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One Caregiver's Holiday Story

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My kids, as they grew up, were fortunate to have their grandparents nearby. Along with memories of fun-loving grandparents from their early childhood, however, they remember the surgically induced dementia of one beloved grandfather. They remember the strokes of another. They remember the divided holidays, as we shuttled back and forth between the nursing home, for those we couldn't transport, and our house, for those who could come to the house. Unfortunately, I’m sure they also remember their mother’s frantic struggle to meet the expectations of every generation, with only limited success.

Right after Thanksgiving, each year, I would decorate my mother’s apartment – Dad was by then in the nursing home. After Mom joined him in the same nursing home (different private room) I would decorate her room, my dad’s room and my mother-in-law’s room. Then, of course, I’d decorate our home. Then the planning would start as to how to handle all the generations, meeting everyone’s expectations for the holidays.

The guilt about taking so much time from the kids ate at me. The guilt about my mother not having the Christmas celebration she so coveted, ate at me.  My mother-in-law seemed not to care, yet I knew underneath the dementia, she did. The frustration of trying to “celebrate” the holidays when my dad no longer knew what we were trying to do, made me want to throw in the towel. Yet, to ignore the holidays seemed wrong. So onward I marched, trying to make the holidays sing for people who couldn’t hear.

The squeeze of generations, and the far reaching needs of each, can leave little time for the caregiver to think of his or her own needs. Indeed, it seems as if trying to find time away from the logistics of the season – time to sit quietly and feel what we, the caregivers need – is just another task. So, we smash down our feelings, and keep on doing. We keep directing the orchestra. A little more brass here. A little more percussion there. Arrange the holiday song so everyone has a part and everyone finds it pleasing.

Unfortunately, the maestro is on the verge of collapse. It takes energy to plaster on a smile and say “Happy Holidays,” as people in the grocery store greet you. It takes energy to say, “Yes, I got all the rooms at the nursing home decorated with their favorite holiday items and it looks great!” (Smile. Keep smiling). Then, when you have a moment, you sit back and realize you don’t feel like smiling. You realize that no one got enough of your time. The elders feel like you didn’t spend enough time with them (or they forgot you were there at all). The kids wanted you at home for the day, but you had to run to the nursing home – yes you had to. The elders deserved that.

So, the maestro failed at perfection. All of that energy directed toward creating a perfect holiday didn’t produce the perfect results for everyone. Therefore, in your mind, you failed. Guilt swallows you, the caregiver, whole. You can do that. Or, you can drop the fantasy of perfection and lose the guilt.

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DWYC said
Nov 23, 2007

Thank you so much for this absolutely stellar article by Carol Bradley Bursack. I care for my adult child with CP, Seizures, and severe MR in my own home. On Thanksgiving day I went to Carol’s own blog and was led to your site to read the article. I identified completely, and was very uplifted with this honest but hopeful Holiday perspective. What a boost for caregivers such as myself or any others in this modern, fast moving world who value humanity over glitter. I’ve never met Carol, but have followed her columns, blog, and have read her wonderful book. She is a gifted writer and more so, as in this article, she shares deeply personal experiences which indirectly reveal her life of giving to others, she is certainly (in my book) right up there with any other domestic living hero. I am writing to thank you for the column, and also because I really think this article and her work in general needs to be much more widely shared. I’m going to try to get the interest of national network news companies. I couldn’t find direct e-mail addresses to forward this article and wonder if you would have any thoughts on this?
Thank you very much.

Publisher said
Nov 26, 2007

We at Agingcare.com also think very highly of Carol Bursack's knowledge and writing skills. She does an incredible job of bringing the issues to life and demonstrating a deep understanding of caregiving. Kudos to Carol for such a wonderful article.

Though we do not have the direct email addresses of specific contacts you are seeking, I would suggest contacting the editors of these news outlets by phone. Generally speaking you can call headquarters and find out where this information can be sent.


MindingOurElders said
Nov 26, 2007

195Austin said
Sep 2, 2008

I am so glad I will have this site this comming holiday season the last two holiday seasons or maybe even three my husband has been in rehab and it was a relief not to have to deal with all the comerialization of the holidays but spent a lot of time with my church family. One thing I plan on doing this year is to do less shopping and when possible instead of wrapping gifts I plan to put gifts in the cloth bags you buy in the food stores, and I hope the other caregivers will share their shortcuts. The one thing this year I will do if alone-due to the husbands treatment of me and the kids being busy with their spouses and children I will make plans even if it is going to Burger King and not sit alone and feel sorry for myself. This site is the best gift a caregiver can receive any day of the year-so matter what I will not be alone this holiday season

serenity81 said
Nov 21, 2008

I'm so glad i found this sight. I'm dreading the up coming Holidays My father has Damita and lives in assistant living however he still remembers enough that he knows what is going on but not really so we are going to my sister house for dinner that's were he lived up until last year he always want to go back there and he CAN'T BUT it just make s the holidays very hard.

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