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Dreams and Past Events: What is Reality for Dementia Patients?

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I called my friend Kay recently to wish her a very happy 86th birthday—and to discretely check on the effectiveness of the dementia medication I encouraged her to take after she finally agreed to see a dementia specialist six months ago. After years of trying to persuade her, I was surprised when she finally consented, saying she was noticing that her memory was really slipping and it was scaring her.

During our hour-long conversation (testing) as we covered politics, religion and the meaning of life, I was delighted to hear Kay sounding much clearer than she’d been in quite a while—indicating the medication was indeed working. But then… suddenly she threw in a zinger. “Oh Jacqueline, I was so excited when we got your message on the answering machine yesterday that you are writing another book—is it a sequel to “Elder Rage”?

“Ummm, no Kay, I didn’t leave a message.”

“Yes, you most certainly did! You said you’d call today to wish me a happy birthday and that you’d tell me all about your new book.”

Darn, and we were doing so well. I finally convinced her that she probably just had a vivid dream as I always call on her birthday, but she started to cry that she feared she was losing her mind. I felt terrible, as maybe I should have just agreed, but then I’d have to lie about writing a new book. I didn’t want to make things worse by telling her she was having delusional thinking (false beliefs which occur with dementia), so I just made light of how our minds can play tricks on us.

Then she whispered that she was also having episodes of déjà vu. “Jacqueline, my family takes me out to places like a new restaurant, and I just feel so strongly that I have already been there, even though they assure me that I haven’t. Do you think that déjà vu is part of this dementia thing I have too?”

“Ohhh, maybe, but I wouldn’t worry about déjà vu and vivid dreams—those types of things start to happen to most of us as we get a little older. Just remember to rely on what your family tells you as the truth—and then just laugh about it with them and enjoy what you are doing, okay?”

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MiaMadre said
Apr 15, 2009

I am always encouraged when I read a story such as this. So many times I have been chastised by my brothers for 'going along with Mom when she thinks I am her sister, or her Mother. They seem to feel that by doing so I am contributing to her confusion. They could not be MORE wrong.

I am sure that playing along with HAPPY recollections, and happier times is much kinder than constantly correcting Mom when she gets confused.

So many times I have found that Mom is most confused when she is hungry, thirsty or even sleepy! Keeping Mom hydraged and her diet low in sodium and rich in protein keeps her blood sugar more 'level' throughout the day and her confusion to a minimum.

Of course there are many times I'm not sure what I am doing is right UNTIL I read others with similar stories such as yours.

KayBe said
Apr 15, 2009

Great Story. My mom is not there yet but I do see the signs coming. I'm glad to hear that it is OK to go along with the story during their episode. Mom does not remember events accurately and I don't try to argue, just never thought of going along for the ride. This caretaking is the hardest thing I have ever encountered, it's nice to know it's OK to escape for a moment during the day just to make mom feel like she's OK. Thanks

Jerome said
Apr 16, 2009

I think it is important to consider that when these episodes are happening, it is a sign that they are working it through, to have a resolution to the event. Be glad they are fighting/struggling to resolve the event. When they are no longer continually coherent, and what they say is music of their own language creation. you will miss working with a language connection. Hopefully they will eat, smile, sing
and you will gain additional benefits. This helps you learn more about yourself, who you are, and what you will do.

determined said
Apr 16, 2009

A great and loving story. My Mom has progress and now I am seeing these signs from time to time. One of my sisters is a nurse and feels I need to correct Mom but everything I have read on Alzheimer's Disease tells you to go along as not to upset her. You can never win the argument anyone so why upset her. Her happiness is my main concern and I have told my sister that she is wrong. Thanks for sharing your story. It helps to know what others are doing to cope.

Genny

just4mymom said
Apr 16, 2009

This was a great story!!! Thank you for sharing. I go thru this 60% of the time with my mom. I find also that is just as easy to go along with whatever story she is teeling, even it is fabricated a little. When you attempt to correct them, it only makes them more aggravated, and the situation worse, because in their mind it is what it is!!! My mom just on last night had an episode that she has not had before since she was diagnosed with "Alzheimers" almost 6 years ago. I was in the computer room, and I heard some moaning off and on, then she yelled out for me. When I went to see about her, she was just shaking tremendously. I was scared, because I had never experienced this, but I didn't let on to her. She was shaking like she was butt naked out in the cold in Siberia!!!!! Not knowing what exactly to do, I just started talking to her, and holding her, so that she could be reassured that I was there, and that nothing was going tohappen to her. She was so scared until she could not even walk to the bathroom. I remember I had those "ATIVAN" tablets from the doctor, so I put one of those under her tongue. We eventually made it back to lying down in bed, and I just laid witrh her, and cuddled her like a baby until her nerves calmed down. I would appreciate any insight into this matter, if anyone has experienced this. I've decided if it happens again, that I will immediately get her in to her Neurologist. "THANKS" family!!!!

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