Discussing needs can be a prickly business. It may be easy for you to imagine what sort of help is necessary, but much harder to discuss it openly or come to an agreement with the person who needs care.
Ask Before Deciding
Ask the person in need of care to spell out what he or she believes would help. One way to open a conversation is to say: “I’ve wondered if you’re having any trouble with _______.” Or “I’ve noticed it is getting harder for you to _______.” If offers of help are flatly declined, you might call in a second opinion about the need for assistance. Try talking to the person’s doctor or trusted relatives or friends. Their opinions may carry more weight than your own. Some doctors, particularly geriatricians, may be willing to schedule and attend a family conference to talk about what is needed. Geriatric care managers or social workers can also help facilitate these kinds of discussions and present a range of options.
Encourage Forethought
Whenever possible, it helps enormously to plan ahead for certain types of assistance, such as good nursing home care and insurance coverage. You might start a conversation by saying: “I read about Medicaid planning in the news today. Do you know about this?”
Be Sensitive
In many families, parents never talk to their children—even after they become adults—about finances or health problems. And it is hard to ask sensitive questions of a relative, spouse, or partner who already feels pressured from illness. Raising concerns about your own financial future can make it easier for you to ask your parent about his or her finances. The same tactic may work well for discussing end-of-life decisions. You may find that the person wants to acknowledge these issues. It can be a relief to talk frankly about troubling topics and share concerns rather than hiding them.
Be Truthful
Certain topics—that the individual shouldn’t be driving or that it’s getting too difficult to continue caring for a person at home—are painful to discuss for everyone concerned. Even so, telling white lies or making promises that are impossible to keep can come back to haunt you. No one ever wants to go to a nursing home, for example, but instead of pledging that this will never happen, it may be best to promise only that you will try hard to work out other solutions for as long as possible. If you know a nursing home is the best long-term option, it doesn’t help to suggest that such a move is just for a few weeks. When those weeks are over, the reckoning and sense of betrayal are impos-sible to sidestep. It’s better to acknowledge thatthese are hard, sad decisions replete with many layers of loss.
You might put these sentiments into your own words: “I know it’s very hard to even think about moving to a nursing home. But we can’t supply all the care you need anymore. I worry about you constantly, especially when I’m not available. I’ve tried really hard, but I can’t keep everything going. We need to think about finding a place where you’ll be safe and well cared-for all the time.”
If appropriate, you might mention concerns about your own health and well-being or worries about what might happen if you become ill or unable to offer enough care. A single conversation is rarely sufficient. Let the person you are caring for grieve the loss. Moving toward a solution is likely to take time and several discussions.
JSCHNEID444
Jan 10, 2008 Suggest Removal
What is the best way to locate a geriatric care manager in my parents' community?
Work4ever
Jan 11, 2008 Suggest Removal
I think that a geriatric care manager can help you intervene with the issues you describe. Here is a link to the association for geriatric care managers. You can locate them by zip code.
Also, the next time your husband says he'll lend a hand, take the opportunity to do something for yourself. This is a stressful role and your health is a priority. Good things come to good people.
http://www.caremanager.org/
Thank you so much for your reply. I have been so stressed out for the last month or so with my dad's health, that I have neglected to take out a portion each day for some "me" time. I know how important this is, yet I have been so focused on my dad's health for the last month or so, that I haven't taken enough time out to enjoy life. I tend to crawl into my shell sometimes when I get too upset for my own good.Once I hire some kind of care manager or even social worker, I will have that person to lean on to guide me the way. Someone to advise me on what to do so I can help my parents without "losing it" all the time.
Cherikee
Jan 24, 2008 Suggest Removal
My father also has Alzheimers and is becoming more and more resentful and stubborn every passing day. I wanted my daughter to move upstairs from him so she could keep an eye on him and the family could feel more at ease knowing that we have a trusted family member to watch over him. He is just not having any of it, he don't want anybody to help take care of him! He can take care of himself and wants us all to just leave him be! My father is still driving his car even though his license has been revoked and he is also hard of hearing. He rarely bathes himself anymore, I can't remember when he last washed himself in the shower, or even a sponge bath out of the sink?What can I do with this angry bitter father of mine without breaking his spirit?
Cherikee, I can really feel for you having a stubborn father like I do. Most of the time when an aide is ready to help my parents shower, they give him a hard time and refuse. I think what you need to do is try to find an aide to come in and try to deal with your dad about bathing and taking care of himself. If it works, great, and if it doesn't, there's nothing else you can do. You cannot argue with your dad about this. I argued plenty with my dad, and it was making me physically ill. Please do not allow that to happen to you. You are only one person and there is just so much you can do. Just do the best you can, without giving up your own life to live. Try to get yourself out of the house as often as you can for your own sanity.
Jan 25, 2008 Suggest Removal
Thank you for the friendly advice. I know that I cannot change my father, whether he has Alzheimers or not, {he was always stubborn}. The only thing I am able to change is how I choose to react and deal with the situations I am dealing with. I am going to take one day at a time, and if that means taking a break from him for a few days... then thats what I will do. I will not risk losing my own sanity. I do have other family members {siblings} who also are trying to help out in this matter. Unfortunately there is alot of information we all have yet to discover and learn about along this difficult journey.
Cherikee, You are going about dealing with your dad just as I am - one day at a time. There have been times I even had to turn off both my phones. Just needed my own time and space. You are fortunate to have your siblings try to help you. I have one sibling who lives far away and never provides the help I ask him for. I was getting myself really depressed and had asked him to take over for awhile. He then called me and emailed me what seemed like every other minute. From that point on, I have come to realize that I have to make all decisions by myself. Very hard to do, but it works best. I have lots of info to discover also.
Hi, I'm new and I need help
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A leaky valve (also called an Incompetent valve) means that a portion of the blood flow moves backwards to the normal flow. If the backward flow is too large, heart failure can result.
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