Caregivers Share Their Views on AARP Conference

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Judy Thorburn
Cared for her mother until her death at age 91
Las Vegas, Nevada

At age 86, Judy's mother was the epitome of a healthy elderly person. She lived at home, took meticulous care of her home and her health. "Even in her 80s, she looked like she was 65." Then she was diagnosed with colon cancer. "She went downhill quickly," Judy recalls. Judy suddenly found herself caring for her mother full-time, changing her ostomy bag three times a day, cooking for her, helping her dress and bathe – all of the responsibilities that come with full-time caregiving.

Incredibly, Judy's mother beat the odds and was in remission from colon cancer. Then, a routine eye exam left her partially blind. Making matters worse, her mother was diagnosed with breast cancer. Judy's caregiving duties took over her life, and she had to quit her job. "I was a model, and a journalist, but I simply had no time to work anymore. But I didn't have a choice. There was no one else to do it."

One of the most startling revelations for Judy was that her friends weren't there when she needed them most. Her friends suddenly disappeared, unable to deal with Judy's new life. Luckily, her husband was extremely supportive.

Eventually, her mother had to be put in a nursing home, but Judy's duties were far from over. "I started noticing black-and-blue-marks on her body. It turns out she was being abused by the nursing home staff." Judy found a new nursing home, and kept a vigilant eye, visiting her mother several times a week, even though the nursing home was 50 miles away.

Judy continued to care for her mother until her death at age 91. Judy attended the AARP conference as a journalist, having re-started her career after her mother's death. Living in Las Vegas, she is an entertainment reporter.


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Irishtwin

Give a Hug

Nov 11, 2009

My 86 year old mom lives with me in PA for the past 7 years. My sister and brother live 400 miles away and do not communicate at all. I pleaded with them to call at least once a week just so mom does not feel like she was "sent" away.

I accepted this caregiving arrangement thinking it would bring us all closer and they would come and visit. This happens rarely and tensions are always high. My brother is Executor and bullies us with this. I have taken over her medical care because she was left to suffer for 9 months with jaw pain which turned out to be angina this happened in their care and when she returned she needed multiple stints. My siblings never approved of this and never approved of us taking her to Hawaii to see her grandchildren perform in their HS band. We took her anyway and she had a great time. We paid for her trip but they do not want her to enjoy life. Her quality of Life has improved so much since her doctors in PA took over.

What I wanted to know is this. Caregiving for my is fine. It is the Sibling Rivalry and games that are demoralizing and exhausting. Does AARP have an Advocacy Program for people like me. My mom has AARP and I would appreciate any advice as to the protection for caregivers against passive aggression and mental abuse. I am sure I am not alone but do not know where to turn. With Thanksgiving coming up, I just had another dispute as to our visiting with mom, etc. Please send feedback. Mom is calling, gotta go...........

 
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