Good Hospice Care Adjusts Based on How A Patient is Declining

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These peaceful death experiences made me a hospice cheerleader. I'd always thought it was a good program and knew that I would want such care if I were in a circumstance where I was terminal, but in pain. However, witnessing the strong, caring, efficient yet peaceful way my local hospice cared for my parents was enough to burn the hospice message into my soul. Their motto is "No one needs to die in pain." To make that possible is a noble mission.

Since that time, I've praised hospice organizations and encouraged people to seek them out. I still do. However, after reading a post on the agingcare.com forum about a woman whose mother was dying, and totally unresponsive, being spoon fed "because it was comforting," I asked the woman if she had considered hospice care for her mom. Another forum participant asked the same question. The answer? She was under hospice care!

This really set me back. An unconscious person who is dying is a person whose organs are shutting down. To force food down their throat is, in my mind, torture not comfort. A good hospice will watch the person carefully. My parents ate better under hospice care than they had before because they were out of pain. But as their physical state deteriorated and their organs, one by one, became useless, the diet was changed in accordance to what their bodies could use.

Eventually, the stomach and bowels were no longer functioning and food couldn't be digested. They slowly got so food was not wanted by the body. They were peaceful without it. There was no hunger because they could not process food nor could their bodies use it. Hospice followed them through the process, monitored them the whole time and appropriate measures were taken for their comfort, as needed.

 
 

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Want2danse

Give a Hug

Oct 14, 2009

Why does it take being placed on "hospice care" to get a physician to agree to address an elder's pain? This is SO frustrating to me and needs to be changed !

Shelley Webb R.N.

 
 

When my wife enter a hospice facility for pain management, she could converse, walk short distances with a walker, bath herself with a wash cloth, fed herself, sit up, watch TV, sit in a chair, look at a newspaper, etc. With a little help, she could take care of her basic needs. A few hours after entering a hospice facility, hospice managed to turn her into a bedridden zombie that can no longer do any of these things. Since she has been here, hospice has fed almost nothing her nothing and has given her little to drink. Actually, they almost immediately put her in a condition where she could not eat and could only occasionally drink small amounts. Of coarse they blame this rapid, almost instantaneous, decline on her. Hospice claimed that it was completely innocent of this immediate decline. After I complained, hospice reduced the medication, so now my wife can tell someone that she is thirsty, hungry, or in pain. Unfortunately, hospice had weaken her so much that she remains an invalid. Hospice’s policy seems to be to get the patient to the morgue as quickly as possible. It seems to be practicing a form of covert euthanasia. I am convinced that hospice has taken days if not weeks off my wife's life. Don’t let hospice get its hands on anyone you love — especially at one of its facilities.

 
 

When my wife enter a hospice facility for pain management, she could converse, walk short distances with a walker, bath herself with a wash cloth, fed herself, sit up, watch TV, sit in a chair, look at a newspaper, etc. With a little help, she could take care of her basic needs. A few hours after entering a hospice facility, hospice managed to turn her into a bedridden zombie that can no longer do any of these things. Since she has been here, hospice has fed almost nothing her nothing and has given her little to drink. Actually, they almost immediately put her in a condition where she could not eat and could only occasionally drink small amounts. Of coarse they blame this rapid, almost instantaneous, decline on her. Hospice claimed that it was completely innocent of this immediate decline. After I complained, hospice reduced the medication, so now my wife can tell someone that she is thirsty, hungry, or in pain. Unfortunately, hospice had weaken her so much that she remains an invalid. Hospice’s policy seems to be to get the patient to the morgue as quickly as possible. It seems to be practicing a form of covert euthanasia. I am convinced that hospice has taken days if not weeks off my wife's life. Don’t let hospice get its hands on anyone you love — especially at one of its facilities.

 
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