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Respite Care: Relief for the Caregiver

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“I love him but I just can’t do it anymore. The physical and emotional demands are causing me to lose my own health. Soon, I will be in the same shape that he is in. I need some help.”

Statements like this are common among family members and caregivers caring for loved ones such as the elderly with disabilities, chronic illnesses and other conditions that require around-the-clock care. Even though most families take great joy in providing care to their loved ones so that they can remain at home, the physical, emotional and financial consequences can be overwhelming without some support, such as respite. Respite provides the much needed temporary break from the often exhausting challenges imposed by constant caregiving.

Respite care provides, short-term, temporary relief to those who are caring for family members who might otherwise require permanent placement in a facility outside the home. Research has shown that providing this type of help can have a positive effect on the health of the caregiver.

Without respite, not only can families suffer economically and emotionally, caregivers themselves may face serious health and social risks as a result of stress associated with continuous caregiving. Three fifths of family caregivers age 19-64 surveyed recently by the Commonwealth Fund reported fair or poor health, one or more chronic conditions, or a disability, compared with only one-third of non caregivers.
 
A Commonwealth Fund study of elderly spousal caregivers (aged 66-96) found that caregivers who experience caregiving-related stress have a 63% higher mortality rate than non-caregivers of the same age.

Many caregivers may also find themselves in crisis situations due to job loss, homelessness, substance abuse or their own ill health. A temporary haven to insure the safety of the person for whom they provide constant care becomes an absolute necessity.

Respite has been shown to help sustain family caregiver health and wellbeing, avoid or delay out-of-home placements, and reduce the likelihood of abuse and neglect. According to the ARCH National Respite Network, data from an outcome based evaluation pilot study show that respite may also reduce the likelihood of divorce and help sustain marriages.

Respite is among the most frequently requested services for those providing care at home.

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Models for Respite

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tara said
Oct 17, 2007

I am a single woman caring for my 80 year old mother while working in a large metropolitan city. Somehow the rest of my family, all of whom are married with children, believe that my single status automatically designates me as the caregiver. I love my mother and would do anything to help her, but I resent the assumption. Requests for help are followed by responses about my siblings needs to handle more immediate family issues. How do you get them to realize that you too have a life?

c0wgrlup said
Jan 23, 2008

I am in the same situation as you with family members . I decided to care for my hadi cap brother in-law because those that said they would do it droped the ball he lost a toe to diabeties which no one new he had because they did not take him to a dr. Well just the other day i took him for the first time to an eye dr. I have had him for over a month now and none of them call to see how he is doing but his sister which did all she could when he had his own place.mind you he has 6 siblings and only 2 of them did anything to help him. I cared for there mother also and it was the same thing but with her nothing i did was right in there eyes but her dr liked my work so that is all that mattered to me. In the end they will regret what they do when they need somone to take care of them the kids see what they do.Just hang in there you are apriciated by the ones that really count! That is the person that you are caring for even if they dont show it they know were they would be if it was not for you.

AgingCareEditor said
Feb 7, 2008

For those of you looking for respite care -- a crucial service for all caregivers, check out the Respite Care Locator at:
chtop.org/ARCH/National-Respite-Locator.html

mmathers said
Mar 31, 2008

The link you are using for "Find Your Local State Respite Contact" has been changed. The new link is: http://chtop.org/ARCH/State-Respite-Coalitions.html

Thanks you, and congratulations on your excellent web site!
---Mike Mathers

Jaleyn said
Apr 3, 2008

My name is Jaleyn I am a caregiver and also the Director of a respite program. The principle of respite is to help caregivers. I do feel that the loved one benefits also. My folks enjoy seeing one another and seem to look forward to our time together.

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