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How do I handle friends who are not supportive of my caregiving journey?

Jacqueline Marcell

You’ve probably noticed how when you talk to some of your friends, who are not going through caregiving, how their eyes start to glaze over when you talk about your situation. Don't be offended--it seems to be universal. They want to be supportive, but they just can't for long periods of time, because they realize what you are describing is all ahead of them. For now, they aren't there yet, don't want to be, prefer denial--and it is just too unpleasant to listen to horror stories they can't fix. So, just limit your exposure to those people--and realize their caregiving days are probably coming too.

If I had to do it all again, I'd ask my top seven friends if they could handle calling me once a week, but on a specific day. That way, I'd know that the phone would ring at least once a day, instead of feeling alone without calls for days on end--and then seven calls in one day!

And if you're having a meltdown late at night and don’t want to call and burden a friend, realize there are many online support groups, forums and chat rooms, where you can vent and vent and vent!  Check out the forums here at Agingcare.com .

Writing about what you are going through will help tremendously to purge it out. Hey, the first draft of my book, Elder Rage, was 650 pages before I finished venting. So, even if it is 3:00 am, I guarantee there are frustrated wide-awake caregivers who are online and venting too. And, guess what? It's daylight on the other side of the globe--and I am pretty sure they have caregivers there too.


Jacqueline Marcell is the author “Elder Rage” and host of the radio talk show “Coping With Caregiving.” You can learn more about Jacqueline and find information about her book at www.elderrage.com.

Comments (1 to 5 of 18)

sooz said
Jun 17, 2008

my paralyzed hubby has 6 siblings. its been years since we've seen any of them in spite of my begging with a happy smile and a home cooked meal offer. i have 8 sibs, and its even longer since we've seen any of them. even my parents stayed away. and i'm a good and happy cook in a clean and pretty home. everyone loved my husband, before. now all these years later, our 3 children are in their 30's. 2 of them haven't come to see their dad in 9 months. no christmas, no easter, no mothers or fathers day, no birthdays. NOTHING!! and they well remember the pain of absentees we all felt for so many years. now, they too have followed the[ lack of compassion]path. i am convinced compassion is not taught. its something 1 in 50 is born with. that makes a very sad world.

wright3865 said
Jun 17, 2008

Believe me I understand what you are going thru. When my mother was a vibrant, social, happy person, the whole family would be around. We have a very large family, but now that she has alzheimers, it's like she is contagious. It's lonely for those of us that watch and care for our loved ones. Just note that you are not alone.

Cat said
Jun 17, 2008

Has anyone else run into family members who no longer bother to send
birthday, holiday cards to their parent because they don't think dementia patients will notice. Human nature continually surprises me.

I sent a package of cards for the whole year with postage on envelopes to one relative that I thought would be willing to sign & send - no go.......guess I'd rather laugh than cry.

sooz said
Jun 18, 2008

sooz said
Jun 25, 2008

well, here's another thought. neglectful child keeps distance for 9 months with nothing acknowledged. healthy parent says 'no card for birthday as i would be enabling your neglect towards her to open and read it. stop in to say hello for a few minutes, ONLY'. does neglectful child have any legal grounds to sue healthy parent for returning a card unread to sick parent? as a caregiver, are there any rights in deciding what to do about bad kids and making decisions about the ill spouse and the lack of personal contact with them. bad kid lives 11 minutes away. any attorneys out there? PLEASE answer. - sad parent

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