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Early Grief and the Long Goodbye: Grieving Parents Before They Are Gone

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Nearly everyone involved in caring for aging loved ones is experiencing grief. Often, however, we’re not aware of this grief. We have a parent who used to be strong and capable begin to ask for a little assistance. No big deal, right? We’re happy to help.

But underneath, often unnoticed, there’s a knot in our hearts. We’re grieving the loss – the loss of function that made our parent need to ask for help. Weren’t they the ones who helped us? Weren’t they the ones in charge?

Generally, these changes are subtle, the grief sneaky. I remember watching my parents age in the normal fashion. I’d occasionally look at them and be startled by the realization that they were aging. But that was all I acknowledged. I never intentionally thought about loss and pain. It dwelled beneath my consciousness.

Then my dad had brain surgery to drain away fluid buildup from a World War II injury. He went into surgery knowing that if he didn’t have it, he would eventually live with terrible confusion. He came out of surgery totally demented. The combination of his age and significant scar tissue, I suppose, was to blame. Whatever the reason, our family was a victim of one of those things that only happens to “other people.”

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Andrea said
Mar 12, 2008

my mom is in the "moderate"stage of alzheimers.she is still at home with my dad.
I know what carol is saying about grief.I already feel it and coming to terms with
the "long good bye".I feel we have already lost her in so many ways,her spirit,her interaction within a group of people,as her daughter,it's a different kind of lose,it's hard to explain but as I am now a wife and mother with little ones,I along with my brothers will assume the role of "parent" in the future.as time goes by,I may be able to express myself and feelings more clearly.

MindingOurElders said
Mar 13, 2008

You both have eloquently expressed what most of us go through. I hear from many who thought they would retire and live a part of their lives as a couple, perhaps traveling, only to find themselves back into caregiving.

Yes, we make our choices out of love. But we have to take time to understand what we are giving up and to deal with that. Otherwise, we may be laying groundwork for deep resentment, and not even be aware of it. Talking it out with those who understand can do wonders.

Thanks so much for commenting.
Carol

Andrea said
Mar 13, 2008

6yrs ago,my mother in law passed away from cancer,it was horrible to watch her suffer,and just this past xmas eve,my father in law passed away of a stroke.
we were always there for my husbands parents.we have already discussed my involvement in the care of my mom.I live out of town,so I can't be there all the time,but my husband is so loving and caring and he knows that there will be times when I've got to be there for my parents.It is very important to have a wonderful spouse.As I mentioned before,I have two little ones,so I don't ever want to take away valuable time from them either.It is so difficult to watch your parents age and go thru tramatic life altering events such as alzheimers.

AgingCareEditor said
Mar 13, 2008

Andrea, you're right: having the support of a wonderful spouse is a blessing. His love and understanding will help get you through the tough times (as I'm yours helped him when his parents were ill)

MindingOurElders said
Mar 13, 2008

Andrea, I have to second that. A supportive spouse can make all the difference. You supported your husband and he supports you. Watch for our "sandwich generation" article, as you certainly fit into that demographic.

Take care,
Carol

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