Alzheimer's and Dementia Complicate Elderly Love

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This could be a nursing home or assisted living administrator's ongoing nightmare. On one hand, we want elders to have the best quality of life they can have, whether they live at home, in assisted living or a nursing home. Often – hopefully – that includes friends. And some of those friends may be of the opposite sex.

Many of these elders choose an assisted living center so they can be in comfortable surroundings with services provided and lots of social activity. The family thinks this is terrific. But when Grandpa announces that he and his friend Millie are in love and want to get married, the response is generally one of stunned silence. Can't you just be friends? You know – play cards and go to the movies together? What do you mean you want to get married?

A tougher situation is when there is uncertainty about the elder's mental stability. A friend of mine tells me his dad, who has Alzheimer's disease, used to go into a woman's room at the nursing home, and take off his clothes, clearly intending to get into bed with the woman. He's not sure that the man had any other intentions, but no one at the home wanted to find out. And what about the woman? Was she a willing participant? Did she want him there? And if she did, is she competent to decide?

The sticky question is this: When do people lose their right to chose what they do sexually? Yes, with dementia there are times when sexual "acting out" is evident in public and the person has to be distracted and sometimes removed from the situation. It can be self-stimulation or undressing in public. But what about love?  What about consensual sex?

In November 2007, retired Supreme Court Justice Sandra Day O'Connor bravely, and with great love, gave her public blessing to a romance between her husband, whose Alzheimer's no longer allowed him to recognize her, and a woman in the nursing home where they both lived.

Of course, sex wasn't mentioned in the press coverage, and it's none of our business if this was part of the new romance. But what Justice O'Connor has gone through is not unusual with spouses who have mates with advanced dementia. If two consenting people, each with dementia, fall in love, where do staff step in and decide what is proper and what is not? When does the hospital administrator start to worry that one of the families will sue because they will claim their parent was an unwilling partner, or that the parent is not in safe surroundings?

 
 

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CKWilde

Give a Hug

Aug 17, 2008

This is a hugely difficult topic most of us younger family members don't want to address. When my Dad (who had mild dementia at the time) announced he was getting married to a woman he met just four months prior, our family was split.

My sister was sure that this woman was just taking advantage of my father. She was closer to them and was seeing subtle clues.

In my phone calls with my father, I heard that he was lonely. Companionship seemed like a good thing.

My Dad thought that this new relationship would be just like his 45 year marriage to our Mom. He had no clue that his intended had major emotional problems. After the wedding, she would claw at his face whenever he wouldn't agree with her.

The divorce was messy because they did not have a prenuptial agreement.

It's not just the right to have a loving relationship with another human. Often, the legal and financial implications are thorny, too.

CK Wilde

 
 

MrEldercare

Give a Hug

Aug 18, 2008

Ms. Bursack and Ms. Wilde each raise valid points. Sex between residents in nursing homes as been an issue for years. Over ten years ago at a dinner with a dozen directors of nursing and nursing home social workers the topic came up.

At first I thought "So what? We're talking 80 year olds. They can't get pregnant and the companionship might be beneficial." But I was naive.

The moral, safety and legal questions are substantial. The financial issues can be, too. The situation with Ms. Wilde's Dad proves the point. Unfortunately, it occurs more frequently than most of us realize. Like so many other elder care issues the family bears the emotional burden in silence. They simply don't know who to turn to for direction and support.

The need for close human companionship is a lifelong need. For many elders, the same is true of their sex drive. Seniors in nursing home and assisted living will continue to seek to satisfy those drives.

Emotions will be high on this topic. I'm very much interested in the legal and financial lines that get drawn. Should make for some fascinating discussions.
Thanks, Ms. Bursack for mentioning it.

Martin Sabel
Mr. Eldercare

 
 

tinkley1984

Give a Hug

Sep 30, 2009

I think that it should be allowed for them to do whatever they please who's business is it to tell grown adult people if or how they should show affection.

 
 

lcs

Give a Hug

Dec 30, 2009

I don't want to think about the financial complications and arguments that could develop between families if one family's 90 something year old dad marries another family's 90 something year old mom. And we caregivers think there are enough problems already!!! Cheer up - nothing is so bad that it can't get worse!!! :-)

 
 

milaferg

Give a Hug

Feb 6, 2011

Just mild kissing, hugging, holding hands while they are setting or walking and talking just a companionship. If they say we will get married. JUst make arrangement with two family, pretend they will married. That's all not really married. And they missed their wife nor husband that's all and they thought they still young at heart. Don't worry at least keep on eye with them.

 
 

richgree

Give a Hug

Dec 29, 2011

I'm 54 y/o and living in a nursing home...many times it has crossed my mind but instead I always end up masterbating in the end..Most of the women here are old enough to be my mother but then again there are a few (Very few) that are around my age..But thier minds are still thinking "Why am I not in school"? So here I am at a catch 22.. The Nursing staff I'm gonna guess 99% if not all are married and I in no way wanta get involved in that sorta situation. All I can do is sorta grin and bear it... Sex in my eyes is a has been altogether...

 
  •  Comments 1 to 6 of 6 

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