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Medicaid's 'Cash and Counseling' Allows Pay for Family Caregivers

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Mary, a 74-year-old Florida woman, suffered a stroke. She needed help with bathing, dressing, food shopping, meal preparation, laundry and housekeeping. Her state Medicaid plan covered the cost of a home-health care worker to provide those services, but the local agencies were short-staffed and couldn’t send helpers on the schedule Anna needed.

So her daughter took time off work to care for Mary. Soon after, Mary and her daughter learned about Cash and Counseling, a non-traditional Medicaid program pioneered by New Jersey, Florida and Arkansas with seed grants from the U.S. Department of Health and Human Services, the Administration on Aging and The Robert Wood Johnson Foundation. 

Cash & Counseling participants may use their Medicaid-provided personal assistance budgets to hire their own personal care aides as well as purchase items or services, including home modifications that help them live independently. By redirecting personal assistance funds from agencies to consumers themselves, Cash & Counseling allows people to hire whomever they want to provide their care and decide for themselves if they would rather hire a home health aide to cook for them, or pay a friend or relative to do it. The services paid for by the state are all part of the elder's authorized Medicaid care plan. What's different is that, in many cases, family members and friends chosen by the elder are providing those services instead of an agency worker.

Today, the grants are available in 12 more states — Alabama, Illinois, Iowa, Kentucky, Michigan, Minnesota, New Mexico, Pennsylvania, Rhode Island, Vermont, Washington and West Virginia.

According to the Cash and Counseling website, the program was created because, “family caregivers are the backbone of the long-term care system, providing millions of hours of care every year for no compensation and frequently at great cost to their own emotional health. They're burned out and exhausted from juggling work, family responsibilities, and caregiving. In addition, many caregivers have to reduce their work hours or even give up their jobs to take care of their loved ones. By supporting caregivers, we're helping them hang in longer, and, hopefully, relieving some of their stress. Keep in mind, that even with Cash & Counseling support, family caregivers are typically paid lower-than-average wages and, in most cases, are paid for only a small fraction of the hours of service they provide.“

To apply for the program, elders apply through Medicaid. They are assessed in the same way they would be for traditional agency-provided services. If they choose the Cash and Counseling option, they work with the program’s staff to develop an individual budget and care plan.

To learn more about the Cash and Counseling program, visit the website at www.cashandcounseling.org.

Access the Medicaid website at www.cms.hhs.gov/home/medicaid.asp.

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STACLOVE01 said
Jul 15, 2008

I am having a hard time finding legal documents on how to become a caregiver through the state. My aunt is now taking care of my grandparents and not recieving benefits for it and if I'm not mistaken she should. She left her job so she could give them 100% of her time. If you could help me with this matter it would help me and my family stay a little less stress free.
Thank you and God Bless

brominds said
Jul 24, 2008

I live in South Carolina, and have been caregiver to husband , 24/7, since I quit my job, 4 yrs. ago, to care for him at home. He's 71 yrs. old, paraplegic, whom is bed-ridden, due to severe decubitus ulcer, and now has stage #3 Alzheimers. Our only income is his 637.00 SSI check, per month. We get 147.00 worth of food stamps, that last 2 wks. Our utilities run over 300.00 per month. He has to sleep in an electronic, fluidized, Clinitron Air Bed, 24/7, which must run 24/7, with air condition an electric fan, so the room will remain at a certain tempperature. When I resigned my job, in 2004, half of our income went down the drain, but not the monthly bills, causing a tremendious amount of stress upon the 2 of us. I asked questions of medicaid, as to why isn't there some kind of grant through the Government, that will pay the spouse/cargiver for taking care te spouse, since her job had to be given up? I was told no such thing in South Carolina, because I chose to give up my job, to care for my husband, istead of putting him in some kind of nursing facility. This truly hurt my feelings. I've been married to this man for 40 yrs. 10 months, and am very much in love with him. We've always had each other, and live alone. Everyone who know us, can vouche for the care and love,I give to my husband, even with alzheimers. If medicaid can have a program, called, "CASH and Counciling", in some states, for other family members and friends, why not in all states, and include the spouses, like me? We're truly suffering, because how un-feeling our government is, with its disabled citizens, and spouses/caregivers. I'm open to feedback. minerva

cindy98989 said
Aug 8, 2008

NY does not have this program either. All states should. This was one of the complaints I emailed to Hillary Clinton and Governor Paterson last week. As of yet, I have had no reply except their usual pre-printed email telling me thank you for expressing your concerns, we will get back to you shortly.

Is your husband a veteren Brominds? I know that you can receive some help for certain things from VA Benefits. Whether or not they have a program that will pay you to be a caregiver is probably slim, but you may be able to get financial help with the medical equipment you need and your gas and electric bills. Also, check with your power company and see if they have any type of grants for elderly that need medical equipment that jacks up their utility bills. Here in NY if an elderly person is on Medicaid, foodstamps, welfare they can get a telephone for 1.99 a month as opposed to the 60.00 phone bill everyone else gets. That is through Verizon.

It's worth the effort to check with each of your utility companies and see if they offer any breaks for the elderly. I too am not working right now and taking care of my dad. NY is so money hungry with taxes, they do nothing to help the elderly or anyone taking care of them. I keep telling myself what goes around comes around. They will someday be in the same situation. The only difference is the people that make these decisions to help us are the filthy rich ones, so they wouldn't feel the hardships that we do.
God works in mysterious ways, keep up the faith. Sooner or later we will be noticed and things will get better. I am speaking out to everyone and anyone who will listen about the unfair treatment the elderly must deal with not only from our government but from our healthcare system. Both need a major overhaul!

AgingCareEditor said
Aug 8, 2008

For those of you who live in a state where this program is available, you should talk directly to your Medicaid representative about applying for it.

Access the Medicaid website at www.cms.hhs.gov/home/medicaid.asp

kimintn said
Oct 23, 2008

i dont live in one of those states. i live in tn. are there any programs here? i take care of my brother who has muscular dystrophy and i have two children in school ages 13 and 5. my brother cannot be left alone and he wont let strangers come in to help. please help, kim in tn.

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