doctors are they can not accurately tell you anything.A good doctor is as hard to find as a good lawyer.Malpractice insurance wouldn't be so high-A little education does not mean your God. you know your mom better than anyone.Not everyone graduates top in there class.
When J EFF first started having symtoms,he went to a doctor who gave him drugs for an bladder infection.It never cleared up,kept giving him the same drugs for the same infection.He did not want to insult the guys education.I wanted him to go to another doctor as most men he was hardheaded.After so long he was peeing straight blood,that scared him so he finally went to that other doctor-it was too late-the cancer had set in.The reason they ignored his symtoms was because he was 40 and a nonsmoker. Bladder cancer is a 80 year old smokers cancer they claim.They told him if he had been treated earlier they could have saved him.We did catch it Jeff did not want to offend anyones education. He wanted to give doctor no. 1 respect,it cost him his life and my baby her daddy and me the love of my life.He did not want to wear a bag on his side for urine at 40,so he went to VANDERBILT in N ASHVILLE to have his bladder removed,thankfully it was not on his prostate. He was very concerned about his prostate.The doctor or surgeon in this case told us your only 40,prostate is cancer free as of now we are leaving it in tact.He told him if he was a 80 year old man that is just part of the precedure,because sex is not as important to a 80 year old man as a 40 year old man.We all agreed for GODS sake, leave the prostate.It was a all day surgery,Jeff gave me instrutions to ask about his prostate on every call from the head nurse. They check in every hour or so,I asked about the prostate each and every time.Everything is fine,prostate is fine.After the surgery,the Surgeon came in,I spoke to him,surgery went great,prostate was cancer free,it is great.He told us we should be back to having normal life in about 6 weeks.Jeff was more concerned about that prostate than the bladder.He went in for a follow-up visit after that 6 weeks-things weren't working as they should.Guess what....No prostate.It had been removed,gone-taken-it had no cancer.the surgeon even told us it was there and healthy,we agreed upon it and it was discussed to leave it,but it was gone.Those doctors or interns or whoever-you can't go back and watch them every minute-they castrated my mate.Just another OOPS. He was handling the bladder cancer thing alright,but the stolen prostate was different in his eyes.He felt stripped of his manhood,he said he might as well be a girl,he felt like I would leave him,he tried to run me off.He couldn't run me off if he tried.Our relationship was on a different level now,I told him he needed to focus on our daughter growing up. I told him that missing prostate did not make him less of a man,but thats not how men feel.He was more upset about this than anyone would ever know-men don't talk to men about these things-men don't vent like women.He was very angrey and he felt useless.I just wanted him alive,I thought the anger would make the cancer grow faster,Even when it entered his brain,he was still mad about the stolen prostate,and our stolen life. The doctor that put the screw s in his head to give him the radiation told us that the procedure had a99.9 sucess rate of destroying the cancer;We were full of hope again;again we were told the precedure was a sucess and his brain was cancer free.We were the happiest people imaginable,our prayers were answered,so we thought.We planned a trip to carry our daughter to Disney World,we made a appointment with his cancer doctor to get the o.k.-They wanted to run a MRI before we left.That visit we went in the happiest family in the world and came out the saddest;We were told the cancer in his brain was big and mighty.The doctors exact words were 'YOU fought a good fight,you need to go home and prepare to die.'we walked out in shock,We never made it to Disney World as a family,instead I sat in the next room as Jeff was telling his 4 year old daughter, that daddy would be dying soon,daddy will not get to see you grow up..Our daughter is 10 now and those words still ring in her ears.Why does bad things happen to good people,I don't know. Why did the surgeon tell us his prostate was intact when it wasn't-don't know.Why did they tell us his brain was cancer free and the procedure was a sucess-don't know the answer to that either.He died about 2-3 weeks after that .We miss him just like it was yesterday. I know none of this will help you,but my point is Doctors are not GOD even though sometimes they think so..They are just plain ole people with plain ole jobs paying their bills like the rest of us. Love on your mama because I know she is scared too..
I am so sorry for your loss tennessee...
lcs
May 17, 2010
Although doctors are definitely not gods, annjen, I think it would be worth a try to make an appointment with your mom's doctor so that you can go alone to meet with the doctor and explain to the doctor that, as your mother's caregiver, you would like to know if there are any things that USUALLY happen in a medical case like your mother's. Of course every case is different in some way or another but the doctor may be able to tell you some things to expect. How is your mother dealing with this cancer? And how are you doing? At least you both know you cannot fight this cancer and win so I would say the best thing you can do is keep your mother as comfortable as possible and both of you make the most of sharing the time she has left. Have you had a good relationship with your mother throughout the years? If so, this will help. If your mother is still well enough to talk, be sure you have asked her as many questions as you can think of regarding her life history. I am so glad that I have recorded many tapes of my mother (when she was well) talking about her life and the lives of many relatives long gone. She enjoyed reminiscing and our whole family will benefit in the future from the recordings. But perhaps you have already done this or your mother will not be up to doing this now. Allowing your mother to talk/display any and all emotions she is feeling may be the best thing you can do for her. May you be granted strength and wisdom to get through this well.
moms1daughter
I am so sorry that you are facing this. I agree, you should speak with your doctor, every cancer and patient is different.
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