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Family Caregivers Need to Be Fair to Out-of-Area Siblings

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There’s a great deal of angst in the family caregiver world about siblings who don’t help out with the aging parents. Very often, it’s the person who lives closest to the parents who ends up being the primary caregiver. This is kind of a default thing because logistics would make it seem only, well, logical.

However, the adult child living closest to the parents may not be the one who is best suited emotionally, financially or practically, for the job. This person may be a single mother trying desperately to take care of children and provide them with a living by working two low paying jobs. Then she takes on the parents, as they live in the same town. She is, understandably, overwhelmed.

This is when she needs to turn to her siblings for whatever help they can give. If they can’t be present physically, they should help financially, or with bill paying and legal paperwork. They should do something, but often they don’t. Many times, it’s because they just don’t want to be bothered. They assume that the sibling that’s closest can handle it and they don’t have a clue about how much time is involved in the parent care process. And they really don’t care.

But sometimes – yes it happens – sometimes the caregiver martyr syndrome kicks in. Sometimes, the in-town caregiver doesn’t really give the out-of-town siblings a chance. We all know of couples who actually love complaining about the spouse. They’d be devastated if the spouse actually lived up to their expectations, as then there wouldn’t be anything to complain about. Well, this same thing can happen to caregivers. They have an ego investment in caring for the parent. They love the “Honey, one day you’ll have jewels in your crown” comments by the little church ladies. They love the sympathy they get from colleagues.

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Fifthchild said
Aug 19, 2009

I cannot tell you how offended I was by this article. I am the caregiver for my father, but it wasn't always this way. My father was living with another family member who literally threw him out of the house. I was neatly accepted to pick up the ball from that point on. Other family members first stood on one side then the other. At present, there is so much dissention in the family that I don't think it will ever be whole. I suppose you could say there is resentment on both sides. It has gotten extremely terrible. I never wanted this and never asked for it. It was put upon me and yes, now I am protective of the role that I play in my father's life, but to say that I am a martyr is offensive to me. Unless you know the entire dynamics of the family, I find it better to stop pointing fingers since when doing so you only point one back at yourself. I will never do a good enough job in my siblings eyes, but after 12 months of my father living with myself and my husband, I am protective of him and trying to maintain a life that I used to have without interference from the rest of my family. If that sounds like a martyr, then I will wear the label proudly. Until you have been through all of it, you cannot make the comment or put it in print. Be very careful when putting these articles together. We as caregivers are looking for help and support, not name calling. Thank you.

Blannie1 said
Aug 19, 2009

I don't think the author is saying that EVERY caregiver falls into the martyr role but some do. I know I did for quite a long time.

I am the caregiver to my mom and dad and my brother lives 2,000 miles away. I wanted him to be exactly like me and as involved as I was and of course that's not possible. And whatever he tried to do, I'd complain to friends about HOW he did it and how it wasn't up to MY standards or how I would do it. When I was able to watch another caregiver interact with her family and observed how she took every question from them about their mom's care as a challenge, I started to look at my own behavior. I was doing the same thing. Her siblings were asking loving questions. She took offense. If my brother suggested anything, I immediately jumped down his throat over it.

So I stepped back and tried to accept that my brother's relationship with my parents will never be like mine. He's the loser, not me. He'll have suggestions and when they're good ones, I'll implement them. I've relaxed a LOT and guess what? I'm a LOT happier. My fussing and fuming at him was hurting ME, not him.

Every caregiver situation is different and we just have to come at them with all of the grace, humor and love we can. We're all doing the best we can...even our out-of-state siblings.

deefer12 said
Aug 19, 2009

Finally got Mom into 3 days of adult daycare (9 to 3), 6 hours each day. I also have an out of work CNA help me 3 days a week from 3 to 7, so that I can prepare dinner and eat with my husband. My sister thinks I have lots of free time now! 24/7 = 168 hours/week. So if I get 18 hours of daycare time and 12 hours of CNA help, that ONLY leaves me with 138 hours of caring for Mom, and 2 households to cook, clean, and shop for! I guess I should count myself lucky! NOT! I have 6 siblings and major trouble trying to get one of them to even help out on 1 weekend day so that my husband and I can leave the house for a while.
Some of them think I enjoy being in charge, but the rest know how hard I have it. I found I have to be in charge of things. If Mom is not handled the same way by everyone, it throws her off for days, and I am the one that picks up the pieces. Maybe there are a few martyrs out there, but I'm sure most care givers feel the way I do. We don't do it for the praise or the glory. What glory is there in dressing and feeding your parent? How about wet bed linens? Plenty of glory in that! All you care givers out there, hang in there. Don't let this article discourage you. There is enough going on in our lives each day to add to our troubles without articles like this to make us feel bad!

spie said
Aug 19, 2009

I don't think were any real suggestions in this article for involving siblings. My sister live 5 states away from me and my parents. She says she does not have the money to help pay bills. She only comes to visit twice a year for a week. During that time, she will do most of the caretaking but the other 50 weeks of the year are on me. Consequently, I don't really want her opinion on what I am doing.

Fifthchild said
Aug 20, 2009

Yep, I agree. I cannot help that my father now feels completely comfortable with me and not at all comfortable with his other children. I did not want it this way and regardless whether anyone thinks I'm erecting my own statue in my honor - I'm not. I take this responsibility very seriously, but will not subject my father (altzheimers/dementia/or just plain "old") to criticism or lack of patience. As I said, one family member literally threw him out of the house. Okay, said and done... let's move on. Okay, how do we do this? I don't expect everyone to do things "my way", but the barrage of questions/comments are intrusive to me and offensive. This is my home, and I have elected to have my father live with me, not all of my other siblings. I am trying to stay objective because yes, of course, they love him. I know that - what's more he know's that. Typically, and this is what is going on in our family, there is more going on than what anyone wants to admit. Guilt/power/resentment/etc... Family dynamics change so much when we get older. We are all adults which puts us all on the same rung of the ladder. The older one's still view the younger siblings as "the babies", even though we have overcome obstacles and challenges in our own lives. It never changes. Well, I didn't get to choose my birth order, or theirs. I'm only trying to live my life and at present it includes my dad. His needs over shadow mine in every sense of the word. But it is two-way street. Those that live away or choose not to become involved cannot come in at the 11th hour and give their opinion(s). Where have you been? There needs to be 100% respect and support given to the primary caregiver. If not, then as the other children, you take Mom/Dad in - uproot your own life, change your relationship with your spouse - expect your job/boss to understand when something happens... Take all of it. I don't want a medal. I want respect!

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