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Burned out caregivers: How to find respite

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Millions of caregivers throughout our country are putting in long hours, putting up with very difficult circumstances, including difficult aging loved ones, and have little or no relief. If you don’t have much money to spare, how can you get a break? Do you dare give yourself one?

Consider giving yourself the gift of respite, or rest, temporarily, from your caregiving duties. If you are able to manage it financially, many senior living facilities offer short term care for an elder so that family caregivers can take a break, get away, or just have freedom from the responsibility for a bit. Often, the senior living facility will care for your elder for a weekend, or a week,, without further obligation to move in or sign on for any other services. A nice place to stay, meals, socialization and sometimes special events are all made available to the elder. You pay by the day, or weekend, or week, according to how the facility creates respite care for those who do not live full time in the facility.

The same kind of respite care may be available at long term care (nursing care) facilities, and adult day health services, if these are in your area. The cost is often reasonable, though it varies a great deal among states and regions. It is certainly worth asking about. If you are a caregiver, either part time or full time, you deserve a vacation now and then, just as everyone does from any other job. Find a way to take it, and there is no need for guilty feelings.

If you don’t have the money to pay for respite care at a facility, it is possible to apply for a grant. The Alzheimer’s Foundation of America, part of the Alzheimer’s Association, makes a limited number of Family Respite Care Grants available for families who are caring for loved ones with Alzheimer’s disease or a related dementia. There are application deadlines in spring and fall. See www.alzfdn.org for details. Not everyone who applies gets the grant, but it is certainly worth a try.

If you can’t get a grant, or the wait to see if you get it is too long, consider using networks of support that other caregivers are using: church or religious groups, volunteer organizations or family and friends. Arranging in advance for a rest for yourself can be done. You’ll need to think it through, do your research, set up a time on your calendar, and then, do it! Others may not offer to give you a break, but may be very willing to do so if you ask. If you normally get holiday gifts from family, why not ask for the funds to get respite care instead?

While no one can take care of an aging loved one the way you can, others are quite capable of giving you some relief. If your own family is unable or unwilling to give you a rest from your duties, go outside the family in every way possible. This may take some work, but it’s worth the effort. If you need to give yourself an excuse because you feel you “should” be available non-stop for an aging loved one, think about loving yourself enough to allow a rest. A break can recharge your batteries and help you keep going on the journey ahead.


Psychologist Dr. Mikol Davis has a special interest in aging issues, particularly assessing elders’ capacity for making decisions. He has particular expertise in depression, anxiety and addressing conflicts in families. He, along with his wife, Carolyn Rosenblatt, a nurse and lawyer, is the founder of AgingParents.com, a resource for those who are caring for aging loved ones at home or in facilities. They authored “The Boomer’s Guide to Aging Parents,” offering practical solutions to common legal and health care problems caregivers and adult children of aging loved ones face every day. Visit him online at www.agingparents.com.

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Comments (1 to 5 of 11)

onesmrtrn said
Feb 8, 2010

My mom is draining me emotionally and physicially. I am in GREAT need of a break. She is so particular, she will not allow just anyone to sit with her, nor would she leave her home for any reason, especially to give me a break. She has become so dependent on me, she won't allow anyone else to help her. Any suggestions?

goinnutz said
Feb 14, 2010

Wish I had some suggestions. Im kind of in the same boat.
mom refuses to go to respite care and I am with her 24 hrs a day.
I need a break!!!!!!

naheaton said
Feb 14, 2010

Why can't you just TELL your mother that you're bringing in someone to sit with her a few hours a day? I don't understand why that has to have her approval. What is she gonna do, move out?

caregiverslight said
Feb 14, 2010

With all due respect, the posted message is easier said than done for some caregivers. I understand when some caregivers like onesnrtrn and goinnutz choose to respect their loved ones' feelings. I do, too. I know there are respite services out there. I have no intention of forcing my loved one into respite care with a stranger. It's that simple for me, and I don't feel guilty about that, either.

onesmrtrn said
Feb 14, 2010

My mother is also Bipolar and is very hard to deal with at times. She suffers also from "S.A.D.", so not just anyone would have skin "thick enough" to stay. She can say very hurtful and disrespectful things ( to me more than others, but I was raised in that atmosphere). So, naheaton, she cannot just "move out", but can make it very diffucult to find others to help without judging. They are very hard to find. I'm trying to keep an open mind. Last nite, she was on the "poor pityful" me train, and was telling me to just put her in a nursing home, which is easier said than done. In Alabama, she would have to sell her estate and use that money to pay for nursing home first, then her Medicare, Medicaid will pick up. She wants her only grandchild to inherit her home, but looks like that just isn't going to happen.??

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