The time at the end of life is different for each person. Each individual has unique needs for information and support. The patient's and family's questions and concerns about the end of life should be discussed with the health care team as they arise.
The following information can help answer some of the questions that many patients, their family members, and caregivers have about the end of life.
How long is the patient expected to live?
Patients and their family members often want to know how long a person is expected to live. This is a hard question to answer. Factors such as where the cancer is located and whether the patient has other illnesses can affect what will happen. Although doctors may be able to make an estimate based on what they know about the patient, they might be hesitant to do so. Doctors may be concerned about over- or under-estimating the patient's life span. They also might be fearful of instilling false hope or destroying a person's hope.
When caring for the patient at home, when should the caregiver call for professional help?
When caring for a patient at home, there may be times when the caregiver needs assistance from the patient's health care team. A caregiver can contact the patient's doctor or nurse for help in any of the following situations:
What are some ways that caregivers can provide emotional comfort to the patient?
Everyone has different needs, but some emotions are common to most dying patients. These include fear of abandonment and fear of being a burden. They also have concerns about loss of dignity and loss of control. Some ways caregivers can provide comfort are as follows:
JSCHNEID444
Mar 13, 2008 Suggest Removal
My parents are 85 and 90. They both live at an assisted living, which is very costly, plus they pay for 24/7 care each week by a live-in aide. I spoke to an elder care attorney 2 weeks ago asking for his advice about eventually trying to get my parents on Medicaid and into a nursing home when/if their needs change. He told me the first thing for me to do is prepay funerals for each of them. I know if I tell my Dad what I am doing, he will fight me all the way, and I can't fight with him anymore as it makes me very sick - emotionally, physically and depressed.My brother who lives far away from me and my parents is very, very religious and does not believe in prepaying funerals for our parents, but I do and I am the power of attorney. I am getting very nervous about doing this, but I know I would be doing the right thing at the right time. If I ever had to do this last minute, I know I would literally fall apart and may not be able to cope.Does anyone have any advice for me in this area. I would appreciate hearing from any of you. Thanks.
brending62
Apr 27, 2008 Suggest Removal
You say that your brother is very religious and does not believe in prepaying for funerals. Is that comment derived from earlier conversations with your brother or are you assuming because of his religion (whatever it may be) he will be against it?Either way, I think that you would be wise to preplan and prepay. My Grandparents have done this and it helped immensely when my Grandmother recently passed away unexpectedly. My Grandfather is the one with Alzhiemer's Disease and everyone expected him to go first and Grandma just suddenly got ill and passed away. If you have Power of Attorney, you don't need permission from anyone and you probably already know that. Your parents gave you this job because they knew you would make decisions that would be in their best interest. That is not to say that they would always agree with them. My Uncle who is POA for my grandparents found that out when he had to take my Grandmothers car from her.....Don't fight with your Dad, just do what you think needs to be done without feeling guilty about it. Remember, it was their decision to make you their POA and not your brother. There must have been a reason. Good Luck!
May 1, 2008 Suggest Removal
Thanks so much for your reply. Everything you say is true and my plans are in the works. I found a funeral home which has a funeral director I can easily talk to, and by next week we will give him my parents' prepayment. I haven't discussed any of this with my parents because I don't want to bring them down. It will costs thousands of dollars which in the long run will help them go from Medicare to Medicaid.
I am about to hire a certified financial planner to help out with my parents medicaid planning and who would have a really good sense of what's going on with my dad's money. Once I have him on board, I will feel so much better than before!
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