What To Do When You're Unhappy with Your Loved One's Care

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For many of caregivers, even the thought of people other than family members providing daily care for our elders is difficult – even painful. Yet, the reality is that often there are too many demands on caregivers' time to allow them to give full-time care to an aging or ill parent. That means caregivers must sometimes turn to others for help.

In my family, there were multiple elders—my father, uncle, mother and mother-in-law-- in need of varying levels of care at the same time I had to care for young children. Eventually, they all went to the same facility near my home and I became a daily visitor and part of the care team.

While not every certified nursing assistant (CNA), nurse or even housekeeper was able to answer my loved ones' every need immediately, overall, these people were exceptional. When I did have a concern, the caregivers and I were always able to address the problem in a satisfactory manner.

Not everyone is so fortunate. I receive e-mails from readers on a regular basis who have legitimate complaints about their elders' in-home, assisted living or nursing home care. While some problems aren't very significant, others require action. Here are some things to consider if you are unhappy with your loved one's care:

Be realistic. Care centers are generally too understaffed to give one-on-one care, unless you are paying for a private duty nurse. Don't expect your loved one's call light to be answered immediately every time.

If a hands-on CNA seems neglectful, speak up. Many times what seems neglectful is a simple misunderstanding. Because these front-line workers often have many people to look after, they may require a little time to get to know your relative. Talk directly with the caregiver about your feelings to see if the situation can be resolved in a quick and friendly manner.

If the CNA seems uncooperative or defensive, talk to a supervisor. In a senior living facility, a floor nurse or social worker should listen to your concerns and try to remedy the situation--or at the very least, explain why it occurred. If you are hiring in-home care, call the person who schedules the caregiving.

If talking to the supervisor doesn't help, go to the administrator. In the case of in-home care, talk with the agency or franchise owner.

If you still don't get any satisfaction, call your local ombudsman. This person can be found on your state website under "aging," or on the National Long-Term Care Ombudsman Resource Center at Ltcombudsman.org. Ombudsmen are well versed in settling problems between care facilities and care receivers or their families. They also can help with neglect issues, such as bedsores or improper feeding.

If you are still not satisfied, consider moving the elder to a different home. This is a drastic step, but sometimes necessary. Your ombudsman can be helpful with this process.

If you see hitting or signs of physical abuse, call the police. If there is immediate danger, your response needs to match the seriousness of the situation. Remember, you are your vulnerable elder's advocate.

 
 

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Ineedanswers

Give a Hug

Aug 17, 2011

My 89 year old Mother has moderate dementia. She got pneumonia in Feb,2011 and after hospitalization went to a Nursing Home. She wanted to go home, of course but was very weak. Her husband and I visited often but the home was extremely hot (usually 81degrees or above), non-stimulating the CNA's were (I believe) insensitive to her distress and anger. She was being given Seraquil, Lorazepam and had a Fentanyl Patch in addition to her normal meds. When I asked the Nurses to see medication records they asked 'WHY?' She was being overmedicated (they said they believed she had pain). I asked how her behavior was and wanted to see charting and the Nurse told me to go ask the CNA's (who were in and out of rooms working). My mother's husband was with me all the time. After an extrememely aggressive evening they called the police and she was taken to a State run Mental Health Institution.We stressed that we felt the weaning off the many psychotropic meds she had been on was the most important issue next to physical therapy to get her up and walking. Every time we visited we were only allowed one hour and it was always in a locked conference room with no access or opportunity for personal care (no water, no amenitie) and she was confined to a reclining wooden chair. Because my stepfather had not gotten Medical Power of Attorney (as I pushed him to do) we had to go through numerous meetings and court sessions to get him Guardianship. She was eventually released to a county home into a 'locked facility'. She was placed there so they could monitor her behavior for aggression. The very first day she was there I discoverd terrible pressure sores on both heels. There was no mention of these sores in nurses notes that transferred over, no care plan addressing them. We consulted with an Attorney who advised getting her medical records. We did, there was no awarenes of pressure sores, yet the attorney declined involvement because "It's very difficult to bring a suit against the State"...We contacted the State Health Department (providing pictures) and they replied that the institution is Medicare certified and our complaint did not substantiate abuse or their involvement. Meanwhile, my mother suffered horrible pain and the setback to physical therapy was immeasurable. We just want a reprimand put into all those staff personnel files who worked with her and 'took care' of her ADL's.I worked in a Nursing home for 6 years when I was younger and I know that neglect is tantamount to abuse. What do we need to do to make this happen? Is a State Mental Health Facility immune to complaints? In my estimation this is criminal! My poor mother! Her heels are almost well and she is starting to have walker therapy again,she has been moved to an unlocked facility and where she is is very nice. But months and moths of this have taken their toll on her. I am ready to go the the Newspaper, but I don't deserve a lawsuit against me for what would be perceived as 'false slander'. This happened...they have no record of it, but it happened! These people are responsible and it should haunt their careers.
Please...any suggestions?

 
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