Commented on a discussion 7/21/2009 at 1:35 pm
My last post "I'm ready to say good-bye to my mother" was done almost a year ago. Thank you to those of you that have responded with care and encouragement. Here's an update on where this year has tak
...Read MoreMy last post "I'm ready to say good-bye to my mother" was done almost a year ago. Thank you to those of you that have responded with care and encouragement. Here's an update on where this year has taken us. We never did visit her---when she asked us not to. That was hard---as we wanted to spend time with her and help her with as much as we could at her home. Having emphysema, probably neuropathy and maybe a heart or circulation problem (she refuses any tests to know for sure), she isn't able to get much done without complete exhaustion. She still refuses help from a Care Service in her state.....Very stubborn about anything I may suggest. SO, I continually call her and most of the time ---our conversations are fine. I help her with her computer---to download her email---and painstakingly walk her through every step to get her email downloaded and then start her reading it. My husband has to leave the room as he hears us talking. Seriously, it takes 45 minutes to do something that should have taken 1 minute of less! But, I don't mind doing that---because she does enjoy the emails once she can read them, but I am noticing deterioration in her abilities, she gets very confused---and each time think---oK, we'll probably have to let the email go soon. I am learning more to change the subject when I see the very negative coming out. Most of the time I can do it----but every once in awhile---I will say "Mom---we never did that" and "don't you remember such and such that we discussed and you asked us to do". She is still adamant about those certain issues and accuses us of pretty horrible things. It's hard---because I will think---OK, she's not that far gone and we can talk pretty reasonable about a lot of things---but when it comes to these certain issues---there's no question in her mind that we did them. (It might be easier---if she were totally gone al the time) I decided that I would go back for Mothers Day (we live on the west coast---she on the east) and spend an entire week---and just have a good time! would do whatever I could around the house, would take her to her favorite thing to do ---"Beano" (as much as I don't care for it) every night of the week---if she wanted! Also---i didn't tell her about it, I decided to surprise her! (Maybe she would have said to not come!). But, I had prayed about it and was determined that I could handle anything she threw my way and change the subject and have a great time....Give her a truly wonderful week. Living so far away----having 5 children----our visits were always in the summer---so I had only ever spent one Mother's Day actually with her in 38 years! My girlfriend picked me up from the airport and I arrived with a bundle of gifts and said "surprise!---You've got me for a whole week! I'm at your service!" She cried and said she thought she would probably never get to see her daughter again. We had 2 wonderful days, having fun and getting many things done. On the Sat. before Mothers Day---the question was asked again. "Why did you do such and such to me?" The same questions...Take her house and never pay her (she had asked us to please put it in our name and she would have life lease---with her helping with costs, repairs, etc); redo her will (we had her sit down and go through the entire will with us in 02, leaving what little she might have left evenly divided between my brother and I---which was always her desire. She cannot take in what she is reading---and says crazy things about the simple will---making me realize that she cannot decipher what she is reading);On and on........ not making any sense. I responded back with my reasoning ---saying mostly "Mom, that never happened, etc" ---- It got absolutely crazy!!!!! The things she said to me! As I was listening---I determined that no child should have to ever hear a parent saying such things---and that I would tell my children ---please, if I ever got that way, to not listen to me---and just put me away some place, and don't listen to me. I decided I just had to leave---I could not take the stress of it. I just packed and waited for my girlfriend to get back in town to come and get me.
As I was silent, my Mom would come up with these rageful things to say, like "You're just guilty, or you're jealous of me, you're going the wrong way, you're filled with Satan, Get out of here! I'll kick your a__ all the way down the road!" She even said she wished she would die right there for me to see and said I should put a knife right through her heart!) Just nuts! I said "Someday Mom. in heaven, you'll see that these things are not true. She said I'll never see you in heaven!"----I left, wondering where my Mother had gone-----and wondering where my feelings of love for my mother had gone....
At my girlfriends, in the midst of tears and trying to make new plane reservation, I had an unusual pain down my left arm. She immediately gave me an aspirin and was ready to call the hospital. It finally went away. I did go back to see her that evening---and picked up a couple of things I had left. My mother had found everything she could find, that I had given her---and had it by the front door to take with me. She wanted nothing to remind her of me.....I found an early flight home---and flew home on Mothers Day......What a disaster---and I was so mad at myself for getting caught up in the emotion of it all---and for trying to reason with her---and for going home-----when I was right there---and still had many things I had planned to take care of.
I called her to let her know that I was home and fine. She said she couldn't believe that I could have started that and done all of those things to her. She had just not brought me up right!
Oh my, so what do you do????..... I feel better still calling her daily---to check on her and try to be as upbeat as I can. Most of the time I am able to change the subject---and keep the conversation going the right way, or I'll say Mom, I'm going to hang up now and will call you in a couple of days, and tell her I love her. I've still hung up a couple of times as she's called me a liar and says that I am filled with Satan.... (We are both Bible believing Christians)
And----we have another trip planned to go back this August. We are renting a camp close by, and will bring my mother back and forth. (She refuses to stay with us any more). She turns 80 in a few days. We weren't able to be there then---but will celebrate while we are there---and are also going to have a family reunion for her side of the family...... We'll see how it all goes. I will at least have my husband there---for support (if he can stand to stick around).
I've come to realize that this IS a process.....and a very difficult one----of saying good-bye----to someone I love very much. We all must face these good-byes---as that is the process of this life. But, I must say---that this is a very difficult and painful way to have to do it. My mother really believes I have done all of these horrible things to her. And the more time goes on---the more I am seeing that it has to be some sort of dementia. Some little things she will say now, like you must have brought a large towel and left it here---because it was in my laundry and I have never seen it before. Also, she asked if I left another item (a Jewish prayer shawl) in her cabinet---as she has never seen it in her life---and I must have done it because no one else has been there. The other new one--since my Mothers Day trip is that I left something in her glass in the kitchen cabinet. She won't tell me what it was--until I admit that i have done it. She also says that she has not been feeling as good ever since I did that! (She takes a glass of water to bed with her every night and takes sips through the night) she said God spoke to her one morning and said to take that out of her mouth (what ever was in her glass) and she says thank God she did. I asked if she thought I would ever do anything like that to hurt her and she said yes, you know what you did. She seems to slip in and out of reality---but she never forgets the illusions that she has determined that we have done to her.
So, forgive me for going on and on...... my poor husband has had to hear about the craziness and it is, of course, very frustrating to him to see me get hurt. Sometimes it just feels good to put things down in words---that will never hurt my mother---as no one reading this would know her.
It helps to know that many others are going through the same issues---and worse. I do believe we serve a Sovereign God and that He is there by my side to see me through this---and to help me behave in a way that is pleasing to Him. I just have to keep my focus on Him while remembering that this is a disease that has overtaken my mother---and try not to take any of it personally. Some day in heaven she will see all things clearly.
So--although I am saying good-bye--whether I want to or not--it is happening----someday--on the other side, I will say hello again!
Thanks again for your positive input and encouragement.