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Facts about Hospice Care for Caregivers and Their Elderly Parents

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There may come a time during a serious illness when efforts to cure or slow the illness in your elderly parent are no longer working and can even be harmful, rather than helpful. If your parent is seriously ill and facing a poor prognosis, you and your family should know that there's a special type of medical care that can help ensure that the final months of life are as good as they can be. This care is called hospice care, and its goal is to give your parent control, dignity and comfort during their final months of life.

What is Hospice care?

Hospice is a specific type of palliative care, which means it focuses on caring, not curing. It provides pain and symptoms relief, helps your parent and your family plan your care, and guides you through the health care system. While anyone at any stage of their illness can receive palliative care, hospice care is for people who may have six months or less to live. Hospice care provides: 

  • Pain and symptom relief 
  • Bereavement counseling for family members and loved ones 
  • Assistance in organizing financial affairs 
  • Help in navigating the healthcare system

Who provides hospice care?

Hospice care is provided by doctors who are specially trained in hospice and palliative medicine, as well as a team of caregivers, including nurses, social workers, chaplains, physical therapists, dieticians, volunteers and others.

Will a doctor have to recommend hospice care before a patient can be admitted?

Anyone can contact their local hospice provider and request hospice services at any time. The hospice staff will then contact your doctor to determine if hospice is appropriate and work with you to provide care.

When should someone receive hospice care?

Anyone who likely has six months or less to live qualifies for hospice care. However, many people wait until death is imminent – weeks or even days away – before seeking hospice care, missing out on months of helpful care for themselves and their loved ones.

What are the benefits of hospice care?

Hospice care is patient-focused, which means it helps patients manage the stress and burden of a serious illness. Hospice care manages pain and symptoms so patients can focus on being with loved ones and having some control over how they spend their last months. Hospice care also provides services such as respite care and bereavement support to families.

Where is hospice care available?

Hospice care is available nationwide, and is usually provided at home. It can also be provided in the hospital, in an assisted living center, or in a healthcare facility, such as a nursing home.

Does insurance cover hospice care?

Many private insurance plans and health maintenance organizations (HMOs) offer hospice and palliative care benefits. Medicare (mostly for people 65 and older) offers beneficiaries the full scope of hospice benefits including medications for pain and symptom management, doctor visits, counseling, and other hospice services, but does not cover the costs of aggressive treatment measures intended to cure an illness. Medicaid coverage of hospice and palliative care is available for people with limited incomes, and benefits vary by state.

How can a patient find hospice care? If you are interested in hospice care, ask your personal doctor to refer you to a hospice and palliative doctor or hospice organization in your area.

For more information about hospice care, visit www.PalliativeDoctors.org.


The American Academy of Hospice and Palliative Medicine is an organization of 3,800 physicians and other healthcare providers who are dedicated to improving the quality of life of patients facing life-threatening or serious conditions, answers questions about hospice and palliative care. For more information about palliative care, visit www.PalliativeDoctors.org.

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Comments (1 to 3 of 3)

LADYRAINBOW said
Feb 5, 2010

Through the years so many people said Don't call hospice they will kill your mom. NOT! Hospice saved me so much money on supplies. THey shared there knowledge on cargiving, they were supportive, they could reach the doctor faster than I could. and most of all they loved my mother so much. My mom was on hospice for 6 months and she wasn't suppose to live 3 months. They never administered any medication I did as needed. They paid for her monthly meds all of them. They were so wonderful. They cared and gave me so many tips on how to care for my mother to make it easier on me and her. Showed me how to turn her without struggling so much and if I was exhausted they would come help me when I asked. Don't be afraid of hospice when you know your loved one has lived the fullest life possible and needs to be loved and comfortable. You do not have to give them all the pain meds that some people do. You know your loved one better than anyone and you will know when they are in pain or if they are yelling for attention. Listen to your heart and be there for them. Your can ask hospice for all your needs they will help.

naheaton said
Feb 6, 2010

I've seen hospice in action twice in the last two years. Both times they were wonderful caring people, who's only goal was to make the person dying more comfortable and help them any way they could. My mother-in-law kept her head in the sand about her husband's future imminent dying, and we were unable to tell her. Finally it was the hospice nurse, just a day before he died, that asked her if she wanted to know the truth. She said yes, then the nurse told her that my m-i-l's husband had maybe a day or two to live. My m-i-l was SO mad at that woman, that she was beside herself. But it had to be done, and we were too chicken to do it. But because she was told of his imminent death, she and I were there the night he finally took his last breath. If hospice hadn't gotten truthful with her, she would forever kick herself for NOT being with him when he died. It was awful watching his breathing getting more ragged because of the fluid in his lungs, but I am really glad I was with her that night.

SandwichINK said
Feb 6, 2010

Our family has been blessed by hospice twice. First with my dad and later with a close friend. My dad was cared for at home while our friend was already living in a care facility. In both cases, hospice was a wonderful help and we are so appreciative of all involved and of the program itself.

I was interested to learn from this article that families can request hospice if their doctor's haven't already suggested it. I also wanted to share that we discovered that, in some states if not all, if a person is put on hospice, it's often for a set time. However, if they do better than expected and the time period ends, their hospice time can be extended. Be sure to ask your hospice social worker or other staff if that is the case for your family.

And again, a big thank you to everyone involved with hospice.

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