Making Daily Tasks Simpler for a Person with Parkinson's Disease

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Many aspects of daily life that may seem simple become come increasingly difficult for someone suffering from the advances of Parkinson's disease.

For example, baths become increasingly difficult and showers are usually preferred. Some people with Parkinson's eventually develop dementia, or confusion, and the sound as well as the feel of running water may sometimes frighten them. When bathing, give the person time to adapt to the situation and to understand what is happening. Start with less sensitive areas of the body such as the feet and hands, and then assist with washing as needed.

Something as simple as brushing the teeth may become a frustrating endeavor for someone who shakes badly. People with Parkinson's often suffer not only from tooth decay, but bone and gum disease. Adaptive handles for toothbrushes, hairbrushes, and combs are available from medical suppliers, as are special cups and glasses that make them easier to hang on to.

Dressing

Dressing someone suffering from Parkinson's may take an increasing amount of time as motor skills and strength decreases. In addition, stiffness or pain may often make dressing a dreaded task. Whenever possible, replace buttons or zippers with Velcro tabs.  Loose fitting clothing is easier and more comfortable to get into and out of. One of the most important things for a caregiver to remember when dressing someone is to go slow and take plenty of time.

Mobility

A very common symptom of Parkinson's is "freezing." Freezing means extreme rigidity and almost complete loss of movement. When walking or moving, some people with Parkinson's may feel like they're glued to the surface of the floor. When this happens, it is suggested that the caregiver ask their loved one to pretend that they are stepping over an object on the floor or even encourage them to rock very slowly and gently from side to side in order to help them get moving again.

 
 

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cheryln93

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Jul 26, 2008

My Husbands Uncle has come to live with us,he has been here only 2 days and has had 4, or 5 accendents with dirrea..Is there somthing I can do to help with this problem..Like diet.I took away his stool softner for he was taking it 2x a day.Also he is wetting his undeware at least twice a day.Please help me with this so I can stay a good care giver.. Sincerly,
cheryln93

 
 

Paulrit1

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Nov 22, 2008

I have been just diagnosed with Parkinson's Disease age 58 and have cramps in my legs and hands very bad

 
 

mrobe68

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Feb 17, 2010

I'm looking to chat with anyone caring for their parent with parkinson's in their home... just feeling angry at times and resentful, want some ideas from others

 
 

giles167

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Apr 6, 2010

Hi mrobe68, I know exactly what you're talking about. I've been a caregiver for my hubby's grandmother for over a yr now and we moved her in with us about 7 months ago. We have been dealing with full-blown dementia for about 2 months now and wow, we were going crazy! She was just diagnosed with Parkinsons today. I found that researching really helps. Once I realized that what she's doing is actually pretty "normal" for someone with her condition, it made it alot easier to accept. And I also know what to possibly expect in the future. I used to take all her nastyness and paranoia so personal but I don't anymore. I now realize that it's the disease that's acting this way and treating me this way, not grandma. I used to think that she she was just being stubborn and thinking in the back of my mind that she was trying to be mean or "push my buttons". Now I realize that she can't help it. It's not her fault. I can now see her as the victim instead of myself. I've also realized that there are alot of really fun, really awesome caregivers on this site who are going through the exact same types of things that you and I are. That really helps me. I love the link "Grossed Out? Need to Vent?" under the recent disscussions section near the top right of this page. A great place to go and unwind or vent at the end of the day. I have had many a great laugh reading some of the posts on there. You're not alone. Give it a try and see if it helps. Hang in there.

 
 

hollymm

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May 13, 2010

mrobe68: Hi, my mother has Parkinson's and now also dementia, and my dad has dementia. They both moved in with me and my family last August.
Mom has had Parkinson's for about 20 years. She lived with Parkinson's for a long time with no major inconveniences, except unable to walk for long periods or without a walker or assistance. It's only been in the last 5 years there has been a noted decline. Some of it is due to her age (she's 72); however she would probably be golfing if she hadn't contracted Parkinson's years ago. It was the only ailment she had until the dementia set in recently.
I returned to work a couple of months ago because I couldn't stand the 24 hour nightmare at home. I've hired a couple of people to come in while I'm away, but the mornings/evening, weekends it's me.
I would also like to chat with others who are living with and/or providing care for someone with Parkinson's.

 
 

sugbmom

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Jun 2, 2010

My father has Parkinson's as well as other health issues and still lives at home. My mother passed away 2 years ago and he is still depressed. I have an older brother that is meantally disabled (still functions well though) and lives with my father as well as a young irresponsible nephew. My father refuses to "kick them out". I am the youngest of 6 children (one deceased) and have become my father's primary caregiver. I take care of keeping his medicines where he will take them correctly (10 prescriptions) he worries over them constantly - calling me and telling me I forgot to include something which is never true. I go to all of his doctor appts. with him, keep his house clean to the best of my ability, grocery shop, cook, and listen. If he has to go to the hospital I am there pretty much the whole stay and recently had to take a week off work to help while he recovered at home. I work full-time and have a house of my own - my husband does help as much as he can but he works too. I am so stressed out and trying so hard not to take it out on everyone around me. I have never posted anything like this before and I am probably rambling but I need to do something. Thanks for listening.

 
 

1967jim

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Jul 26, 2011

im james and i have had parkinson for 20 yrs. i now need 24 hr care, because i cant always get out of bed to goto the bath room or pull my self up off the comode or get back in bed. yet doctors wont tell medicare,medicaid or nursing homes that i needsuch care. ihave no other help available.please anyone,help

 
 

Dane

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Aug 27, 2011

Hi Parkinsons caregivers. I married my husband 8 years ago after knowing him for a couple months. He was 69 and I 68.. Looking back I'm sure he had the on set of P.D. back then. Things gradually got worse. He is at a point where he doesn't drive, cut grass, fix anything around the house, pull weeds etc. All he seems to want to do is , take his pills (obsessed) eat and not do much of anything. I don't think he is incapable of doing a lot of things if he takes his time but I don't think he wants to. Like; pull weeds, clean up a mess.. He use to fix his own breakfast now he always asks me, "will this hurt me if I eat it" He asks constantly, day after day. Is it time to take my pills, over and over. Worse than a little kid obsessed with something. I'm sure he gets frustrated. If we had had years of being together before this happened I think it would be easier to be more patient. I never know if his stubborness is due to the disease or if he is just being a cranky old poop. When I am cranky with him I always feel terrible afterwards, thinking, "why can't I be more patient". I keep thinking, "I know it will constantly get worse" am I going to be able to handle what comes? What am I going to do if I find I can't handle it anymore. I know I put all kinds of guilt trips on myself. I constantly find myself getting aggitated with him when he expects me to do little things for him that I feel he can do for himself.
Like you gals, I don't know what to expect next. I do know for a fact that it will never get better. He stubbed his toe, fell and cracked a hip. That was a long recovery. Thank goodness for home health aids. They taught us how to do a lot of things..Like a safe way to take a shower. Physical therapy taught him how to get out of a chair. (That really helped) He has had P.T. sessions a couple of different times and they have really helped. Even though he does his exercises at home they don't seem to help as much as when he does them at the center. Maybe just getting out of the house is good for him. One thing I have started to do that seems to help me is distance myself mentally from him. When he wants me to do little things for him I think to myself, "If a neighbor or friend asked me to do this, would I do it for them. My answer to myself is YES I definately would. Without hesitation,..So do it for him and don't resent it.
He quit driving a year after we got married so I have to take him where ever and when ever he wants to go somewhere. I feel overwhelmed.
He falls asleep quite often. Especially at the kitchen table. He will drool everytime he falls asleep. This is so sad. Always has a lot of excess syliva. If he sucks on a piece of hard candy this helps him swallow more, therefore less slyvia. I have bought him slip on clothes with elastic waistbands and shoes with velcroe closures. Just make sure the velcroe is long enough to keep the shoe closed securely. Buttons are a real problem. Don't expect them to be able to button anything. Well,,,I'm getting of hearing myself talk so I will close. Please ask me any questions you want. I'm not sure I will be able to answer them but I will sure try. Good Luck to all you caregivers. Love, Dane

 
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