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A Caregiver’s Personal Story: Getting Into a Dementia Patient’s Head

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Dad was adamant. He was waiting for his medical degree to come from the University of Minnesota and wondered why it was taking so long. I did what I usually did, and waited a few days to see if this episode of delusionary thinking would pass. It did not. So, I went to my computer and designed a medical degree with my dad’s name on it, scribbled some “signatures” on the bottom, put it in a mailing envelope and brought it to him, in the nursing home, the following day. He was delighted.

I added it to the other awards and degrees hanging on the wall; the entomology “degree,” his legitimate college degree, some other earned awards, an “award” for helping direct Lawrence Welk’s band. The wall was cluttered with the real and the fake, but I knew I would need to find room for more. Dad’s brain would tell him he had earned something and eventually I would need to produce it.

Dad had, indeed, gone to medical school at the University of Minnesota, but that was before World War II. He took some time off to be an archaeologist and then the war broke out. During maneuvers in the Mohave Desert, Dad passed out from the heat. He smacked his head against the baked desert floor and sustained a closed head injury. He was in a coma for months and had to learn to walk and talk again. He succeeded, and stayed in the army until the war ended, but kept Stateside and trained as a sanitarian.

Dad became director of Sanitation for the city of Fargo, meanwhile raising a family and, like so many returning soldiers, he went back to school. He attended school at night and worked during the day.  I remember going to his college graduation. I was 14. Dad continued taking any graduate classes that would help his work or simply because they interested him, and he became very successful in the world of public heath.

As Dad aged, fluid started building up behind the scar tissue in his brain. He had surgery to drain that fluid, but the surgery backfired and he came out of it totally demented – and bonded with a voice in his head we came to call Herman.

That is when reality changed for all of us.

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lzydzymae said
Apr 15, 2008

revans said
May 3, 2008

Thank You. I am totally ashame of myself as a therapist that I did not think of that. My mother thinks that she lives by herslf and has caught the bus tro come over to my house for a visit. She also says that she does not live with me and that she two dogs and must go home at dark to feed them. I often find myself getting upset attempting to bring her back to reality. However, as you said what's real to them is real. Lately, I have being saying that's right and your room is down the hall, let's go to bed. Fortunately, we have one dog that just loves her and follows her every where. So far that has been working. " Validation" is the key.

eva said
Jun 15, 2008

my mom ic confinced she is getting married, she is not but to her it is real. she has everything planned out, she hears music, people that are not there. she is in the hospital in the behavior mental ward. we do not know what the tests will find, but we will do everything we can to help her. it is hard to know that she is slowly slipping away. we really do not know what to do.

MindingOurElders said
Jun 15, 2008

It's extremely sad to have to see this happening to someone you love. Does she have dementia, or is this schizophrenia or another mental health issue? If she is "slowly slipping away," it sounds like she isn't expected to recover. So, in that case, I'd go along with her wedding plans. It sounds like it's the planning she is "into," - not the wedding. You can drag out planning for a long time. If she has Alzheimer's, she may just be stuck back in the time of her life where she was that age and planning her wedding. It's very real to her. You could even get her wedding magazines and such. I guess you'll have to see what the tests show, and go from there. Please check back and update us when you know more.

Take care of yourself, too. I hope you have good support. We know what you are coping with and look forward to hearing from you again. We support each other.

Carol

missygreen said
Jun 17, 2008

I have just recently moved my mom into my home, I am afraid she will never be able to live by herself again. We are going to add on to our house to accomodate her. Are there any kind of funds available to assist in anything like this?

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