Dementia and Hallucinations

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"Midsummer's Nightmare at the Alamo"

Late one night my father leaned over my bed, softly rocking me back and forth, and waking me up at four o'clock in the morning. "Are those two guys still here?" he whispered.

"Huh? Oh, Dad, I think you've been dreaming. I'm sure there's no one else in the house." He looked so lost so I got up to walk him back to their bedroom, just as he had walked me back to mine after I had seen the Bogeyman so many years before.

"Yes they were! They were sitting with me right there at the kitchen table and I even gave one of them a cookie—see for yourself."

"Oh, I think you probably just had a really vivid dream. I know they can seem so real sometimes, huh?" I said as I put my arm around him. "So then… what did they look like?" I asked, practicing my psychoanalysis.

"Well, one had on a coons-skin hat!" he said, surprising himself.

"You mean like Davy Crockett?" I was thinking that I'd check the TV Guide in the morning and see if ol' Davy had been on the tube.

"Yeah, and the other guy was from the government—maybe even the FBI!"

"Oh-oh, not J. Edgar Hoover in drag I hope."

"No… I'm not sure who he was or what he wanted."

I was diagnosing: Okay, he's contrasting the free-spirited Davy with an authority figure. It's obvious that he's in emotional conflict with a deep-seated desire for… Thank you, Dr. Freudeline.

"Well, let's go see if Mom saw them. She'll tell us if they were real or if you just had a vivid dream." We walked into their bedroom and when I turned on the light he got very excited.

"There! There's one of those guys right there," he said, pointing to Mom in their bed, who's looking at him, arms crossed, shaking her head, "tisk-ing" up a storm in complete disbelief.

"Are you sure about that? Let's get a little closer so you can see who it is better," I said as I led him over to Mom's side of the bed.

"Oh, that's no guy, that's my wife. Well then… where'd that guy go?"

I thought I'd die when Mom piped up indignantly, "Well… he most certainly isn't in here with me!"

"Mommy, there were two guys right here - I know what I saw."

She rolled her eyes. "Next he'll be telling us he saw Harvey with the Easter Bunny." I put him to bed, kissed him goodnight and tried to calm his fears. He held onto me like a frightened child, begging me to believe him with such a tortured look, I couldn't bear to leave him.

Instant replay: I'm nine—my new white Persian cat had gotten out and I was so afraid something would happen to him. As Dad leaned over my bed at midnight, I held onto him and begged him to let me go look for my cat. After hearing my case, I was so grateful when he said we could go look for him. I remember Mom saying, "Oh, for heaven sakes you two, it's dark outside, you can't find him. He'll come home when he's good and ready." Dad whispered to me that we'd go take a look anyway, and that Mom just didn't understand how important it was to me. He bundled me up, gave me a flashlight, and we went outside waking up all the neighbors calling, "Cindy, come here, Cindy!" (We thought Cindy was a girl when we first got him. We had to officially change his name to "Cinderfella" for formal affairs.)

Dad said, "I've got an idea. Let's open the kitchen window and turn on the electric can opener like we're opening him a can of food. Maybe he'll hear it and come home to eat." Wow, what a great idea—my daddy was a genius. I'm sure the cat was evaluating. Let's see: sex? … food? … sex? … food? Hmmm. Finally, we saw him take a big leap over the fence as he came running home and I was so overjoyed that my cat was safe. We quickly locked the doors together and I saw my dad's face beaming that I was so grateful to him. He was my hero.

It had been many years since I remembered that feeling of being so relieved that he had believed me. Now it was like it was yesterday. The tables were now turned as I leaned over my father's bed and the love in my heart overflowed. "Okay then, Dad, let's get up and look for them, just in case." I helped him up and took him on a thorough search of the house, turning on all the lights and giving him a flashlight.

Mom shook her head as she "tisked" us. "Oh, for heaven sakes you two—there's no one else in the house."

"We'll just make sure that Davy and J. Edgar left, okay? Mom doesn't really understand how important it is to you," I whispered.

He looked at me so relieved. "Thanks, honey. You know, I think they must have left now, but they were here. Please, you gotta believe me, sweetheart."

"You know— I think you're absolutely right, Dad. I think there is a cookie missing here. It looks like those guys are gone now though, and nothing else seems to be missing. They must have been nice guys, not thieves or anything. Let's lock all the doors together so you know that no one can get in the house and you can sleep better, okay?"

"Okay, yeah, that's good," he whispered. I finally got him back into bed and kissed him goodnight as Mom shook her head. I went back to my bed and intensely studied the texture of the ceiling as tears streamed down the sides of my face and clogged my ears. I'd have never guessed that I'd have to be my parent's parent, and wasn't it amazing that I was an absolute natural at it… but then again—I had very good teachers.

Jacqueline Marcell cared for her elderly parents with Alzheimer's disease and authored "Elder Rage." She hosts the internet radio program "Coping With Caregiving." Read her full biography

 
 

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  •  Comments 1 to 9 of 9 
 
 

castoff

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Jul 4, 2010

LORD, help us go gently into that good night and not do this to our children.

 
 

LynnPO

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Jul 5, 2010

Amusing story but... why go to all the trouble to argue. Remove the distributor cap from the car so that it won't fire. Even if s/he got the keys, the car would not start. Then tell anyone and everyone that he'd call for help; advise them that he can't drive any longer - doctor's orders. All of this arguing is nuts.

 
 

castoff

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Jul 12, 2010

I hate deception!!!!
What makes old folks think they have to TRICK their caregivers into doing what they want???? The fact that they have to lie at all should make them realize what they are asking for is wrong and not in their best interest!!!
If getting old is all about being selfish, self absorbed and deceptive; I hope I die before it happens!!!!!

 
 

FyreFly

Give a Hug

Sep 1, 2010

Thank you for sharing this story! I truly enjoyed your wit, ingenuity, and well-thought out writing style. I was right there with you, and it was an incredible experience. Great job!

I hope you and your sister are doing well - seems like you have a really good system. {{{hugs to you!}}}
~FyreFly

 
 

SisterCarrie

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Oct 30, 2010

Your story is so real, and so resonant for me. Funny-- my husband believed in telling Dad the truth: no guys/pigs/demons in the room; he couldn't drive because he might kill someone, etc. I just agreed with him and told him the bad guys/pigs/demons were gone now, changed the subject, and tucked him back in bed. But Who knows? I mean, some things were definitely hallucinations, no question. But he claimed to have been seeing a ghost in his own home many years before the dementia came on. I do believe in spirits, and he might have been right some of the time. I hate lying to him, but sometimes there is no other way to keep the peace. Arguing seems worse than lying. A neurologist specializing in dementia once told me to think of it as "therapeutic lying." Ultimately, I took the route of peace, but my brother didn't really have a choice. He had to bear the "car keys" battle on his own, long before Dad came to live with me. I think some of our battles were eliminated by the fact that Dad was no longer in his own home, sad as that was for him. Three dozen cheers for you and Arianna for all you have done to let your parents stay in their home. I didn't have that option, but i think my situation was easier than yours in many ways. Thanks for writing about it.

 
 

ReallyTired

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Oct 30, 2010

You have found a great way to deal with this situation. I wish I could get there with my mom.

 
 

scardascia

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Dec 4, 2010

When "old people" have dementia - it's not lying - it's confusion and fear - and telling them the truth does absolutely no good. It doesn't matter what you say - it's forgotten in a matter of minutes. We learned with my mother-in-law to always give her the answer she wanted. She stayed calm and happy and we had peace. And if something came up that was unavoidable our best option was to stall.
My mother-in-law's younger sister was very ill with leukemia. When her sister passed away we told her and she took the news very hard. A few weeks later she asked how her sister was doing. We told her again that she had died and again my mother-in-law wept as if she was hearing this for the first time. After that, every time she asked about her sister, we told her that she was doing much better and my mother-in-law was always happy and relieved. On a funnier note --
One Memorial Day our family was together for a barbeque, and we noticed my mother-in-law teary at the table. When we asked her what was wrong she said no one had remembered today was her birthday. My husband tried to explain that her birthday wasn't for 2 months. As she became more agitated and upset, my sister-in-law quickly went to her room and threw together a small gift bag of body wash and moisturizer, hearing aid batteries, denture cream and a new lipstick she had and carried it out singing happy birthday. My mother-in-law lit up like a 4 year old. From then on, no matter the date or holiday, we always made sure we had her "birthday gift" and a small cake on hand.
We all have our lives back now. My mother-in-law passed away this past September at the age of 92. I miss her and still haven't figured out what to do with my free time.

 
 

mslisadoll

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Feb 24, 2012

Thank you for sharing your story. It sure is tough, but it is a good thing to avoid arguments. It is hard sometimes to try to put yourself in our elderly loved ones places, but try it sometimes and makes it easier to back off. It would be hard to imagine my life without them and vice versa and impossible to get along all the time. It must be normal to have conflict sometimes even though the love is still there. Just tough when you are not sure who your friends really are and you don't have much time to socialize and some people just don't understand. Oh well.

 
 

Vic

Give a Hug

Mar 2, 2012

My story is not about cars or keys..sometimes dad had those vivid dreams and I just let him talk about them like the bugs on the wall or where is his bed or bathroom..
During the day when he is awake though the frustration build as he can't do much for himself and gets upset when we have to help him to eat and take his meds or make him drink his water. He tells us no gets mad..I have to walk away and come back and try again. When I lift him and he is standing on tiptoes bent up and I have to straighten him up to move him..he tells me he IS NOT standing on tiptoes and we go round and round.. Then I just have to out him in chair or on toilet and he gets mad cause I am rough.. Sometimes I can't win for losing..
One time he raised his arm to me..I told him it was like pointing a gun ...don't point unless you are going to shoot.. So if you want to hit me go ahead if it will make you feel better... He didn't say anything.. Not like my dad to be this way.. His illness takes over and I forget and lose my temper to... You know the yes no thing that gets louder and louder..
Then there are days that he is just so helpless and I cry for his pain and sorrow. He was and still is my daddy who has always been there for me. ....

 
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